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Member-only newsletters published quarterly with features and articles about living with Addison's and group news.
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ADSHG Newsletter 129 - September 2017
By ADSHG
Addison’s Disease Self Help Group newsletter, issue 129, September 2017
Welcome to the autumn 2017 edition of the ADSHG newsletter. This issue announces the arrival of the Addison’s cookery book, a enticing collection of healthy recipes compiled by Sue Chambers, with the story of how it came together. Our central feature reflects on June’s successful and enjoyable annual general meeting and medical lecture. Additionally, we report on the latest drug news, ambulance awareness and the ADSHG medical research grant, as well as the launch of the upgraded website.
This issue of the newsletter also contains the 2017 Christmas catalogue order form insert (included as an extra download file here), highlighting items – including those all-important stocking fillers – available to purchase from our online shop.
Page 1: Hot news from the kitchen
Christmas catalogue 2017
Don’t forget your flu vaccine
Page 2: From the President
About the money
Page 3: Sue’s cookbook
Page 4: Brexit update
Customs uncertainty: possible drug supply disruptions
Page 5-6: ADSHG and UK news
Repeat prescription length and reserve supply
Winter flu vaccine reminder
Medical research grant report: uncovering biomarkers for steroid-dependent patients
Fludrocortisone price hike causes hardship for dog owners
Natural killer cells and Addison’s
Page 7: Around the group
Talking to Sheffield medical students
Injectable hydrocortisone in Ireland
Price watch
Pages 8-10: AGM report
Personal impressions from a volunteer
Finance report
Social media report
Minutes of the 2017 AGM
Page 11: Ambulance awareness
Ambo update: get yourself registered!
East of England ambulance to the rescue
Spotlight on Living Well
Page 12: Personal experience
Molly’s mind - blogging my way through life
Page 13: Fundraising update
Donations report
Page 14-15: Social update
Gill’s social corner
2017/8 social and medical meetings
Page 16: The back page
Reminders
Conference dates
2018 subscription rates
ADSHG trustees and officers
488 downloads
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ADSHG Newsletter 128 - June 2017
By ADSHG
Addison's Disease Self Help Group newsletter, issue 128, June 2017
Welcome to the summer 2017 edition of the ADSHG newsletter. This issue reports promising developments towards the new Zeneo autoinject device. We have more positive news on A&E awareness in Ireland and a report from Dr Anna Mitchell on her ongoing genetic analyses. In addition, we focus on the website updates to Living well and the launch of our injection videos on YouTube.
In this issue
Page 1: Planning your summer get-away?
AGM and medical lecture tickets
Page 2: From the President
About the money
Page 3–4: Recent drug news
Latest news on the Zeneo needle-free auto-injection device
Infacort update
Brexit and the dispute over the European Medicines Agency relocation
Page 5–6: ADSHG news
Addison’s Ireland progresses A&E awareness
Society for Endocrinology conference
Grant for uncovering more about the genetic susceptibility of autoimmune Addison’s
Updated surgical guidelines
Page 7: Ambulance scene
Have you seen the ambulance Forum makeover?
North West ambulance to the rescue
Registering with your local ambulance trust
Page 8: Website news
Spotlight on updates to Living well, Ambulance and A&E forums and YouTube injection video launch
Page 9–10
Help with applying to university and support available through the Disability Living Allowance
Page 11–12: Personal stories
Ibiza eye-opener
Injection video saves the day in Zurich
Food poisoning risk from broken salad leaves
Page 13: Fundraising update
Pub quiz night
Donations report
Page 14–15: Social update
Gill’s social corner
2017 social and medical meeting
Page 16: The back page
Reminders
2017 subscriptions
ADSHG trustees and officers
576 downloads
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ADSHG Newsletter 127 - March 2017
By ADSHG
Addison's Disease Self Help Group newsletter, issue 127, March 2017
Welcome to the March 2017 edition of the ADSHG newsletter. This issue has exciting news about drug developments on the horizon for this year as well as discussing the potential impacts of Brexit on patients. Additionally, we look at our Group's ongoing efforts to build positive diaglogue with medics in the UK and Ireland and focus on our new website updates.
In this issue:
Page 1: Get running
AGM medical lectures and tickets
Page 2: From the President
About the money
Pages 3-4: Recent drug news
New needle-free injection device in the pipeline
Infacort update
Brexit and European Medicines Agency
Future access to orphan drugs
Pages 5-6: Ambulance scene
Ambulance regulator invites our input
Nursing and medical staff shortages set to increase
What's new on the ambulance scene?
Pages 6-7: Recent news
New website tasting menu and new Living Well dishes to try
British Society for Paediatric Endocrinology annual conference
Pages 8-10: Features
Coping with ... your GP practice
Famous lives: Saint Elizabeth of the Trinity
Pages 11-12: Personal stories
Office first aid: ADSHG videos to the resuce
Bootneck recovery
Windermere cold plunge
Page 13: Fundraising update
Pages 14-15: Social update
Gill's social corner
2017 social and medical meetings
Page 16: The back page
Reminders
2017 subscriptions
595 downloads
Submitted
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ADSHG Newsletter 126 - December 2016
By ADSHG
Addison's Disease Self Help Group newsletter, issue 126, December 2016
Welcome to the December 2016 edition of the ADSHG newsletter. This issue has positive news about drug developments on the horizon for 2017 as well as a report of our attendance at the recent Society for Endocrinology conference. Additionally, we feature several personal stories about the highs and lows of steroid-dependence.
In this issue:
Page 1: Good news for the new year
It's subscription time
Page 2: From the President
About the money
Pages 3-5: Recent drug news
Infacort low dose hydrocortisone gets closer to launch
Uncertainty over future access to EMA-licensed new drugs
ADSHG represented at the the Scottish Medicines Consortium hearing on Plenadren
Pages 6-7: UK news
ADSHG at the endocrine conference
ADSHG autumn medical seminar: Shoreham-by-Sea
Page 8: ADSHG news
Welcome to our new ambulance awareness coordinator
Wibbly, wobbly, webby
Pages 8-11: Personal stories
Marty Clarke, Gaelic dream team football player
My lactose-free hydrocortisone journey
Conquering the London marathon
Pages 12-13: Fundraising update
Pages 14-15: Social corner
Gill's social corner
2016/17 social and medical meetings
Page 16: The back page
Reminders
2017 subscriptions
563 downloads
Updated
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ADSHG Newsletter 125 - September 2016
By ADSHG
Addison's Disease Self Help Group newsletter, issue 125, September 2016
Welcome to the September 2016 edition of the ADSHG newsletter. After what has been an eventful few months for the country, this issue is packed full with news from our members and supporters on initiatives to support better care for people with Addison’s. This issue of the newsletter also contained a Christmas shop order form insert, highlighting items available to purchase from our online shop.
In this issue:
Page 1: Our community of supporters
With this issue
Chinese emergency treatment translations
Page 2: From the President
About the money
Page 3: Recent drug news
Campaign to add steroids for Addison's to Critical Medicines List
ADSHG submission to the Scottish Medicines Consortium on Plenadren
Page 4: UK news
Brexit - what are the implications?
Page 5: Life skills
Coping with ... telling family and friends
Prevention is better than cure - get a flu vaccination this winter
ADSHG Twitter Chat raises awareness
Register your Addison's with your local ambulance trust
Page 6: Research news
Uncovering the purpose of the CYP21A1P pseudogene
Pages 7-9: ADSHG AGM and annual report
A social and informative day out
Treasurer's report
Publications and media team report
Page 10: Personal stories
Kate Granger - #hellomynameis
Page 11: Personal experience
On the move with Addison's
Pages 12-13: Fundraising update
Pages 14-15: Social corner
Gill's social corner
2016 social and medical meetings
Page 16: The back page
Reminders
2016 subscription rate
588 downloads
Updated
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ADSHG Newsletter 124 - June 2016
By ADSHG
Addison's Disease Self Help Group newsletter, issue 124, June 2016
Welcome to the June 2016 edition of the ADSHG newsletter. This issue is packed full of news about some surprising recent drug developments, some positive ambulance news, the forthcoming relaunch of our main website, recent marathon triumphs of our fundraising runners, and some riveting personal travel stories. In this issue:
Page 1: Making the most of the summer holidays
New in the ADSHG shop
In this issue
Page 2: From the President
About the money
Emergency injection videos
Page 3: Medications update
Lactose-free hydrocortisone
Fludrocortisone out of the fridge!
New round hydrocortisone
New pack design, same product
2.5mg hydrocortisone pellets: not so strong
Pages 4-5: The new look ADSHG website arrives
Page 6: Ambulance news
Calling 999: hints and tips
Page 7: Conference news
ADSHG at medical conferences
Pages 8-9: Travel with Addison's
Holiday season
You can never be too sure
Rare Disease Day: raising awareness of Addison's
Pages 10-12: Personal experience
A sky-high crisis
The doctor's view...
Fulfilling a dream: running the London marathon
Pages 12-13: Fundraising
Pages 14-15: Social corner
Gill's social corner
2016 social and medical meetings
Page 16: The back page
Reminders
2016 subscription rate
697 downloads
Updated
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ADSHG Newsletter 123 - March 2016
By ADSHG
Addison's Disease Self Help Group newsletter, issue 123, March 2016
Welcome to the spring 2016 issue of the ADSHG newsletter. This issue is packed with riveting personal stories, all with a happy ending. In this issue:
Page 1: Springing into spring
Video launch
Marathon mission
Page 2: From the President
About the money
Meet the new clinical panel
Pages 3–4: Recent drug news
Fludrocortisone scare
Hydrocortisone concerns
Hydrocortisone 2.5mg pellets: are they an alternative?
Pages 4–5: Ambulance news
Ambulance protocols: Irish success story
East of England ambulance protocols
Pages 6–9: Personal experience
ADSHG videos help prepare for emergency injection
Our first emergency injection experience
Diagnosis slow: sodium low
The doctor's viewpoint
Pages 9–10: Around the group
Hydrocortisone and levothyroxine: double trouble or harmonious duet?
Pages 10–13: Fitness focus
Land's End to John O'Groats: the long way back to the top
Capital Marathon Challenge
Running to success
Pages 13–14: Fundraising
Pages 14–15: Social corner
Gill's social corner
2016 social and medical meetings
Page 16: Back page
Reminders
2016 subscription rate
795 downloads
Updated
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ADSHG Newsletter 122 - December 2015
By ADSHG
Addison's Disease Self Help Group Newsletter, issue 122, December 2015
Welcome to the winter 2015 issue of the ADSHG newsletter. This issue celebrates the achievements of our members and their families in 2015, during which they have climbed mountains, swum the ocean and run races on our behalf. In this issue:
Page 1: A box of celebrations at Christmas
ADSHG schools leaflet now online
Direct Debit: with this issue
Page 2: From the President
About the money
Pages 3-5: Mont Blanc special
Climbing Mont Blanc - with Addison's and Bessie Bear
High altitude climbing with Addison's - the practicalities
Pages 6-7: Conference report
ADSHG at the Edinburgh Endocrine Conference 2015
Feedback from volunteers on our stand
ADSHG posters
Pages 8-9: Around the group
Edinburgh seminar: observations from the floor
Register with your ambulance trust
Remember your flu vaccine
Send a card this Christmas
Wibbly, Wobbly, Webby
Pulses study update
Pages 10-12: Personal experience
Bangkok life: nothing like an early start
European odyssey
Have a very restful Christmas
Donations report
Pages 12-15: Social corner
Margaret's social corner
Addison's Ireland meeting: Limerick
Hospital meeting a huge success
Social and medical meetings
Page 16: Back page
Reminders
2016 subscription rates
This issue of the newsletter also contained a special fundraising insert highlighting our members' and supporters' fundraising achievements throughout 2015.
459 downloads
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ADSHG fundraising special - December 2015
By ADSHG
This special insert to the ADSHG December 2015 newsletter highlights the wonderful fundraising achievements of our members and supporters throughout the year.
It includes:
ADSHG at the Great Runs: Great North Run and Great South Run Dragonera open sea swim Tameside's got talent ... in aid of ADSHG Ian's fundraising update
30 downloads
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ADSHG Newsletter 121 - September 2015
By ADSHG
Addison's Disease Self Help Group newsletter, issue 121, September 2015
Welcome to the autumn 2015 newsletter. This issue starts with a controversial topic: on page 3, we respond to recent claims from The Times columnist Tanya Byron about the psychological health of people with Addison’s. Perhaps because she has only a passing familiarity with the effects of high-dose prednisolone, Prof Byron seems unaware of the difference between the side effects from therapeutic steroid doses that may be more than ten times higher than replacement, and the restorative, life-saving benefits of replacement hydrocortisone.
Page 1: Front page
Because steroids are for life
Mistaken media views on Addison's
Efcortesol update
Page 2: From the President
About the money
Page 3: In the media
Media comments on adrenal insufficiency and mental health: the ADSHG viewpoint
Pages 4-5: Personal experience
Nathan Gafuik: Crisis in Moscow
Happy to inject!
Page 6: Irish news
Addison's Ireland news
ADSHG at European Congress of Endocrinology
Pages 7-9: ADSHG Annual Report 2014
Chair's report to the AGM
A day in the capital
Treasurer's report
Publications & media team report
Pages 10-11: Around the group
What's new with flu?
Join our letter writing campaign
Alfred Potter memorial medical research award
Update: out-of-date Medic Exempt fines
Are you red flagged?
Pharmacy labels
Page 12: Personal experience
Why feedback to ambulance trusts is important: my experience
Paramedics: the frontline perspective
Page 13: Fundraising reports
Ian's £undraising update
Pages 14-15: Social reports
Jan's social corner
Wibbly Wobbly Webby
2015 social & medical meetings
Page 16: Back page
Reminders
2015 subscription rates
76 downloads
Updated
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ADSHG Newsletter 120 - June 2015
By ADSHG
Addison's Disease Self Help Group newsletter, issue 120, June 2015
Welcome to the summer 2015 newsletter. This issue takes an optimistic punt on the British weather – or our members’ overseas travel plans – and is packed full with hot weather and travel advice. You can find out how expert traveller Nathan Gafuik, the Canadian gymnast with Addison’s, handles long haul flights when he travels to international competitions, on page 5. And you can discover how ADSHG trustee Andrew is adapting to life in colourful, crowded, humid Bangkok. Ex-pat ADSHG member Yvonne explains how she survives in the searing Australian summers.
Page 1: Front page
Will this be the barbecue summer?
Direct debit paper mandates
Thai and Arabic emergency treatment translations
Page 2: From the President
About the money
Page 3: ADSHG video appeal
Self-stabbing for beginners: a how-to guide
Further Efcortesol delay
Pages 4-7: Travel with Addison's
Handling the heat at home and abroad
Nathan Gafuik: travelling the world
Bangkok life
Ten tip on how to manage your Addison's while on the road in Thailand
Thailand travel tips: the doctor's view
Holiday reminders
Pages 8-9: Nursing awareness
Addison's on the Northumbria curriculum
Pages 10-11: Around the group
Have you fallen off the list?
Ambulance registration in the south west
Genetic research: give blood
Never Events framework 2015
The true cost of prescriptions
Is your Medic Exempt still valid?
Page 12: Personal experience
Our first emergency injection
Page 13: Fundraising reports
Ian's £undraising bit
Wibbly Wobbly Webby
Pages 14-15: Social reports
Jan's social corner
2015 social & medical meetings
Page 16: Back page
Reminders
2015 subscription rates
96 downloads
Updated
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ADSHG Newsletter 119 - March 2015
By ADSHG
Addison's Disease Self Help Group, issue 119, March 2015
Welcome to the spring 2015 newsletter. Lifestyle and exercise are the hot new topics in this issue. Canadian gymnast Nathan Gafuik, who has Addison’s and took part in the recent Glasgow Commonwealth Games, shares his favourite foods with us. So does he ever do McDonald’s? Find out for yourself on page 5.
Page 1: Front page
New year, new you?
Subscription rises 2015
New medical research appeal
Page 2: From the President
About the money
Page 3: Recent drug news
Efcortesol shortage: the latest
Page 4: ADSHG membership questionnaire
Questionnaire results
Pages 5-6: Living well
Nathan Gafuik: my approach to diet and nutrition
Exercise, cortisol and me...
Page 7: Clinical trials
Volunteers wanted for the Pulses study
Pages 8-9: Around the group
Bad drug interactions
Join our letter writing campaign
Is your name still on the list?
Steroid education evenings in Oxford
Pages 10-11: Personal experience
Being a parent to a child with Addison's
Page 11-13: ALD and Addison's
Page 13: Fundraising report
Ian's £undraising update
Pages 14-15: Social report
Jan's social corner
2015 social & medical meetings
Page 16: Back page
Reminders
2015 subscription rates
83 downloads
Updated
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ADSHG Newsletter 118 - December 2014
By ADSHG
Addison's Disease Self Help group newsletter, issue 118, December 2014
Welcome to the winter 2014 newsletter. There is good news and bad news in this issue. The bad news is about the shortage of injectable liquid hydrocortisone – Efcortesol – as you can read on page 3. The rest of the newsletter is more positive, beginning with a diary exclusive from Nathan Gafuik, the 29-year old with Addison’s who led the Canadian gymnastics team at the Glasgow Commonwealth Games this summer.
Page 1: Front page
...and a healthy new year
Subscription rises 2015
Page 2: From the President
About the money
Page 3: Recent drug news
Efcortesol shortage
Pages 4-5: Personal experience
Glasgow Commonwealth Games: Nathan Gafuik diary exclusive
Pages 6-9: 2014 AGM
Chair's welcome
Observations from the floor
Treasurer's report
Facebook report
Member's feedback
Pages 10-11: Around the group
NHS hospital safety consultation
Volunteers needed: endocrine conferences 2015
Nursing awareness: your help needed
CAH is Us hosts London seminar
Page 12: More drug news
Prednisolone pricing controversy continues
Pages 13-15: Social reports
Jan's social corner
2015 social meetings
Page 16: Back page
Reminders
Subscription rates
41 downloads
Updated
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ADSHG Newsletter 117 - September 2014
By ADSHG
Addison's Disease Self Help Group newsletter, issue 117, September 2014
Welcome to the autumn 2015 newsletter. The AGM and medical lecture on 1 November will be our ADSHG “party” to celebrate 30 successful years as a support group for people with Addison’s and their families. This November also marks the 10th anniversary of our accreditation, as a charity formally registered with the Charity Commission. We will be celebrating that important milestone, too. There will be cake and balloons to go with the sandwich lunch at 1pm, which will be followed at 2pm by the 12th annual general meeting and 13th medical lecture of the ADSHG.
Page 1: Front page
Come to the party on 1 November
With this issue
Tell your friends: Great South Run 2014
Page 2: From the President
About the money
Pages 3-4: Recent drug news
Spotlight on Diurnal
Prednisolone pricing controversy
Page 5: Medical news
Making hospital visits safer
Page 6: Life skills
Coping with fear of hospitals
Page 7: Personal experience
Bad bugs strike again
Pages 8-9: Around the group
Red flags for the ambo
What's new with flu
Care.data concerns: update
Nursing awareness: Staffordshire replies
Pages 10-11: Meeting reports
EU nurses conference: Wroclaw
Spain: a dream come true
Page 12: Personal experience
Google gives the diagnosis
Pages 12-13: Fundraising reports
Ian's £undraising bit
Pages 13-15: Social reports
Jan's social corner
2014 social meetings
Page 16: Back page
Subscriptions
Reminders
49 downloads
Updated
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ADSHG Newsletter 116 - June 2014
By ADSHG
Addison's Disease Self Help Group newsletter, issue 116, June 2014
Welcome to the summer 2014 newsletter. This autumn marks our 30th anniversary, and we will be duly celebrating with cake and balloons at the 1 November AGM and medical lecture. The ADSHG wears its history with pride, and can boast an impressive growth from humble beginnings, as you can read in the President’s column on page 2. We will be toasting Deana, our founder and President
– and the future success of her little group – on 1 November at the AGM.
Page 1: Front page
Celebrating the big 3-0
Help shape the next 30 years: give us your views
Page 2: From the President
About the money
Page 3: Recent drug news
New generic 100mg hydrocortisone
Promising developments with Chronocort
Pages 4-5: Recent news
Medical jewellery: there is an alternative
Pages 6-7: Around the group
Nursing awareness: good news from Wales
Ambulance update
Pages 8-9: Conference news
Endocrine conference Liverpool 2014
Steroid education: key to success
Pages 10-12: Personal experience
Stabbing the President
Kuwait calling: on the drip
Letter to my grandson
Page 13: Fundraising news
Ian's £undraising update
Pages 13-15: Social reports
Jan's social corner
2014 social meetings
Page 16: Back page
Subscriptions
Reminders
41 downloads
Updated
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Free
ADSHG Newsletter 115 - March 2014
By ADSHG
Addison's Disease Self Help Group newsletter, issue 115, March 2014
Welcome to the spring 2014 newsletter. The ADSHG turns 30 in autumn this year, marking the auspicious season when Deana Kenward, our President, began contacting everyone who had responded to her little “ad” in the Radio Times. This autumn it will also be 10 years since the ADSHG’s application was approved by the Charity Commission and we became a registered charity. We have come a long way in those three decades and have a lot to celebrate.
Page 1: Front page
Happy birthday to us!
VanishPoint syringe on sale now
Page 2: From the President
About the money
Pages 3-6: Recent news
Emergencies r us: more from our 2013 survey
Stabbing practice at work
Pages 7-8: Life skills
A perspective on anxiety
Page 9: Medical research
Pulses - the rhythm of life?
Pages 10-11: Personal experience
Taking on the world: triathlon training for beginners
The healthiest sick guy you know
Page 12: Exercise and Addison's
The doctor's view
Page 13: Fundraising reports
Ian's £undraising update
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
56 downloads
Updated
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ADSHG Newsletter 114 - December 2013
By ADSHG
Addison's Disease Self Help Group newsletter, issue 114, December 2013
Welcome to the winter 2013 newsletter. This issue explores the ways that people with Addison’s around the world have chosen to celebrate life post-diagnosis. Rachel in Eire, Andrew in Spain, an Ian and Sarah in the UK, and Geoff in Australia, describe some of the ways they have marked their diagnosis and recovery, many through sporting or recreational achievements. Jane explains in her page 7 column on coping with stress how she, too, determined to see the positives in her diagnosis and put it to good use in her life.
Page 1: Front page
Welcome to the winter newsletter
New year = renew subscription time
Employers leaflet
Page 2: From the President
About the money
Pages 3-4: Recent news
Ambulance awareness: advances in Ireland
New medical paper on good clinical practice
Pages 5-6: Medical awareness
Nursing awareness raising
Hospital awareness: Arran's first crisis
Page 7: Life skills
Reducing the stress of a long term condition
Pages 8-10: Personal experience
The Great Fjord & Shannon swims
Santiago pilgrim trail
St Crispin's day nightride in verse
Page 11: Famous lives
Geoff Starling - from exhilaration to despair and back again
Page 12: Around the group
Leicester medical seminar
Page 13: Fundraising report
Ian's £undraising update
Pages 14-15: Social report
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
23 downloads
Updated
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ADSHG Newsletter 113 - September 2013
By ADSHG
Addison's Disease Self Help Group newsletter, issue 113, September 2013
Welcome to the autumn 2013 newsletter. This issue features some of the early findings from our online emergency questionnaire. As you will see, we are aiming to share the survey findings with health practitioners and policy makers, in a constructive dialogue to help our members manage their steroid-dependence as well as possible.
Page 1: Front page
Emergencies "r" us
Christmas order form
Online emergency survey
Page 2: From the President
About the money
Pages 3-4: Recent news
All about us: emergency survey findings
Pages 5-7: Medical awareness raising
Running out of steroid medication: the doctor's view
Ambulance awareness update
Recent drug news: Chronocort
Letter writing for nursing awareness
Page 8: Life skills
Coping with the trauma of crisis
Pages 8-9: Personal experience
My hospital crisis
My hospital crisis: the doctor's view
Page 10: Famous lives
Sabino Arano
Pages 11-12: Personal experience
My gap year goes astray
Page 13: Fundraising report
Ian's £undraising report
Pages 14-15: Social report
Jan's social corner
Future social meetings
Page 16: Back page
Reminders
Subscriptions
49 downloads
Updated
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Free
ADSHG Newsletter 112 - June 2013
By ADSHG
Addison's Disease Self Help Group newsletter, issue 112, June 2013
The most important message in this issue is here on the front page: we want everyone to participate in our emergency survey! In a new venture for the group, the questionnaire is a web-based format, using software provided by SurveyMonkey. This has the advantages of being much cheaper than a printed questionnaire, and means we get instant updates on the running totals as more people log in to take part.
Page 1: Front page
Listening to our members: emergency survey
Online emergency survey
Page 2: From the President
About the money
Pages 3-4: Recent news
About the emergency survey
Ambulance registration: why it's important
News from Dublin
Problems with NHS emergency care: is it a crisis?
London ambulance invites us in
Pages 5-6: Medical awareness raising
ADSHG at the Harrogate endocrine conference
Letter writing for nursing awareness
Pages 7-9: 2013 AGM
Chair's remarks
Treasurer's report
Webmaster's report
Members' feedback
Page 9: Home and away
Specialist endocrine care: BMJ publishes our views
Pages 10-12: Personal experience
Jack's comeback
Ambulance registration: a good news story
Page 13: Fundraising report
Ian's £undraising update
Travelling light
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
67 downloads
Updated
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ADSHG Newsletter 111 - March 2013
By ADSHG
Addison's Disease Self Help Group, issue 111, March 2013
Welcome to the spring 2013 newsletter. Our members’ Middle East travel and trekking experiences feature large in this issue. Jo Grey writes about her rugged adventure in the Sahara, when she braved 40º heat, sandstorms, flies and the dreaded ‘Sahara tummy’, to trek 120km across the desert last October. Not for the faint-hearted, you can read the nitty-gritty of her epic stroll on pages 10 - 12. Andrew found himself making less progress on the journey home, when his flight to Kuwait became fog-bound and was stranded at the world’s largest airport – Dammam in Saudi Arabia – as he describes on pages 12 – 13.
Page 1: Front page
The journey home
Notes for nurses: hospital advice
Page 2: From the President
About the money
Pages 3-4: Recent news
Addison's life stories published
Pages 4-5: Recent drug news
Hydrocortisone price stays high
Efcortesol availability
Pharmacy labels
Page 6: ADSHG at work
Nursing awareness letters
Ian's £undraising bit
Pages 7-9: Medical lecture
ADSHG medical lecture 2012
Pages 10-13: Personal experience
Maniacs in the Sahara
Kuwait calling: sleepless in Dammam
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
12 downloads
Updated
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ADSHG Newsletter 110 - December 2012
By ADSHG
Addison's Disease Self Help Group newsletter, issue 110, December 2012
Welcome to the winter issue of the Addison’s newsletter. 2012 was a busy, active year for the group, with plenty happening that we can look back on with satisfaction. On page 2 our President, Deana Kenward, describes her memorable day at Windsor Castle in November, when she was awarded an MBE for her 28 years of dedicated service to the ADSHG. As you will see in the photos, Deana (who ordinarily never smiles for the camera), couldn’t stop smiling all day. Well done, Deana, and richly deserved!
Extra download file included: BMJ - How to avoid precipitating an acute adrenal crisis
Page 1: Front page
We wish you a merry Christmas
Addison crisis: the latest advice
Page 2: From the President
MBE award: my big day out
Pages 3-5: Recent drug news
Rescue of Addison’s disease study
Modified release Plenadren: the latest
Pages 5-6: ADSHG at work
ADSHG at endocrine conferences
Nursing awareness letters
Pages 7-10: 2011 annual report
2011 report and accounts
Pages 10-16: Personal experience
Diamonds are forever: 60 years with Addison’s
Not such a merry Christmas
The doctor’s view
Travelling light
Page 17: Fundraising report
Ian’s fundraising update
Pages 18-19: Social reports
Jan's social corner
Regional meetings
Page 20: Back page
Reminders
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ADSHG Newsletter 109 - September 2012
By ADSHG
Addison's Disease Self Help Group, issue 109, September 2012
Welcome to the autumn 2012 newsletter. This issue features an inspiring interview with the Canadian Olympic gymnast Nathan Gafuik, who represented Canada in the recent London Olympic Games. Now aged 27, Nathan was diagnosed with Addison’s some 12 years ago, aged 15. During the Olympic Games, he met our journalist member Jane, to talk to her about how he manages the combined challenges of his Addison’s and high level gymnastic competitions. You can read about Nathan’s remarkable courage and self-discipline on page 3.
Page 1: Front page
Our Addison's heroes
With this issue: Christmas order form
Page 2: From the President
About the money
Pages 3-4: Personal experience
Olympic gymnast with Addison's
Pages 5-6: Recent news
What's new with flu?
Nursing awareness raising
Members' perspective
Pages 7-8: AGM reports
Remarks from the Chair
Treasurer's report
President's address
Pages 9-10: Personal experience
Kuwait calling: from New York
The nurse's view
Page 11: Recent drug news
Fludrocortisone storage instructions
Page 12: Home and away
Travelling light
Page 13: Fundraising update
Ian's fundraising bit
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
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ADSHG Newsletter 108 - June 2012
By ADSHG
Addison's Disease Self Help Group newsletter, issue 108, June 2012
Welcome to the summer 2012 newsletter.This issue features articles from two doctors, on some important aspects of our medication management. Dr Kristian Lovas of Bergen Medical School Norway, explains the implications of his research team’s recent fi ndings about how grapefruit juice and liquorice alter the influence of our hydrocortisone tablets on page 3. Then on page 11, Dr Rob Andrews of Bristol Medical School responds to the dilemmas posed by Andrew in Kuwait calling, where he describes the combined challenges of extreme heat and stress.
Page 1: Front page
Good stress, bad stress
With this issue
Page 2: From the President
About the money
Pages 3-4: Recent drug and research news
What is it about grapefruit juice and liquorice?
Once a day Plenadren: the latest news
Letter writing for nursing awarenss
Pages 5-9: Medical meetings
British Endocrine Societies conference report
Pages 10-12: Personal experience
Kuwait calling: heat+stress+
Travelling light
Nearly new baby
Page 13: Fundraising update
Ian's fundraising bit
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
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ADSHG Newsletter 107 - March 2012
By ADSHG
Addison's Disease Self Help Group newsletter, issue 107, March 2012
Welcome to the spring 2012 newsletter. We hope that some of you have made new year resolutions to improve your fitness and take up running. This is because the ADSHG has purchased 5 charity places in the 2012 Great South Run, taking place in Portsmouth on 28 October. As Ian explains on page 13, this is a flat 10 mile course that should suit the determined novice. If you are willing to do some fundraising on our behalf – and show the world what people with Addison’s can achieve – we would love to hear from you. On page 12, Professor Simon Pearce tells us how he achieved a similar goal in 2011, when he completed the Great North Run for the first time.
Page 1: Front page
Get your running shoes out
Keeping your membership up to date
Page 2: From the President
Membership donations
Pages 3-4: Recent drug news
Once-a-day Plenadren: latest news
Page 5: Recent news
Research news
About the money
Letter writing for nurses
Pages 6-8: Medical lecture
Adrenal crisis and Addison's
Page 9: Ambulance alerts
Phil's bit
A shot in the night
Members' feedback
Page 10: Medical update
Nursing awareness
Medical awareness: pharmacy labels
Pages 11-12: Personal experience
Travelling light
My big run
Page 13: Fundraising report
Ian's fundraising bit
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
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ADSHG Newsletter 106 - December 2011
By ADSHG
Addison's Disease Self Help Group newsletter, issue 106, December 2011
Welcome to the winter 2011 newsletter. Recent drug developments make our top stories once again, with announcements that the UK manufacturer of cortisone acetate has pulled out, while the new modified release hydrocortisone product, Plenadren, has gained marketing approval from the European Marketing Authority. On page 3, our medical advisers offer suggestions on what to do if you have been affected by the sudden loss of cortisone acetate.
Page 1: Front page
...and a healthy new year
MP's enquiry into drug shortages
Page 2: From the President
Donations
Pages 3-5: Recent drug news
Cortisone acetate withdrawn from UK
Plenadren gets EMA marketing approval
Irish drug news
Page 5: Recent news
Welcome to our new Treasurer
Pages 6-8: Annual report
Trustees report to Charity Commission
Financial review
Page 9: Fundraising update
Thank yous
Pages 10-11: Around the group
Newcastle seminar
Ambulance alert
Pages 11-14: Personal experience
Thigh high club
My special day
Time for tea with nurses
A heart beat from Paris
Kuwait calling
Travelling light
Pages 15-17: Around the group
Have yourself a merry little Christmas
The web report
Fundraising update
Alfred Potter Memorial Research Award
Pages 18-19: Social update
Jan's social corner
Regional meetings
Page 20: Back page
Reminders
Subscriptions
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