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Addison's disease is a rare condition, little known to the general public, that receives only occasional media attention. In this media section, we provide resources, explain how we assist media enquiries where we can, and list the ADSHG's past press releases.

6 articles in this category

  1. Concordia, the supplier of hydrocortisone sodium phosphate, has confirmed that it has stopped manufacture until Q3 2018 due to difficulties in sourcing the active ingredient for its liquid injectable hydrocortisone. 

    • 2,013 views
  2. The Addison's Disease Self-Help Group supports the Kate Granger Hello, my name is campaign to promote good doctor-patient relationships and hopes to encourage medical professionals everywhere to adopt its approach. Here, an ADSHG member – who knew Kate Granger as a personal friend – explains how it came about.

    • 1,762 views
  3.  

    This section provides electronic links to the websites of other organisations in the UK and around the world that provide support and information to people with Addison's and adrenal insufficiency. As many people with Addison's also live with other autoimmune conditions too, we have included some links to relevant patient groups for these conditions.

     

    • 5,437 views
  4. Addison's in the workplace

     

    When: Monday 29 May, 19:00 - 20:00 BST
    Where: hosted by @AddisonsUK, using hashtag #AddisonsQA

     

    The next Addison's tweet chat will take place on the 100th anniversary of John F Kennedy's birthday, 29 May.

     

    The theme for this event will be Addison's in the workplace.

    • 2,277 views
  5. The ADSHG is holding a Twitter conversation to mark Rare Diseases Day 2017. The theme for our event will be "Working towards good doctor-patient relationships".

     

    When:Tuesday February 28th 7 - 8pm
    Twitter hashtag: #AddisonsQA
    Twitter host: @AddisonsUK

    • 1,145 views
  6. The group's highly regarded publications for people with Addison's are undergoing a redesign over the coming months, improving their visual design and also accessibility for people with visual impairments. Learn more about these improvements and the impact they are already having.

    • 294 views
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The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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