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Welcome to the Addison's Disease Self-Help Group Online Forum

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Like many online communities, you must register to view or post in our forum and access specific member-only publications on the website. Don't worry, it is a simple process to become a member and pay the subscription online. Being part of the Addison's Disease Self-Help Group offers you many benefits, including:
  • Participating in our on-line discussion forum
  • Receiving the quarterly members newsletter (online)
  • Laminated emergency card posted to you on joining
  • Attending social meetings and medical lectures
  • Keeping updated with NewsAlert emails

Toggle Starting point forums Starting point forums

  Forum Stats

Just joined - what to do now & forum hints 'n' tips

If you have just joined, learn how the forum works and other useful forum tips.. Please start your topics in the Welcome lounge or General discussion and news forums, unless your topic is about useful forum tips.

  • 6 topics
  • 2 replies

Welcome lounge

Introduce yourself, say hello and write a quick bio of yourself. We suggest you start a new thread using the 'New Thread' button. To greet or reply to someone elses introduction please reply to their thread.

  • 711 topics
  • 3,985 replies

General discussion and news

This forum is for general discussions, news and questions relating to Addison's. If you do not know where to post a message, simply post it here! After the discussion has run its course the moderators may move the messages to a more appropriate section of the forum.

  • 1,356 topics
  • 6,639 replies

Chat Area

For people to share good news, personal achievements and catch up on some ABA (Anything But Addison's). This may be a good cooking recipe, or something positive that happened at work. Please remember that messages should conform to the ADSHG House Rules, ie no jokes, circulars or ads.

  • 185 topics
  • 909 replies

Forum house rules

Membership rules, disclaimer, copyright and privacy policy

  • 1 topics
  • 0 replies

Toggle Living well forums Living well forums

  Forum Stats

Ambulance and A&E

  1. East Midlands Ambulance Service,
  2. East of England Ambulance Service,
  3. Ireland HSE National Ambulance Service,
  4. Isle of Man Ambulance Service,
  5. Isle of Wight Ambulance Service,
  6. London Ambulance Service,
  7. North East Ambulance Service,
  8. Northern Ireland Ambulance Service,
  9. North West Ambulance Service,
  10. Scottish Ambulance Service,
  11. South Central Ambulance Service,
  12. South East Coast Ambulance Service,
  13. South Western Ambulance Service,
  14. Welsh Ambulance Services,
  15. West Midlands Ambulance Service,
  16. Yorkshire Ambulance Service

Discussion and details about ambulance protocols and red flagging for each UK and Ireland ambulance services and experiences of needing to call 999

  • 65 topics
  • 301 replies

Crisis management

What happens in an Addisonian crisis? What kinds of illness or injury can trigger a crisis? How do you prevent it happening again? What about Injection kits or medical jewellery?

  • 192 topics
  • 1,222 replies

Hospitals & endocrinologists

Information & personal recommendations regarding hospitals & endocrinological services thoughout the UK

  • 86 topics
  • 330 replies

Managing illness

You need to increase your medication to cope with illness. How much extra and for how long?

  • 285 topics
  • 1,552 replies

Medication & drug news

Careful timing for each dose helps to keep us feeling our best. When and how many times a day? How much do we need? What happens if you take too much or too little? Adjusting for hot weather? What about DHEA?

  • 474 topics
  • 2,548 replies

Dentistry & surgery

Dental treatment or surgical procedures may require extra steroid cover. How should it be administered and for what types of treatments?

  • 143 topics
  • 1,016 replies

Day to day living with Addisons

Should I always carry an injection kit and other day to day matters...?

  • 302 topics
  • 2,166 replies

Living with other conditions

Often Addison's is not the only medical condition people have to manage as other auto-immune conditions may also be present.

  • 221 topics
  • 1,011 replies

Addison's from secondary causes

For issues where adrenal failure has been triggered by a pituitary problem, eg. steroid suppression, Sheehan's, Cushings.

  • 72 topics
  • 379 replies

Recently diagnosed

If you are new to Addison's discuss and learn the essentials

  • 109 topics
  • 965 replies

Exercise & fitness

Having Addison's disease does not stop you being fit. But it does mean you need to plan your fitness regime and adjust your medication accordingly

  • 72 topics
  • 332 replies

Food & diet

Is Atkins really bad for you? Can you have too much salt? What does a balanced diet mean?

  • 64 topics
  • 280 replies

Young people and their families

Here you can discuss any specific issues facing children, teenagers and their families.

  • 118 topics
  • 876 replies

Disability allowances and employment issues

Unsure what your entitlements might be for disability assistance in education or employment? Discuss your entitlement and how to claim or appeal for Disability Living Allowance and Disabled Student Allowance.

  • 55 topics
  • 483 replies

Long term well-being

How do you distinguish the general health problems associated with getting older from problems that can be part of your Addison's?

  • 32 topics
  • 173 replies


It is possible to have a healthy pregnancy and normal childbirth with Addison's, provided you ensure you receive good medical care.

  • 47 topics
  • 244 replies

Travel & holidays

Jet lag, vaccinations, packing enough spare medication and getting your injection kit through airport security checks are typical issues for those travelling with Addison's.

  • 88 topics
  • 370 replies

Toggle Group communication forums Group communication forums

  Forum Stats

Face to face

Have you ever considered a face to face meeting? Use this forum to initiate a personal meeting or discuss regional meetings. Please remember to limit the personal information you share on the forum.

  • 117 topics
  • 450 replies

Addison's Ireland

Discuss anything specific to Addison's in the Republic of Ireland.

  • 35 topics
  • 156 replies

Overseas members' discussions

If you live outside the UK and what to discuss something specific to Addison's where you live.

  • 12 topics
  • 44 replies

Newsletter comments and questions

Comments and discussion arising from features in our newsletters

  • 5 topics
  • 14 replies

ADSHG charity projects & Exec

If you have an idea for local fund-raising or community awareness-raising that you want to canvass with other like-minded volunteers, please raise it here. The ADSHG is a wholly volunteer organisation run by and for people with Addison's. We have no paid staff, so depend on local efforts by local volunteers to make things happen

  • 53 topics
  • 252 replies

Forum technical support

If you have a technical question about using the forum or one of its many features, please raise it here.

  • 45 topics
  • 121 replies

Suggestion box

We welcome any and all suggestions you have to make this forum more informative and interesting.

  • 22 topics
  • 103 replies

  • 33,936 Total Posts
  • 3,842 Total Members
  • mrsbp Newest Member
  • 99 Most Online



Addison's Disease Self-Help Group

PO Box 1083



United Kingdom