About the ADSHG

14 articles in this category

1. Joining the ADSHG & member benefits

   Membership of the ADSHG is open to anyone with Addison's or other forms of adrenal insufficiency that result in steroid dependence. Family members, friends or anyone with an interest adrenal medicine are also welcome. You can join as an e-member receiving your material electronically through the website or as a postal member. Most of our members have primary adrenal insufficiency (Addison's) but people whose steroid-dependence is from causes are welcome to join the group, to share support around managing their dependency on this life-saving medication.

   By ADSHG, June 9, 2016

   • 117,528 views
2. About Addison's Ireland

   Addison's Ireland is the Irish branch of the Addison’s Disease Self-Help Group (ADSHG) with approximately 104 members from around the country both north and south. It organises regular meetings in Dublin and around the country and works to raise awareness of Addison's in Ireland.

   By ADSHG, June 10, 2016

   • 2,061 views
3. About the Addison's Disease Self-Help Group

   The Addison’s Disease Self-Help Group (ADSHG) is the support group in the UK and Ireland for people with Addison’s disease or adrenal insufficiency and their families. First started in 1984, the Group is now a registered charity (no.1106791) governed by a body of elected trustees, which works to support its members with adrenal failure and to promote better medical understanding of this rare condition.

   By ADSHG, February 21, 2016

   • 1,241 views
4. About the online forum

   Our online forum is a vibrant community of ADSHG members offering mutual support and help. It is a key membership benefit of the ADSHG, providing subscribing members with the opportunity to share experiences, ask questions, make new friends and discuss the practicalities of living with Addison's.

   By ADSHG, July 15, 2016

   • 2,371 views
5. About the online shop

   A comprehensive range of Addison’s awareness merchandise, emergency information and injection kits are available to purchase from the ADSHG online shop.

   By ADSHG, June 12, 2016

   • 2,390 views
6. ADSHG Impact at a glance 2015

   The ADSHG works hard in it's mission to raise community awareness of Addison's disease via the charity website, the charity's Facebook page and Twitter. Supporting people with this rare condition is the prime objective of the charity so it makes all medical literature free to everyone on the website and provides local meetings and an online forum for members. Learn more about the impact the group is making from the ADSHG Impact at a glance 2015 summary.

   By ADSHG, February 10

   • 430 views
7. Annual report and accounts

   The ADSHG is a registered charity (no. 1106791) and produces annual reports and accounts to comply with our Charity Commission registration. You can find details of our most recent report below.

   By ADSHG, March 3, 2016

   • 1,069 views
8. How to contact us

   The ADSHG is a charity run by a team of enthusiastic volunteers who would love to hear from you, however it may take a day or two for us to get back to you. We are unable to provide medical advice for individuals and you should seek this from your medical team.

   By ADSHG, June 13, 2016

   • 6,377 views
9. Meet the Addison's Clinical Advisory Panel

   The Addison's Clinical Advisory Panel (ACAP) is an informal group of endocrinologists with an interest in adrenal medicine. They advise the ADSHG on its clinical guidelines, write medical commentaries and review our publications for us. They are led by Professor John Wass of the Churchill Hospital, Oxford.

   By ADSHG, February 21, 2016

   • 3,213 views
10. Meet the ADSHG team

    The day-to-day running of the ADSHG is performed by the an enthusiastic and dedicated group of volunteers and a few contract staff who support the aims of the organisation and work with us to meet our goals.

    By ADSHG, March 3, 2016

    • 1,651 views
11. Meet the ADSHG trustees

    The ADSHG is run by an elected executive committee of trustees who govern the overall running of the charity and guide and direct the volunteers, who help manage the day to day activities of the charity.

     

    By webmaster, February 21, 2016

    • 1,921 views
12. Resources for members only

    As a member, you receive a range of benefits including direct support from fellow members via the online forum and through local meetings as well as the quarterly ADSHG newsletter, A number of these including the ADSHG newsletters, online forum, Living well website articles and ADSHG NewsAlert emails are directly accessed from the website here.

    By ADSHG, October 27, 2016

    • 1,570 views
13. Resources for registered medics

    As a registered medic, you receive free access to a range of member benefits which include the quarterly ADSHG newsletter, Living well website articles and ADSHG MedicNews update emails which can be directly accessed from the website [registered medic only].

    By webmaster, March 21

    • 944 views
14. Supporting the group financially

    The ADSHG is a charity (no.1106791) that is supported by individual donations, legacies, membership subscriptions, corporate grants and from our online shop. The ADSHG is very grateful to the families and organisations who have supported our work through memorial donations, fundraising, grants and sponsorship.

    By ADSHG, April 7, 2016

    • 1,267 views