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Newsletters (members only)

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Member-only newsletters published quarterly with features and articles about living with Addison's and group news.

54 files

  1. Free

    ADSHG Newsletter 129 - September 2017

    Addison’s Disease Self Help Group newsletter, issue 129, September 2017
     
    Welcome to the autumn 2017 edition of the ADSHG newsletter. This issue announces the arrival of the Addison’s cookery book, a enticing collection of healthy recipes compiled by Sue Chambers, with the story of how it came together. Our central feature reflects on June’s successful and enjoyable annual general meeting and medical lecture. Additionally, we report on the latest drug news, ambulance awareness and the ADSHG medical research grant, as well as the launch of the upgraded website.
     
    This issue of the newsletter also contains the 2017 Christmas catalogue order form insert (included as an extra download file here), highlighting items – including those all-important stocking fillers – available to purchase from our online shop.

    Page 1: Hot news from the kitchen
    Christmas catalogue 2017
    Don’t forget your flu vaccine
     
    Page 2: From the President
    About the money
     
    Page 3: Sue’s cookbook
     
    Page 4: Brexit update
    Customs uncertainty: possible drug supply disruptions
     
    Page 5-6: ADSHG and UK news
    Repeat prescription length and reserve supply
    Winter flu vaccine reminder
    Medical research grant report: uncovering biomarkers for steroid-dependent patients
    Fludrocortisone price hike causes hardship for dog owners
    Natural killer cells and Addison’s
     
    Page 7: Around the group
    Talking to Sheffield medical students
    Injectable hydrocortisone in Ireland
    Price watch
     
    Pages 8-10: AGM report
    Personal impressions from a volunteer
    Finance report
    Social media report
    Minutes of the 2017 AGM 
     
    Page 11: Ambulance awareness
    Ambo update: get yourself registered!
    East of England ambulance to the rescue
    Spotlight on Living Well
     
    Page 12: Personal experience
    Molly’s mind -  blogging my way through life
     
    Page 13: Fundraising update
    Donations report
     
    Page 14-15: Social update
    Gill’s social corner
    2017/8 social and medical meetings
     
    Page 16: The back page
    Reminders
    Conference dates
    2018 subscription rates
    ADSHG trustees and officers
     

    433 downloads

    Updated

  2. Free

    ADSHG fundraising special - December 2015

    This special insert to the ADSHG December 2015 newsletter highlights the wonderful fundraising achievements of our members and supporters throughout the year.
     
    It includes:

    ADSHG at the Great Runs: Great North Run and Great South Run Dragonera open sea swim Tameside's got talent ... in aid of ADSHG Ian's fundraising update

    29 downloads

    Updated

  3. Free

    ADSHG Newsletter 01 web - February 2003

    Addison's Disease Self Help Group web newsletter, issue 1, February 2003
     
    Welcome to the first edition of the ADSHG web newsletter. It is intended to complement the bi-monthly newsletter and will be printed twice a year as part of your membership subscription, with the next edition scheduled for October 2003.

    Page 1: Front page
    Group update
     
    Page 2: Group news
    The editorial team
    Website statistics
     
    Pages 3-4: Personal story
    Julie's story
     
    Page 5: Medical lecture
    The patient - consultant relationship
     
    Page 6: Around the group
    Penpal scheme
     
    Page 7: Media update
    Letter to The Guardian
     
    Page 8: Addison's information
    What to do in an emergency
    ADSHG email group

    2 downloads

    Updated

  4. Free

    ADSHG Newsletter 02 web - October 2003

    Addison's Disease Self Help Group web newsletter, issue 2, October 2003
     
    Welcome to the second edition of the ADSHG web newsletter! In response to the continuing high level of interest in the emergency injection procedure, we hope that the step-by-step guide to administering the injection will be a helpful reference to anyone unsure of what to do. Research Nurse Suzanne Curran’s demonstration at the AGM and annual lecture on 10th May was a great success and this kind of supervised session is a real confidence booster, proving that we can all do it if we know how.
     

    Page 1: Front page
    Group news
     
    Pages 2-3: Medical information
    How to give an emergency injection of Efcortesol
     
    Pages 4-7: Personal experience
    Pam's story
    The doctor's view
    The ambulance service view
    Alan's story
     
    Page 8: Media
    Letter to The Lancet

    4 downloads

    Updated

  5. Free

    ADSHG Newsletter 03 web - April 2004

    Addison's Disease Self Help Group web newsletter, issue 3, April 2004
     
    It is hard to believe that the first webnewsletter was launched a full year ago. Yet much has happened within the group in the last twelve months. We have made significant progress towards achieving charitable status. Many of us have benefited from the “refresher” emergency injection sessions and, as part of our continuing emphasis on emergency management procedures, there is a step-by-step guide to administering an injection of Solu-Cortef, following on from the Efcortesol instructions (web newsletter 2), on pages 4 and 5.
     
    Page 1: Front page
    Group update
     
    Page 2: Group news
    The editorial team
    Website statistics
     
    Pages 3-4: Personal story
    Julie's story
     
    Page 5: Medical lecture
    The patient - consultant relationship
     
    Page 6: Around the group
    Penpal scheme
     
    Page 7: Media update
    Letter to The Guardian
     
    Page 8: Addison's information
    What to do in an emergency
    ADSHG email group

    9 downloads

    Updated

  6. Free

    ADSHG Newsletter 04 web - October 2004

    Addison's Disease Self Help Group web newsletter, issue 4, October 2004
     
    As the group moves towards achieving charitable status, we are also establishing and developing some very positive links with medical practitioners and other members of healthcare services.
     

    Page 1: Front page
    Group update
     
    Page 2: Medical update
    London ambulance conference presentation
     
    Pages 3-5: Personal experience
    Jackie's story
    The doctor's view
     
    Pages 5-8: Medical lecture
    Managing your steroid medication

    8 downloads

    Updated

  7. Free

    ADSHG Newsletter 081 - September 2005

    Addison's Disease Self Help Group newsletter, issue 81, September 2005
     
    Welcome to the 81st issue of the ADSHG newsletter. This is the first of our new-look newsletters and combines the regular print newsletter with our webnewsletter. It will be published four times a year, in September, December, March and June.
     

    Page 1: Front page
    Ensure you don't run out of essential steroid medication
    ADSHG emergency card
     
    Page 2: From the President
    Making friends across the ADSHG
    Regional reports
     
    Page 3: Recent news
    Fludrocortisone shortage continues
    Genetic research into the hereditory basis of Addison’s
     
    Page 4: Executive at work
    Our letter to Primary Care Trusts about medication needs
     
    Pages 5-8: Medical feature
    Professor John Wass’s 2005 lecture to the ADSHG
     
    Page 9: Around the group
    How the fludrocortisone shortage has affected us
    Member’s news
     
    Page 10: Personal experience
    What it means to be an ‘Expert Patient’
     
    Page 11: Notices
    Medical seminar and regional meetings for 2005
    Medical lecture 2006
    2006 subscription rates
    BMJ reviews our website
     
    Page 12: Back page
    Reminders

    4 downloads

    Updated

  8. Free

    ADSHG Newsletter 082 - December 2005

    Addison's Disease Self Help Group newsletter, issue 82, December 2005
     
    Welcome to our final newsletter for 2005. This has been a year of exciting developments for the group, which has seen several important projects come to fruition - most of which have been in the making for more than 12 months.
     

    Page 1: Front page
    Promoting better medical understanding of Addison's
    Surgical guidelines
     
    Page 2: From the President
    Christmas wishes to all
    Members’ fundraising
     
    Page 3: Recent news
    Guilford medical seminar
    US NORD gives recognition
     
    Page 4: About the executive
    Message from a member
    Trustees and their responsibilities
     
    Pages 5-7 Medical feature
    Addenbrookes seminar: Why are Addison’s patients difficult?
     
    Pages 8-9: Personal experience
    Hospital medication errors
    The doctor's view
     
    Page 10: Around the group
    Our Christmas card artists
    Research snippets
     
    Page 11: Notices
    Medical lecture 2006
    Call for trustees
    Regional meetings
    2006 subscription rates
     
    Page 12: Back page
    Reminders

    2 downloads

    Updated

  9. Free

    ADSHG Newsletter 083 - March 2006

    Addison's Disease Self Help Group newsletter, issue 83, March 2006
     
    Welcome to the spring 2006 newsletter for the ADSHG. The year got off to a promising start for everyone with Addison’s, when we heard that our submission to the English ambulance regulatory body had been accepted. You may find it surprising, but at present, ambulance crews in many parts of the country do not carry hydrocortisone and those who do, are not permitted to administer it for the prevention of adrenal crisis. This is a reflection of the rarity of our condition - in the past those drawing up the regulations for ambulance crews and paramedics had overlooked our needs. However, the situation will gradually improve from April 2006 onwards, as you can read on page 4 of this newsletter.
     

    Page 1: Front page
    Promise of better emergency paramedical treatment in future
    ADSHG poster
     
    Page 2: From the President
    Members' fundraising
     
    Pages 3-9: Medical update
    The emergency card works
    Emergency ambulance injections
    Addison's with a bump
    Thigh high club
    Profile: Dr Wiebke Arlt
     
    Pages 10-14: AGM
    AGM agenda
    Annual report 2005
    Accounts 2005
     
    Page 15: Notices
    Regional meetings
    Medical meetings
     
    Page 16: Back page
    Reminders

    5 downloads

    Updated

  10. Free

    ADSHG Newsletter 084 - June 2006

    Addison's Disease Self Help Group newsletter, issue 84, June 2006
     
    Welcome to the summer newsletter for the ADSHG. Our exciting summer news is the launch of the Addison’s rose, Our Beth, at Chelsea on 22 May. This new rose from Peter Beales Roses is available thanks to a bequest from the Loasby family. Peter Beales Roses are making 10% of all sales proceeds available to the ADSHG in memory of their staff member, Beth Loasby, who had Addison’s and diabetes. We hope the gardeners among you will find a corner somewhere for this lovely rose, which will be available mail order from autumn 2006, as you can read on page 3.
     

    Page 1: Front page
    The Addison's rose: a wonderful gift
    Information leaflet
     
    Page 2: From the President
    Members' fundraising
     
    Page 3: Recent news
    The Addison's rose: our Beth
    The surgical guidelines work
    Genetic research: give blood
     
    Page 4: Executive at work
    ADSHG at Glasgow medical conference
    London medical lecture: the sports report
     
    Pages 5-7: Medical update
    Profile: Dr Simon Pearce
    Will my children inherit my Addison's?
    Everything you wanted to know about Addison's
     
    Pages 8-10: Personal experience
    Running with Addison's
    Ironman competition in Canada
    The doctor's view
     
    Page 10: Around the group
    Meeting reports
    Injection kit cases
     
    Page 11: Notices
    Regional meetings
    Medical seminars
     
    Page 12: Back page
    Reminders

    4 downloads

    Updated

  11. Free

    ADSHG Newsletter 085 - September 2006

    Addison's Disease Self Help Group newsletter, issue 85, September 2006
     
    Welcome to the autumn newsletter for the ADSHG. We hope you all enjoyed a relaxing summer holiday. Some of our members are great travellers, as you will see from the travel insurance tips on page 10 of this issue. You were no doubt aware of the heightened security and more stringent bag searches at UK airports this summer. It is still important to carry your medication and injection kit with you on the plane rather than check them as hold baggage (as specified in the Managing Addison’s leaflet you received with your June newsletter).
     

    Page 1: Front page
    Travelling safely with your essential steroid medication
    Emergency mini-survey
    Christmas order form
     
    Page 2: From the President
    Members' fundraising
    Members' news
     
    Page 3: Recent news
    ADSHG at UK medical conferences
    Manchester medical seminar
    Genetic research: how to give blood
     
    Page 4: Executive at work
    AGM minutes
    Chair's remarks
     
    Pages 5-8: Medical lecture
    Sex and Addison's: how adrenal insufficiency affects men and women differently
     
    Page 9: Personal experience
    Our youngest member
    Our oldest member
     
    Page 10: Around the group
    Travel insurance tips
    Aunty Teresa's soda bread
    Recent medical research
     
    Page 11: Notices
    Meetings update
    Emergency card extra copies
     
    Page 12: Back page
    Reminders

    14 downloads

    Updated

  12. Free

    ADSHG Newsletter 086 - December 2006

    Addison's Disease Self Help Group newsletter, issue 86, December 2006
     
    Welcome to the December newsletter. Like us, you probably can't believe how quickly the year has gone. Nearly Christmas already! The last three months have been a busy time for the trustees and group volunteers. Deana Kenward and Alan Lack have been industrious in printing, packaging and posting all the Christmas card orders. Deana has been incredibly efficient, sometimes getting orders out within 48 hours of receiving them via the website.
     

    Page 1: Front page
    Wishing you the happiest of Christmases
    2007 membership options
     
    Page 2: From the President
    Members' fundraising
    Members' news
     
    Page 3: Recent news
    Birmingham medical seminar
    Website online registration and membership renewal
    ADSHG e-Forum
     
    Page 4: Executive at work
    Day curves - are they worth it?
    ADSHG at medical conferences
     
    Pages 5-8: Medical lecture
    The ABCs of Addison's
     
    Page 9: Personal experience
    A cycling tour de force
    Bad drug experience
    Extreme sports
     
    Page 10: Around the group
    Deana's apple pie
    Crossword
     
    Page 11: Notices
    Subscriptions
    Give blood: medical research
     
    Page 12: Back page
    Reminders

    2 downloads

    Updated

  13. Free

    ADSHG Newsletter 087 - March 2007

    Addison's Disease Self Help Group newsletter, issue 87, March 2007
     
    Welcome to the spring 2007 edition of the ADSHG newsletter. Spring is the time when the trustees are looking forward – both to the start of summertime and to the events of the year ahead – and back at our activities over the previous 12 months. This issue contains a four page supplement with the group’s Annual Report to the Charity Commission, outlining our activities in 2006. We hope you agree that we had some pleasing achievements in 2006, notably in raising medical awareness of our needs.
     

    Page 1: Front page
    Greater medical interest in Addison's disease
    Standing orders
    Annual report
     
    Page 2: From the President
    Members’ fundraising
    Members’ news
    Profile: Professor John Monson
     
    Page 3: Recent news
    One-dose hydrocortisone
    Hydrocortisone supply problems
    Genetic origins of Addison’s: update
     
    Pages 4-5: Medical feature
    Professor John Wass’ address to the 2006 endocrinology summer school
     
    Page 6: Executive at work
    Insurance and placebo trials
    Emergency survey update
    2007 AGM agenda and notice of meeting
     
    Pages 7-10: 2006 Annual Report
    A four page supplement
     
    Pages 11-13: Personal experience
    Return to work: occupational health and disability discrimination
     
    Page 14: Around the group
    Healthy banana cake
    The crossword
    E-forum update
     
    Page 15: Notices
    2007 AGM and medical lecture
    2007 subscription rates
    Genetic research: how to give blood
    Autumn medical seminar
     
    Page 16: Back page
    Reminders

    5 downloads

    Updated

  14. Free

    ADSHG Newsletter 088 - June 2007

    Addison's Disease Self Help Group newsletter, issue 88, June 2007
     
    Welcome to the summer 2007 edition of the ADSHG newsletter. We have prepared this issue in anticipation of another long, hot summer such as we experienced in 2006.
     

    Page 1: Front page
    Have a good holiday - whatever the weather
    PC gremlins
    Portuguese translation of emergency card
     
    Page 2: From the President
    Members' fundraising
    Members' news
    A sky high reward
     
    Page 3: Recent news
    One-dose hydrocortisone
    Euradrenal research project proposed
    Research volunteers wanted, Cambridge
     
    Page 4: Executive at work
    Repeat prescriptions
    ADSHG represented @ Birmingham
    A day at the seaside
     
    Pages 5-6: Medical feature
    Preventing and treating adrenal emergencies
     
    Page 7: Personal experience
    IM injection: is there a better way?
    Heat exhaustion
     
    Page 8: The doctor's view
    Managing hot weather
     

    Page 9: Personal experience
    Hot weather tips
    Rural ramblings
     
    Page 10: Around the group
    Spicy kedgeree
    The crossword
     
    Page 11: Notices
    Social meetings update
     
    Page 12: Back page
    Reminders

    8 downloads

    Updated

  15. Free

    ADSHG Newsletter 089 - September 2007

    Addison's Disease Self Help Group newsletter, issue 89, September 2007
     
    Welcome to the autumn 2007 newsletter. This issue is packed with news about medication management that we hope you find both interesting and relevant.
     

    Page 1: Front page
    Keep on top of your tablets
    GP leaflet
     
    Page 2: From the President
    Members' fundraising
    Members' news
    Hydrocortisone product trials
     
    Page 3: Recent news
    Repeat prescriptions: letter to the British Medical Journal
    Langbaurgh PCT: Good prescribing practice
     
    Page 4: Executive at work
    AGM minutes and Chair's remarks
     
    Pages 5-8: Medical feature
    Trends in the management of Addison's disease: medical lecture
    Extra material: Colour lecture presentation slide set extra (PDF in member-only area)
     
    Page 9: Personal experience
    The emergency translation works
    A cutting experience
     
    Page 10: Around the group
    Profile: Guildford speakers
    Potato rosti
    The crossword
    Rural ramblings
     
    Page 11: Notices
    Social meetings update
     
    Page 12: Back page
    Reminders

    5 downloads

    Updated

  16. Free

    ADSHG Newsletter 090 - December 2007

    Addison's Disease Self Help Group newsletter, issue 90, December 2007
     
    Welcome to the December 2007 newsletter. Christmas can be a time of high expectations in many households – and possibly some added tensions. So in this issue, our page 5 feature considers the topic of stress: how the body and brain process stress and whether stressful events need extra medication (or not). We also provide some light-hearted tips for how to survive Christmas and, in the page 10 recipe, a deliciously indulgent alternative to the traditional Christmas pudding.
     

    Page 1: Front page
    We wish you a merry Christmas
    The little red card
    Fludrocortisone update
     
    Page 2: From the President
    Members' fundraising
     
    Pages 3-4: Recent news
    Twice-daily fludrocortisone
    Threat to DHEA supplies
    Infusion pump hydrocortisone
    Ambulance update
     
    Pages 5-6: Medical update
    What is stress?
    How to handle stress
     
    Pages 6-9: Personal experience
    Have a very restful little Christmas
    Thigh high club: Christmas Eve at A&E
    A sculptor's tale
    Famous lives: Eugene Shoemaker
    Members' feedback
     
    Page 10: Around the group
    Crossword
    Cake recipe
     
    Page 11: Social update
    Regional meetings
     
    Page 12: Back page
    Reminders

    40 downloads

    Updated

  17. Free

    ADSHG Newsletter 091 - March 2008

    Addison's Disease Self Help Group newsletter, issue 91, March 2008
     
    Recent months have been eventful ones for the ADSHG, so that this issue of the newsletter is more topical than usual. We found ourselves in discussions with a major drug company, Bristol-Myers Squibb, about the revised storage instructions for their fl udrocortisone acetate product, Florinef, and the lack of clarity regarding how long the tablets are viable out of the fridge. On page 6, the acting medical director of Bristol-Myers Squibb offers an explanation of the regulatory requirements behind the current situation. On page 7, Kerry Wheeler, the editor of the Australian Addison’s newsletter, describes the Australian experience with the new, white Florinef.
     

    Page 1: Front page
    Drug supply issues: Florinef and hydrocortisone
     
    Page 2: From the President
    Members' fundraising
     
    Pages 3-4: Recent news
    German translation works
    Are you having a problem getting hydrocortisone?
    Corlan shortage
    ADSHG at endocrine conference
     
    Page 4: Media
    Addison's in the news
     
    Pages 5-6: Medical update
    Florinef goes white in the cold
     
    Pages 7-9: Personal experience
    News from down under
    A soldier's tale
    Famous lives: JFK
     
    Page 10: Around the group
    Profile: Professor Simon Pearce
    AGM notice
     
    Page 11: Social update
    Regional meetings
     
    Page 12: Back page
    Reminders

    5 downloads

    Updated

  18. Free

    ADSHG Newsletter 092 - June 2008

    Addison's Disease Self Help Group newsletter, issue 92, June 2008
     
    Welcome to the June issue. Drug issues are in the news again this summer with both good and bad news. The good news, on page 4, is that there are promising developments with the two new modified release hydrocortisone products now going through clinical trials. The bad news is that hydrocortisone and fludrocortisone supply problems have again hit parts of the UK. Please check the emergency supply procedures on the back page of the newsletter.

    Page 1: Front page
    Good news and bad news
    Florinef and hydrocortisone shortages
     
    Page 2: From the President
    Members' fundraising
     
    Pages 3-4: Recent news
    Repeat prescribing for essential steroid medication
    BES endocrine conference
    Modified release hydrocortisone: good news
     
    Pages 5-8: Medical update
    Adrenal emergency regular event for Addison's patients
    Employment and Addison's
    All about food
    Claire's weight loss story
     
    Page 9: Personal experience
    A guider's tale
    Famous lives: Helen Reddy
     
    Page 10: Around the group
    Diary of a persistent patient
    Crossword
     
    Page 11: Social update
    Regional meetings
     
    Page 12: Back page
    Reminders

    6 downloads

    Updated

  19. Free

    ADSHG Newsletter 093 - September 2008

    Addison's Disease Self Help Group newsletter, issue 93, September 2008
     
    It was the Irish dramatist Brendan Behan who said, there is no such thing as bad publicity except your own obituary. However, that was in a gentler, more deferential era. In this issue, two of our members – Tracy and Jackie – tell us about their experiences with the media and how their diagnosis stories were reported. As you will see on page 3, Tracy was delighted to fi nd her experiences accurately and carefully portrayed, while Jackie was dismayed to fi nd the opposite. On page 4 you can read the guidelines the ADSHG trustees have recently developed for working with the media in future, to try and prevent misreporting of Addison’s disease and the kind of distress Jackie was put through by misrepresentation of her life.
     
    Page 1: Front page
    Giving people with Addison's a voice
    Russian translation now available
    Oval hydrocortisone is back
     
    Page 2: From the President
    Members' fundraising
    Obituary: Alan Lack
     
    Pages 3-4: Media
    Media misinformation: the saga of Women's Own
    Working with the media
     
    Pages 4-5: Recent news
    The puncture sisters
    Meeting reports
     
    Pages 5-6: AGM
    AGM report
    Chair's remarks
    Minutes
     
    Page 7: Medical update
    ADSHG submission to the Darzi report
     
    Page 8: Home and away
    News from down under
    Thigh high club
     
    Page 9: Personal experience
    Remembering Mabel
    On watch with Addison's
     
    Page 10: Around the group
    Name that ailment
    Members' news
     
    Page 11: Social update
    Regional meetings
     
    Page 12: Back page
    Reminders

    0 downloads

    Updated

  20. Free

    ADSHG Newsletter 094 - December 2008

    Addison's Disease Self Help Group newsletter, issue 94, December 2008
     
    When the US sub-prime real estate market collapsed a year ago, no one anticipated that it would unravel to cause a global fi nancial crisis, the near-collapse of the international banking system and a protracted worldwide recession. Despite the economic uncertainty ahead, we hope that everyone can enjoy their Christmas and New Year celebrations.
     

    Page 1: Front page
    Happy Christmas everyone
    2009 subscriptions now due
     
    Page 2: From the President
    Members' fundraising
    28-day prescriptions success story
     
    Pages 3-5: Medical news
    Influenza vaccine
    Generic Efcortesol update
    Modified hydrocortisone release: study update
    ADSHG at Clinical Update
    ADSHG at nurses conference
    Newcastle medical seminar
    Life in the slow lane
     
    Pages 6-8: Media
    Medical misinformation: Women's Own and PCC
    PCC decision
     
    Page 9: Famous lives
    Andrew Dasburg
     
    Pages 10-11: Around the group
    Seeing in the new year
    Regional meetings
     
    Page 12: Back page
    Reminders

    4 downloads

    Updated

  21. Free

    ADSHG Newsletter 095 - March 2009

    Addison's Disease Self Help Group, issue 95, March 2009
     
    The ADSHG turns 25 this year, making this our silver anniversary. On 21 July 1984, Deana Kenward started the group - at her kitchen table - with just a handful of members. She blames writer and actress Katie Boyle, then the agony aunt at the Radio Times, for everything. Deana had written to the Radio Times to ask if they knew of a support group for people with Addison’s. Katie Boyle wrote back to say no, and why didn’t she start one? So she did.
     

    Page 1: Front page
    Happy birthday to us
    Annual report
     
    Page 2: From the President
    Annette Louise Seal Memorial Research Award
    Members' fundraising
     
    Pages 3-5: Medical news
    Pandemic flu planning
    Government's position on 28-day prescribing
    Duo-Cort online survey
     
    Page 5: Group news
    Executive at work
     
    Pages 6-9: Medical lecture
    The causes of Addison's
     
    Pages 10-11: Home and away
    Keeping cool about fludrocortisone
    Genetic research: give blood
    Rescue of Addison's Disease Study
    Life in the slow lane
     
    Page 12: Personal experience
    Namaste: trekking in the Himalayas
     
    Page 13: Famous lives
    JFK
     
    Page 14: Group news
    Medical lecturer profile
    Social reports
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    12 downloads

    Updated

  22. Free

    ADSHG Newsletter 096 - June 2009

    Addison's Disease Self Help Group, issue 96, June 2009
     
    Welcome to the summer 2009 newsletter. We make no apologies for the sober tone of this issue, which is all about emergencies. Two of the four horsemen of the apocalypse – pestilence and death – feature on these pages. Pestilence, in the guise of Mexican flu, appears on page 3, where we have some important news about the anticipated flu outbreaks in autumn 2009 and how to make sure we are all as well prepared as possible. Death, very sadly, appears on page 11 where we publish the autopsy report on a lady with a pituitary condition (not an ADSHG member) who died in her sleep, when she could not absorb oral steroids during a gastric infection. If she had been given injected steroids and prompt medical treatment, it is likely that this tragedy could have been prevented.

    Page 1: Front page
    All about emergencies
    With this issue
    Efcortesol shortage
     
    Page 2: From the President
    Members' fundraising
     
    Pages 3-5: Medical news
    A message from John Wass on flu preparedness
    28-day prescribing in the news
    Addison's in the medical press
     
    Page 6: AGM
    Social report
     
    Pages 7-8: ADSHG poster
    All about emergencies
     
    Pages 9-10: Personal experience
    My life turned upside down
     
    Page 11: Recent news
    A preventable tragedy
     
    Pages 12-13: Home and away
    News from Denmark
    Casa Luz calling
    Life in the slow lane
     
    Pages 14-15: Social update
    Social meeting reports
    Regional meetings
     
    Page 16: Back page
    Reminders

    8 downloads

    Updated

  23. Free

    ADSHG Newsletter 097 - September 2009

    Addison's Disease Self Help Group, issue 97, September 2009
     
    Welcome to the autumn 2009 newsletter. It has been a busy summer for the trustees, as you can read in this issue. We have worked with the Society for Endocrinology to help their Clinical Committee prepare the information about H1N1 flu preparedness that is enclosed with this newsletter. We have written to the British Medical Journal about Addison’s awareness and the important role played by GPs in the early diagnosis of our condition. Our letter is reprinted on page 5. And we have been preparing our new range of Addison’s awareness gifts and stationery, along with enhancements to our Just Giving donations and fundraising pages, as you can read on page 8.

    Page 1: Front page
    Working with our medics
    Flu update
    Christmas cards
     
    Page 2: From the President
    Group news update
     
    Page 3-5: Recent news
    Patients taking hydrocortisone need longer prescriptions in light of flu pandemic
    New fludrocortisone - out of the fridge
    'I want to see the consultant'
    Prescription charges
    Addison's in the medical press
     
    Page 6-7: AGM
    Minutes
    Chair's remarks
    Treasurer's report
     
    Page 8: Group news
    Les says: fundraising update
    The shop
    Life in the slow lane
     
    Pages 9-12: Medical lecture
    Replacement therapy in Addison's disease
     
    Pages 13-14: Medical update
    Spotlight on Manchester: NWAS and hospital experience
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    7 downloads

    Updated

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    ADSHG Newsletter 098 - December 2009

    Addison's Disease Self Help Group newsletter, issue 98, December 2009
     
    Welcome to the December 2009 newsletter, the final newsletter in our 25th anniversary year. To mark the passing of this special year, we are giving everyone a Silver Jubilee gift pack, enclosed with this newsletter. Our 25th anniversary celebrations, held in Guildford on 31 October, feature on pages 9 and 10, with Chris Scott and Daniel Kenward’s recollections of the early days of the group.

    Page 1: Front page
    Happy Christmas everyone
    Silver Jubilee gift pack
     
    Page 2: From the President
    Group news
     
    Pages 3-5: Medical updates
    What's new with flu?
    Modified release hydrocortisone: promising developments
    Nordic conference news
     
    Pages 6-7: Group news
    Sister awarded for saving mother
    'I want to see a consultant'
    Travelling light
     
    Pages 8-9: 25th anniversary meeting
    Speeches from the meeting
     
    Page 10: Medical report
    Oral contraceptive pills: a word of caution
    Renin tests - what do they mean?
     
    Page 11-12: Personal experience
    Helen Reddy: the woman I am now
     
    Page 12: Famous lives
    Eunice Kennedy Shriver
     
    Pages 13-14: Around the group
    Les says: fundraising update
    Social meeting reports
    Members' donations
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    12 downloads

    Updated

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    ADSHG Newsletter 099 - March 2010

    Addison's Disease Self Help Group newsletter, issue 99, March 2010
     
    Welcome to the March 2010 newsletter. The UK had an unusually cold, hard winter; when the spring weather fi nally arrives it will be most welcome. So spare a thought for our competitive runners and cyclist, who have had to continue their training regimes right through the sleet, ice and snow. The London marathon is on 25 April and the ADSHG is proud to have two members with Addison’s who will be taking part in it: Debra Chase and Greg Davis. In addition, group member Ian Carswell will be taking on one of the UK’s toughest competitive cycling routes when he takes part in the Fred Whitton Challenge in the Lake District in May. You can find out more on page 14.
     

    Page 1: Front page
    Supporting our athletes
    GP information packs
    Efcortesol shortage
     
    Page 2: From our President
    Members' donations
    Obituary: Alfred Potter
     
    Page 3: Famous lives
    Jane Austen had TB not Addison's
     
    Pages 4-5: Recent news
    What's new with flu?
    ADSHG trustee meeting
    French fludrocortisone
     
    Page 6: Medical meetings
    ADSHG offer nursing awards
     
    Page 7: Recent research
    Recent research on adrenal emergencies
     
    Page 8: Famous lives
    Ella Holleufer Hedtoft
     
    Pages 9-13: Personal experience
    Travelling light
    An unhappy hospital stay
    Machu Picchu
    Up and running
    Exercise and Addison's: the doctor's view
     
    Page 14: Around the group
    Les says: fundraising update
    Social meeting reports
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    17 downloads

    Updated

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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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