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About the ADSHG

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The Addison’s Disease Self-Help Group (ADSHG) is the support group in the UK and Ireland for people with Addison’s disease or adrenal insufficiency and their families. First started in 1984, the Group is now a registered charity (no.1106791) governed by a body of elected trustees, which works to support its members with adrenal failure and to promote better medical understanding of this rare condition.

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  1. The Addison’s Disease Self-Help Group (ADSHG) is the support group in the UK and Ireland for people with Addison’s disease or adrenal insufficiency and their families. First started in 1984, the Group is now a registered charity (no.1106791) governed by a body of elected trustees, which works to support its members with adrenal failure and to promote better medical understanding of this rare condition.

    • 1,197 views
  2. Membership of the ADSHG is open to anyone with Addison's or other forms of adrenal insufficiency that result in steroid dependence. Family members, friends or anyone with an interest adrenal medicine are also welcome. You can join as an e-member receiving your material electronically through the website or as a postal member. Most of our members have primary adrenal insufficiency (Addison's) but people whose steroid-dependence is from causes are welcome to join the group, to share support around managing their dependency on this life-saving medication.

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  3. The Addison's Clinical Advisory Panel (ACAP) is an informal group of endocrinologists with an interest in adrenal medicine. They advise the ADSHG on its clinical guidelines, write medical commentaries and review our publications for us. They are led by Professor John Wass of the Churchill Hospital, Oxford.

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  4. As a member, you receive a range of benefits including direct support from fellow members via the online forum and through local meetings as well as the quarterly ADSHG newsletter, A number of these including the ADSHG newsletters, online forum, Living well website articles and ADSHG NewsAlert emails are directly accessed from the website here.

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  5. As a registered medic, you receive free access to a range of member benefits which include the quarterly ADSHG newsletter, Living well website articles and ADSHG MedicNews update emails which can be directly accessed from the website [registered medic only].

    • 814 views
  6. Addison's Ireland is the Irish branch of the Addison’s Disease Self-Help Group (ADSHG) with approximately 104 members from around the country both north and south. It organises regular meetings in Dublin and around the country and works to raise awareness of Addison's in Ireland.

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  7. Our online forum is a vibrant community of ADSHG members offering mutual support and help. It is a key membership benefit of the ADSHG, providing subscribing members with the opportunity to share experiences, ask questions, make new friends and discuss the practicalities of living with Addison's.

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  8. A comprehensive range of Addison’s awareness merchandise, emergency information and injection kits are available to purchase from the ADSHG online shop.

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  9. The ADSHG works hard in it's mission to raise community awareness of Addison's disease via the charity website, the charity's Facebook page and Twitter. Supporting people with this rare condition is the prime objective of the charity so it makes all medical literature free to everyone on the website and provides local meetings and an online forum for members. Learn more about the impact the group is making from the ADSHG Impact at a glance 2015 summary.

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  10. The ADSHG is a registered charity (no. 1106791) and produces annual reports and accounts to comply with our Charity Commission registration. You can find details of our most recent report below.

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  11. The ADSHG is a charity run by a team of enthusiastic volunteers who would love to hear from you, however it may take a day or two for us to get back to you. We are unable to provide medical advice for individuals and you should seek this from your medical team.

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  12. The day-to-day running of the ADSHG is performed by the an enthusiastic and dedicated group of volunteers and a few contract staff who support the aims of the organisation and work with us to meet our goals.

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  13. The ADSHG is run by an elected executive committee of trustees who govern the overall running of the charity and guide and direct the volunteers, who help manage the day to day activities of the charity.

     

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  14. The ADSHG is a charity (no.1106791) that is supported by individual donations, legacies, membership subscriptions, corporate grants and from our online shop. The ADSHG is very grateful to the families and organisations who have supported our work through memorial donations, fundraising, grants and sponsorship.

    • 1,238 views
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