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My Addison’s story

By:  Alan  Wednesday, 9. July 2003

continued from previous page...

 

The only non-medical problem I had with the illness was my difficulty in obtaining life insurance at a reasonable price. I remember being told I had about a 9/10ths life chance compared with people without the illness. However life insurance companies tended to load their policies by about three times. I was now married with two children, so life insurance was a must have.

 

About 25 years ago I dislocated my knee playing squash. I sat on the floor, bashed the knee bone back in place and stood up to carry on playing.  Prudently, I decided to stop. The knee swelled up where I had chipped the bone. I went into hospital for two days and had a caste fitted. I took about a year to recover.

 

In the early 1970s, I set up a design company working specifically for the cosmetic industry with an ex-Revlon colleague, after being made redundant from my job as advertising manager at Coty. It was hard work but by the early 1980s we had a staff of over twenty and our clients were most of the big names in the beauty and fragrance industry. It was a stressful lifestyle; my problems would come not from Addison's but from other medical factors.

 

In 1982 I started to suffer from heart problems; I was getting chest pains every time I walked for more than a few hundred yards. At the time I smoked, took no exercise, ate big company lunches and drove into the west end of London every day to a stressful 10-hour job.  I was a classic case.

 

I had a heart by-pass operation at the early age of 44. From then on I tried to take a more relaxed view of life. Ate more sensibly, gave up smoking and took up tennis. At the end of the 1980s the company, like many others at that time, hit big financial difficulties and was wound up. I carried on by myself as a sales promotion consultant to the cosmetic industry, but working from home. During the 1990s this was quite successful. It also gave me time to expand my drawing and painting skills. I now paint pictures of wedding reception venues, churches etc. called ‘Wedding Originals’, as well as painting and exhibiting with local art groups. 

 

My second by-pass was 19 years later, in March 2002. The symptoms had started coming back about six years before that. I had an angiogram which showed my grafts (four) were starting to narrow and my own original system was now totally blocked. I started beta blockers, aspirin, and a nitro spray which I used to relieve symptoms when playing tennis. But the symptoms kept getting worse. I had a further angiogram which confirmed this.

 

I had to make a decision. My tennis was now a pain in every sense and it was unfair to other players to carry on. I could either lead a very quiet life and resign myself to follow my father in a few years or go for another by-pass operation. 

 

My father had died of a heart attack at 66. 

 

The chances of failure are double the second time around.

 

The main reason I went for the second operation was that in November 2001 my second granddaughter was born. I saw Isabel a few hours after she was born. Perhaps I am a bit biased but she was so beautiful, I thought, I must stay around to see how she grows up. So I went for the second by-pass.

 

They have to take out the old plumbing first before putting in new grafts. Five grafts this time. To do this, apart from ripping my chest open with a Black-and-Decker type of saw, they took veins from my right leg (two-foot scar) plus an artery from my left arm (one-foot scar).  This has affected the feeling in my left thumb, with pins and needles.

 

I had about 100mg hydrocortisone for the by-pass and for about three days after.   Then I dropped down to my normal 60mg dose.  In retrospect I should have stayed on a higher dose for a few weeks to aid my recovery. I was in hospital about nine days and felt fine on coming home but relapsed after three weeks. I remained easily tired for about two months, then started walking a mile or two a day.  After three months I was assigned to a gym session at the local hospital twice a week.  And then I was back to tennis.

 

During the last ten years or so I have had very little problem with the Addison’s. I have learnt to control it and listen to my body. I now also have an under-active thyroid which was picked up on a routine set of blood tests a couple of years ago. I take 75 mcg thyroxine a day for this. 

 

I had a broken ankle around six years ago.  I was in Brighton on the way to play tennis, ran down a 45 degree slope and slipped. Result was a 'Pots' fracture. Ambulance, hospital, operation, bones put back and a five-inch plate screwed into my leg. The plate still gives a bit of discomfort. Along the way I have had also had two hernia operations.

 

The body needs extra help, i.e. more hydrocortisone, to get through these extra problems. With the physical injuries I have never come close to going into shock, although like anybody I felt a bit weak. Perhaps my high dosage was a help.

 

I had a bone density scan not long ago which showed that my bone density was okay, despite my many years on a high dose of hydrocortisone.  But I do have the start of arthritis in my knees, for which I take anti-inflammatory drugs plus glycosomine.  That’s the downside of tennis.

 

So here I am. I have a very supportive wife and children (now three grandchildren as well). I have had an interesting, if topsy-turvy, career and enjoy drawing and painting the world about me. I have also been lucky with the Addison’s. It seems about 25% of people with Addison’s are like me. Once it is controlled it does not pose too many problems. I think it is important to keep a balance in life. Do not put everything down to a particular illness. We all have good days and bad days.

 

Alan

 

May 2003

 

 

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