Personal experiences & life stories

Compiled by:  Nick Willson  Thursday, 05 Feb 2009

A number of Addisonian's have amazing life stories and fascinating experiences to share about their life with Addison's.  Here we get to read a few of them.

Our athletes – our heroes

Three members of the ADSHG – all with Addison’s – took part in marathons in April 2010.  Peter completed the Brighton marathon on 18 April, while Greg and Debra completed the London marathon on 25 April.  Here, they tell their stories.

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So close to dying

Tracy was very ill with the classic symptoms of Addison's disease.  Despite this, her local hospital sent her home in the belief that she had "a dietary problem".  Tracy's story is a reminder that Addison's disease remains rare enough to be easily overlooked by general medical practitioners, until it is severely advanced.

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I thought I was going mad

How a hyperthyroid condition complicates an eventual diagnosis of Addison's disease, teaching us we may not all be text book cases.

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Me and my hard-working bones

I have always been a busy person.  I was working as a pub landlady when my Addison’s was diagnosed in 1981, not to mention bringing up my three children, then aged 6, 10 and 11. 

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My Addison’s story

I am now 64 and will soon collect my pension – at last, riches beyond my wildest dreams! The Addison’s was diagnosed in 1960, when I was 20, so I have lived with it for more than 40 years now.

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My Lazaretta Day

I’m now a just-turning-50 year old woman. I was diagnosed as hypothyroid in November 2001 and then with Addison’s just a few months later in early February 2002.  This was after about twelve months of increasing illness – and for six months of that time, I was very sick indeed.

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Julie's Story

It is now twelve years since my first endocrine condition – hypothyroidism – was identified, and five years since my diagnosis with Addison’s disease.  Over those five years, I have experienced other health complications and at times have had to struggle to deal with the events life has thrown at me. Read more… 

A diagnosis of Addison's: my daughter's story

How a 14 year old girl came to be diagnosed with Addison's, diabetes and a thyroid condition.  Read more…

Deana Kenward's Story

Read Deana's account of  being diagnosed with Addison's disease and subsequently setting-up the ADSHG, as published in a new medical book on endocrinology by Professors G Michael Besser and Michael O. Thorner.

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