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Flu pandemic: the real risks -
August 2009
On 11
August 2009, the Society for Endocrinology issued an
information sheet for steroid-dependent patients and their
doctors, about how to manage their health in the event of
a flu pandemic. In this, the Society warned that it was
vital to ensure that patients did not run out of their
essential steroid medication, and that repeat
prescriptions limited to just 28-days supply were
potentially putting patients' lives at risk.
(Society for Endocrinology - Media Release 11/08/09 PDF)
Addison's disease: failure to
diagnose can be fatal
- July 2009
On 2
July the British Medical Journal published an article on
how to diagnose Addison's titled "Easily missed?" Here we
print our rapid response to the journal, "Addison's
disease: failure to diagnose can be fatal", published on
24 July.
(Rapid Response to: BMJ 2009; 339: b2385)
Continuity of care is important -
May 2009
On 6
May 2009, the print edition of the British Medical Journal
published an extract from our electronic reply to a
published article, titled "I want to see the consultant".
This article, written by
David P Crampsey, a specialist registrar in
otolaryngology, West of Scotland rotation, proposed that
outpatients who request to see the consultant rather than
a registrar should be refused. Our full response, which
was published on the British Medical Journal website in
April. Read more...
Gilmore review of prescription
charges, April 2009
In its
submission to the Gilmore review of prescription charges,
the ADSHG recommended that prescription charges could be
phased out in a cost-neutral way by placing patients with
long-term medication dependencies on three-six month
repeat prescriptions, as appropriate. This could generate
savings on pharmacy dispensing fees and associated costs
estimated at potentially £450 million per annum.
Read more...
Darzi healthcare review, April 2008
In its
submission to the Darzi healthcare review,
Our NHS, our future, the
ADSHG recommended the establishment of regional (tertiary)
centres of expertise in adrenal medicine and effective
partnerships between tertiary centres and local GPs.
Read more...
Working with the media: Guidelines
& Objectives
We
endeavour to maintain the highest standards of accuracy in ADSHG publications
and we expect mass media outlets to do the same. The ADSHG has developed a
set of guidelines governing its contacts with the media.
Read more...
Addison's disease and shock - press
release 07 February 2008
The
Addison’s Disease Self Help Group, the main UK support
group for patients with Addison’s disease, has received a
number of enquiries from the public following stories in
the media that watching scary films could lead to shock
and death in some people with Addison’s.
Read more...
The Addison’s rose: Our Beth
21 May 2006
Peter
Beales Roses are launching a new rose, Our Beth, and have
generously offered to make 10% of all sales proceeds
available to the ADSHG. To find out details
read more or for
our press release
Read more...
Misinterpretation of serum cortisol in
a patient with hyponatraemia
-24
Jan 2004
Primary adrenal insufficiency or Addison's disease is
caused by bilateral adrenocortical destruction and is a
relatively common endocrinopathy, with a prevalence of
about 40-60 per million adults. Adrenal insufficiency is
an important consideration in any critically ill patient,
as failure to make the diagnosis may have fatal
consequences.
(BMJ 2004;328:215-216 (24 January)
Read
the reply written by Sarah Baker, Alyson Elliott, Deana Kenward
and Katherine G White on behalf of Addison’s Disease
Self-Help Group,
Volume 362
Issue 9383 Page 579
original letter [PDF}...
Adrenal Insufficiency Seminar - 31
May 2003
We
would like congratulate Doctor Wiebke Arlt and Professor
Bruno Allolio for summarising the major issues concerning
the diagnosis and management of adrenal insufficiency. Read
the article: (Payment Site:
The Lancet 2003; Volume 361: Issue 9372 1881 – 93)
and search for "Wiebke Arlt"
Read
the reply written by Deana Kenward and Katherine G White on
behalf of Addison’s Disease Self-Help Group and published in
(The Lancet 2003 Volume 362 Issue 9383 Page 579)
or read the
original letter [PDF] here...
President John F Kennedy - 17
November 2002
During his lifetime, President John F Kennedy hid any
reference to his
autoimmune conditions. These included Addison's, a
thyroid problem and a
painful, degenerative spinal arthritis which may have been
exacerbated by
his steroid treatment. Recently his estate has allowed
access to his
medical records, which have revealed the true extent of
his health problems.
Read the article: (Registration
Site:
The
New York Times 17/11/02)
DHEA trial report on BBC Online
- 04 November 2002
An
update regarding the
Addenbrooke’s
DHEA trial as
previously reported in our TOPICSsection is presented by
BBC Online
following the Society for
Endocrinology annual meeting in London.
Read
the article: (BBC
Online
- Vitamin hope for Addison's patients, 4/5/02).
The Guardian Ask Emma
- 07 July 2002
We would like to express our dismay
that The Guardian offers ill-informed and impractical advice
to an individual in the early stages of Addison’s disease.
Read
the article: (Ask
Emma column, Weekend p51, 7/7/02).
Read
the ADSHG response to :
The Guardian - Ask Emma
Kathleen Hilditch - 9 September 2000
Kathleen Hilditch has written an
account of her
experiences in getting diagnosed. Her story provides an
informative picture of the gradual onset of Addison’s
symptoms, and of the difficulties in getting medical
attention for an endocrine condition which has
non-specific symptoms of fatigue and exhaustion as its
main components. Read
the article:
(BMJ 2000;321:645, 9 September)
Read
the reply written by Sarah Baker, Deana Kenward and Katherine G White on
behalf of Addison’s Disease Self-Help Group and published in
(BMJ
2001;322:494, 24 February)
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