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Member-only newsletters published quarterly with features and articles about living with Addison's and group news.
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ADSHG Newsletter 105 - September 2011
By ADSHG
Addison's Disease Self Help Group newsletter, issue 105, September 2011
Welcome to the autumn 2011 newsletter. Drug news features prominently in this issue. On pages 3 – 4, Jane investigates the views of a number of leading European adrenal specialists on Plenadren, the new modified-release hydrocortisone tablet. We hope you will agree, their responses make fascinating reading.
Page 1: Front page
Keep on running
With this issue...
Page 2: From the President
Members' donations
Pages 3-6: Recent drug news
Modified release hydrocortisone: a mixed response from experts
Irish medication news
Page 6: Recent news
New information from Society for Endocrinology
GP online investigates prescriptions lengths
Pages 7-9: AGM
Chair's remarks
Finance report
Web report
Page 10: Personal experience
A marathon triumph in Edinburgh
Skiing in Norway
Pages 11-14: Around the group
Ambulance alerts
Eyesight problems?
Travelling light
Jan's social corner
The web report
Ian's fundraising update
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
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ADSHG Newsletter 104 - June 2011
By ADSHG
Addison's Disease Self Help Group newsletter, issue 104, June 2011
Welcome to the summer 2011 newsletter, which is packed full of news. The new dual release hydrocortisone being developed by DuoCort is now becoming available in the UK - at a price - as Jane Hodgkin explains on page 3. Medication costs and access to our essential steroid medication also feature on page 4, where we reprint the ADSHG’s recent letter to the British Medical Journal about prescription costs. The ADSHG’s activities in medical awareness-raising are reported on pages 5 and 6, where Alison Mainwaring describes how she represented us at a nursing forum and we report on the annual British Endocrine Societies’ conference in Birmingham.
Page 1: Front page
Being prepared
Medical recognition of our website
With this issue
Page 2: From the President
New bones for old
Pages 3-4: Recent drug news
Dual release hydrocortisone available in UK
28 day prescribing in the news
The pot of gold at the end of the rainbow?
Pages 5-7: Medical update
Royal College of Nursing invites our input
British Endocrine Societies conference
Addison's highlighted at European endocrine conference
Page 8: Around the group
Immunodeficiency study at Oxford
Genetic research: give blood
Pregnancy study
Pages 9-12: Personal experiences
This student life
Blues and twos from the dentist
Ambulance alerts
Travelling light
Pages 13-14: Group news
Jan's social corner
Ian's fundraising bit
Members' donations
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
35 downloads
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ADSHG Newsletter 103 - March 2011
By ADSHG
Addison's Disease Self Help Group newsletter, issue 103, March 2011
Welcome to the spring 2011 newsletter. Those among you whose New Year resolution was to improve your fitness or join a gym may take inspiration from James Claxton and Richard Keyzor’s experiences, reported on pages 4 and 5. Richard was never runner before he decided to take on a year-long quest of competitive sporting events, to raise funds for his son Oli’s cystic fibrosis charity. You can read about his triumphs and his setbacks in One Year, One Aim. James confesses that he was under-prepared for the gruelling cycling course he set out on in October – one hundred miles a day for ten days – which took him from Land’s End to John O’Groats. Outstandingly, he made it, although one of his companions did not.
Page 1: Front page
Never give up
What is Addison's
GP awareness
Page 2: From the President
Members' donations
Page 3: Recent drug news
Hydrocortisone prices stay high
Addison's Ireland
Pages 4-5: Personal experience
One year, one aim
100 miles a day
Pages 6-8: Medical news
European Addison's conference
Pregnancy survey
Page 9: Personal experience
Travelling light
Pages 10-12: Real life emergencies
A dangerous delay at the hospital
Ambulance alerts
Pages 13-14: Personal experience
Body ready for the scrapheap, brain ready for Mastermind
Page 14: Around the group
Les says: fundraising update
Alfred Potter Memorial Research Award
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
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ADSHG Newsletter 102 - December 2010
By ADSHG
Addison's Disease Self Help Group newsletter, issue 102, December 2010
Welcome to the winter 2010 newsletter. We have some encouraging news in this issue, as medical professional colleges and ambulance trusts show their recognition of our emergency treatment needs and identify various ways in which they can support us. As we report, below, we are re-issuing our laminated emergency card with ‘badging’ from the Colleges of Emergency Medicine and Paramedics. Then, on page 6 you can read about the Welsh Ambulance approach to adrenal crisis and the steps they are taking to ensure all their crews are acquainted with our rare condition.
Page 1: Front page
And a healthy new year
New red card
GP care leaflet
Page 2: From the President
Members' donations
Pages 3-4: Recent drug news
New DuoCort drug moves closer to production
Adixon - a success story
Repeat prescriptions
UK hydrocortisone price stays high
Pages 5-6: Medical news
Impact at the endocrine conferences
Responding to adrenal crisis: Welsh ambulance perspective
Pages 7-12: Personal experience
Delayed treatment at A&E
Phil's bit: ambulance alert
A Christmas story: my journey into Addison's
Thigh high club: a Moroccan study
Travelling light
Pages 13-14: Group news
Jan's social corner
Les says: fundraising update
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
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ADSHG Newsletter 101 - September 2010
By ADSHG
Addison's Disease Self Help Group newsletter, issue 101, September 2010
Welcome to the autumn 2010 newsletter. We have some good news to announce, highlighted here on page 1, in the support we are receiving from the College of Emergency Medicine. The college has generously offered to endorse our emergency treatment instructions, by allowing its official logo to be printed on our red emergency card. This badging should help to ensure that our needs are given immediate recognition by Accident & Emergency staff in future.
Page 1: Front page
Waving the red card
Endorsement from College of Emergency Medicine
Page 2: From the President
Members' donations
Alfred Potter Memorial Research Award
Pages 3-4: Recent drug news
Hydrocortisone price increase
Prescription medication: who pays what?
Alternatives to hydrocortisone?
Page 5: Personal experience
The Fred Whitton challenge
Pages 6-8: AGM
Social report
Minutes
Chair's remarks
Treasurer's report
Webmaster's report
Pages 9-12: Medical lecture
Should everyone with Addison's be taking DHEA?
Pages 13-14: In memory
An untimely death
Pages 14-15: Medical news
Media misrepresentation
DuoCort update
Feedback on GP leaflets
Pages 16-17: Personal experience
Thigh high club: a Cornish experience
Travelling light
Page 18: Around the group
Les says: fundraising update
Page 19: Social update
Regional meetings
Page 20: Back page
Reminders
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ADSHG Newsletter 100 - June 2010
By ADSHG
Addison's Disease Self Help Group newsletter, issue 100, June 2010
Welcome to the summer 2010 newsletter. This issue is, first and foremost, about celebrating the achievements of our athletes. Three of our members – all with Addison’s – completed marathons in April, and we are so proud of them. You can read their stories on pages 3 – 5. This issue is also about recognising the achievements of the endocrine nurses who work to support people with Addison’s. You can read about the two nurses who won the ADSHG’s research awards at the March endocrine conference on pages 7 - 8.
Page 1: Front page
Our athletes, our heroes
Cordon acquired by Auden Mckenzie
Page 2: From the President
A beautiful wedding
Members' donations
Pages 3-5: Fundraising update
Peter's Brighton story
Debra's London story
Greg's London story
Pages 6-8: Medical news
Vitamin D deficiency
ADSHG nursing award at endocrine conference
Group education and steroid sick day rules
Pages 8-10: Recent research
Ongoing symptoms in Addison's
Bone loss in Addison's
Responding to adrenal crisis: ambulance perspective
Pages 11-12: Famous lives
George Summerbee
Page 13: Personal experience
Travelling light
Page 14: Around the group
Les says: fundraising update
Social meeting reports
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
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ADSHG Newsletter 099 - March 2010
By ADSHG
Addison's Disease Self Help Group newsletter, issue 99, March 2010
Welcome to the March 2010 newsletter. The UK had an unusually cold, hard winter; when the spring weather fi nally arrives it will be most welcome. So spare a thought for our competitive runners and cyclist, who have had to continue their training regimes right through the sleet, ice and snow. The London marathon is on 25 April and the ADSHG is proud to have two members with Addison’s who will be taking part in it: Debra Chase and Greg Davis. In addition, group member Ian Carswell will be taking on one of the UK’s toughest competitive cycling routes when he takes part in the Fred Whitton Challenge in the Lake District in May. You can find out more on page 14.
Page 1: Front page
Supporting our athletes
GP information packs
Efcortesol shortage
Page 2: From our President
Members' donations
Obituary: Alfred Potter
Page 3: Famous lives
Jane Austen had TB not Addison's
Pages 4-5: Recent news
What's new with flu?
ADSHG trustee meeting
French fludrocortisone
Page 6: Medical meetings
ADSHG offer nursing awards
Page 7: Recent research
Recent research on adrenal emergencies
Page 8: Famous lives
Ella Holleufer Hedtoft
Pages 9-13: Personal experience
Travelling light
An unhappy hospital stay
Machu Picchu
Up and running
Exercise and Addison's: the doctor's view
Page 14: Around the group
Les says: fundraising update
Social meeting reports
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
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ADSHG Newsletter 098 - December 2009
By ADSHG
Addison's Disease Self Help Group newsletter, issue 98, December 2009
Welcome to the December 2009 newsletter, the final newsletter in our 25th anniversary year. To mark the passing of this special year, we are giving everyone a Silver Jubilee gift pack, enclosed with this newsletter. Our 25th anniversary celebrations, held in Guildford on 31 October, feature on pages 9 and 10, with Chris Scott and Daniel Kenward’s recollections of the early days of the group.
Page 1: Front page
Happy Christmas everyone
Silver Jubilee gift pack
Page 2: From the President
Group news
Pages 3-5: Medical updates
What's new with flu?
Modified release hydrocortisone: promising developments
Nordic conference news
Pages 6-7: Group news
Sister awarded for saving mother
'I want to see a consultant'
Travelling light
Pages 8-9: 25th anniversary meeting
Speeches from the meeting
Page 10: Medical report
Oral contraceptive pills: a word of caution
Renin tests - what do they mean?
Page 11-12: Personal experience
Helen Reddy: the woman I am now
Page 12: Famous lives
Eunice Kennedy Shriver
Pages 13-14: Around the group
Les says: fundraising update
Social meeting reports
Members' donations
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
12 downloads
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ADSHG Newsletter 097 - September 2009
By ADSHG
Addison's Disease Self Help Group, issue 97, September 2009
Welcome to the autumn 2009 newsletter. It has been a busy summer for the trustees, as you can read in this issue. We have worked with the Society for Endocrinology to help their Clinical Committee prepare the information about H1N1 flu preparedness that is enclosed with this newsletter. We have written to the British Medical Journal about Addison’s awareness and the important role played by GPs in the early diagnosis of our condition. Our letter is reprinted on page 5. And we have been preparing our new range of Addison’s awareness gifts and stationery, along with enhancements to our Just Giving donations and fundraising pages, as you can read on page 8.
Page 1: Front page
Working with our medics
Flu update
Christmas cards
Page 2: From the President
Group news update
Page 3-5: Recent news
Patients taking hydrocortisone need longer prescriptions in light of flu pandemic
New fludrocortisone - out of the fridge
'I want to see the consultant'
Prescription charges
Addison's in the medical press
Page 6-7: AGM
Minutes
Chair's remarks
Treasurer's report
Page 8: Group news
Les says: fundraising update
The shop
Life in the slow lane
Pages 9-12: Medical lecture
Replacement therapy in Addison's disease
Pages 13-14: Medical update
Spotlight on Manchester: NWAS and hospital experience
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
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ADSHG Newsletter 096 - June 2009
By ADSHG
Addison's Disease Self Help Group, issue 96, June 2009
Welcome to the summer 2009 newsletter. We make no apologies for the sober tone of this issue, which is all about emergencies. Two of the four horsemen of the apocalypse – pestilence and death – feature on these pages. Pestilence, in the guise of Mexican flu, appears on page 3, where we have some important news about the anticipated flu outbreaks in autumn 2009 and how to make sure we are all as well prepared as possible. Death, very sadly, appears on page 11 where we publish the autopsy report on a lady with a pituitary condition (not an ADSHG member) who died in her sleep, when she could not absorb oral steroids during a gastric infection. If she had been given injected steroids and prompt medical treatment, it is likely that this tragedy could have been prevented.
Page 1: Front page
All about emergencies
With this issue
Efcortesol shortage
Page 2: From the President
Members' fundraising
Pages 3-5: Medical news
A message from John Wass on flu preparedness
28-day prescribing in the news
Addison's in the medical press
Page 6: AGM
Social report
Pages 7-8: ADSHG poster
All about emergencies
Pages 9-10: Personal experience
My life turned upside down
Page 11: Recent news
A preventable tragedy
Pages 12-13: Home and away
News from Denmark
Casa Luz calling
Life in the slow lane
Pages 14-15: Social update
Social meeting reports
Regional meetings
Page 16: Back page
Reminders
8 downloads
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ADSHG Newsletter 095 - March 2009
By ADSHG
Addison's Disease Self Help Group, issue 95, March 2009
The ADSHG turns 25 this year, making this our silver anniversary. On 21 July 1984, Deana Kenward started the group - at her kitchen table - with just a handful of members. She blames writer and actress Katie Boyle, then the agony aunt at the Radio Times, for everything. Deana had written to the Radio Times to ask if they knew of a support group for people with Addison’s. Katie Boyle wrote back to say no, and why didn’t she start one? So she did.
Page 1: Front page
Happy birthday to us
Annual report
Page 2: From the President
Annette Louise Seal Memorial Research Award
Members' fundraising
Pages 3-5: Medical news
Pandemic flu planning
Government's position on 28-day prescribing
Duo-Cort online survey
Page 5: Group news
Executive at work
Pages 6-9: Medical lecture
The causes of Addison's
Pages 10-11: Home and away
Keeping cool about fludrocortisone
Genetic research: give blood
Rescue of Addison's Disease Study
Life in the slow lane
Page 12: Personal experience
Namaste: trekking in the Himalayas
Page 13: Famous lives
JFK
Page 14: Group news
Medical lecturer profile
Social reports
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
12 downloads
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ADSHG Newsletter 094 - December 2008
By ADSHG
Addison's Disease Self Help Group newsletter, issue 94, December 2008
When the US sub-prime real estate market collapsed a year ago, no one anticipated that it would unravel to cause a global fi nancial crisis, the near-collapse of the international banking system and a protracted worldwide recession. Despite the economic uncertainty ahead, we hope that everyone can enjoy their Christmas and New Year celebrations.
Page 1: Front page
Happy Christmas everyone
2009 subscriptions now due
Page 2: From the President
Members' fundraising
28-day prescriptions success story
Pages 3-5: Medical news
Influenza vaccine
Generic Efcortesol update
Modified hydrocortisone release: study update
ADSHG at Clinical Update
ADSHG at nurses conference
Newcastle medical seminar
Life in the slow lane
Pages 6-8: Media
Medical misinformation: Women's Own and PCC
PCC decision
Page 9: Famous lives
Andrew Dasburg
Pages 10-11: Around the group
Seeing in the new year
Regional meetings
Page 12: Back page
Reminders
4 downloads
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ADSHG Newsletter 093 - September 2008
By ADSHG
Addison's Disease Self Help Group newsletter, issue 93, September 2008
It was the Irish dramatist Brendan Behan who said, there is no such thing as bad publicity except your own obituary. However, that was in a gentler, more deferential era. In this issue, two of our members – Tracy and Jackie – tell us about their experiences with the media and how their diagnosis stories were reported. As you will see on page 3, Tracy was delighted to fi nd her experiences accurately and carefully portrayed, while Jackie was dismayed to fi nd the opposite. On page 4 you can read the guidelines the ADSHG trustees have recently developed for working with the media in future, to try and prevent misreporting of Addison’s disease and the kind of distress Jackie was put through by misrepresentation of her life.
Page 1: Front page
Giving people with Addison's a voice
Russian translation now available
Oval hydrocortisone is back
Page 2: From the President
Members' fundraising
Obituary: Alan Lack
Pages 3-4: Media
Media misinformation: the saga of Women's Own
Working with the media
Pages 4-5: Recent news
The puncture sisters
Meeting reports
Pages 5-6: AGM
AGM report
Chair's remarks
Minutes
Page 7: Medical update
ADSHG submission to the Darzi report
Page 8: Home and away
News from down under
Thigh high club
Page 9: Personal experience
Remembering Mabel
On watch with Addison's
Page 10: Around the group
Name that ailment
Members' news
Page 11: Social update
Regional meetings
Page 12: Back page
Reminders
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ADSHG Newsletter 092 - June 2008
By ADSHG
Addison's Disease Self Help Group newsletter, issue 92, June 2008
Welcome to the June issue. Drug issues are in the news again this summer with both good and bad news. The good news, on page 4, is that there are promising developments with the two new modified release hydrocortisone products now going through clinical trials. The bad news is that hydrocortisone and fludrocortisone supply problems have again hit parts of the UK. Please check the emergency supply procedures on the back page of the newsletter.
Page 1: Front page
Good news and bad news
Florinef and hydrocortisone shortages
Page 2: From the President
Members' fundraising
Pages 3-4: Recent news
Repeat prescribing for essential steroid medication
BES endocrine conference
Modified release hydrocortisone: good news
Pages 5-8: Medical update
Adrenal emergency regular event for Addison's patients
Employment and Addison's
All about food
Claire's weight loss story
Page 9: Personal experience
A guider's tale
Famous lives: Helen Reddy
Page 10: Around the group
Diary of a persistent patient
Crossword
Page 11: Social update
Regional meetings
Page 12: Back page
Reminders
6 downloads
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ADSHG Newsletter 091 - March 2008
By ADSHG
Addison's Disease Self Help Group newsletter, issue 91, March 2008
Recent months have been eventful ones for the ADSHG, so that this issue of the newsletter is more topical than usual. We found ourselves in discussions with a major drug company, Bristol-Myers Squibb, about the revised storage instructions for their fl udrocortisone acetate product, Florinef, and the lack of clarity regarding how long the tablets are viable out of the fridge. On page 6, the acting medical director of Bristol-Myers Squibb offers an explanation of the regulatory requirements behind the current situation. On page 7, Kerry Wheeler, the editor of the Australian Addison’s newsletter, describes the Australian experience with the new, white Florinef.
Page 1: Front page
Drug supply issues: Florinef and hydrocortisone
Page 2: From the President
Members' fundraising
Pages 3-4: Recent news
German translation works
Are you having a problem getting hydrocortisone?
Corlan shortage
ADSHG at endocrine conference
Page 4: Media
Addison's in the news
Pages 5-6: Medical update
Florinef goes white in the cold
Pages 7-9: Personal experience
News from down under
A soldier's tale
Famous lives: JFK
Page 10: Around the group
Profile: Professor Simon Pearce
AGM notice
Page 11: Social update
Regional meetings
Page 12: Back page
Reminders
5 downloads
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ADSHG Newsletter 090 - December 2007
By ADSHG
Addison's Disease Self Help Group newsletter, issue 90, December 2007
Welcome to the December 2007 newsletter. Christmas can be a time of high expectations in many households – and possibly some added tensions. So in this issue, our page 5 feature considers the topic of stress: how the body and brain process stress and whether stressful events need extra medication (or not). We also provide some light-hearted tips for how to survive Christmas and, in the page 10 recipe, a deliciously indulgent alternative to the traditional Christmas pudding.
Page 1: Front page
We wish you a merry Christmas
The little red card
Fludrocortisone update
Page 2: From the President
Members' fundraising
Pages 3-4: Recent news
Twice-daily fludrocortisone
Threat to DHEA supplies
Infusion pump hydrocortisone
Ambulance update
Pages 5-6: Medical update
What is stress?
How to handle stress
Pages 6-9: Personal experience
Have a very restful little Christmas
Thigh high club: Christmas Eve at A&E
A sculptor's tale
Famous lives: Eugene Shoemaker
Members' feedback
Page 10: Around the group
Crossword
Cake recipe
Page 11: Social update
Regional meetings
Page 12: Back page
Reminders
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ADSHG Newsletter 04 web - October 2004
By ADSHG
Addison's Disease Self Help Group web newsletter, issue 4, October 2004
As the group moves towards achieving charitable status, we are also establishing and developing some very positive links with medical practitioners and other members of healthcare services.
Page 1: Front page
Group update
Page 2: Medical update
London ambulance conference presentation
Pages 3-5: Personal experience
Jackie's story
The doctor's view
Pages 5-8: Medical lecture
Managing your steroid medication
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ADSHG Newsletter 03 web - April 2004
By ADSHG
Addison's Disease Self Help Group web newsletter, issue 3, April 2004
It is hard to believe that the first webnewsletter was launched a full year ago. Yet much has happened within the group in the last twelve months. We have made significant progress towards achieving charitable status. Many of us have benefited from the “refresher” emergency injection sessions and, as part of our continuing emphasis on emergency management procedures, there is a step-by-step guide to administering an injection of Solu-Cortef, following on from the Efcortesol instructions (web newsletter 2), on pages 4 and 5.
Page 1: Front page
Group update
Page 2: Group news
The editorial team
Website statistics
Pages 3-4: Personal story
Julie's story
Page 5: Medical lecture
The patient - consultant relationship
Page 6: Around the group
Penpal scheme
Page 7: Media update
Letter to The Guardian
Page 8: Addison's information
What to do in an emergency
ADSHG email group
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ADSHG Newsletter 02 web - October 2003
By ADSHG
Addison's Disease Self Help Group web newsletter, issue 2, October 2003
Welcome to the second edition of the ADSHG web newsletter! In response to the continuing high level of interest in the emergency injection procedure, we hope that the step-by-step guide to administering the injection will be a helpful reference to anyone unsure of what to do. Research Nurse Suzanne Curran’s demonstration at the AGM and annual lecture on 10th May was a great success and this kind of supervised session is a real confidence booster, proving that we can all do it if we know how.
Page 1: Front page
Group news
Pages 2-3: Medical information
How to give an emergency injection of Efcortesol
Pages 4-7: Personal experience
Pam's story
The doctor's view
The ambulance service view
Alan's story
Page 8: Media
Letter to The Lancet
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ADSHG Newsletter 01 web - February 2003
By ADSHG
Addison's Disease Self Help Group web newsletter, issue 1, February 2003
Welcome to the first edition of the ADSHG web newsletter. It is intended to complement the bi-monthly newsletter and will be printed twice a year as part of your membership subscription, with the next edition scheduled for October 2003.
Page 1: Front page
Group update
Page 2: Group news
The editorial team
Website statistics
Pages 3-4: Personal story
Julie's story
Page 5: Medical lecture
The patient - consultant relationship
Page 6: Around the group
Penpal scheme
Page 7: Media update
Letter to The Guardian
Page 8: Addison's information
What to do in an emergency
ADSHG email group
2 downloads
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ADSHG Newsletter 089 - September 2007
By ADSHG
Addison's Disease Self Help Group newsletter, issue 89, September 2007
Welcome to the autumn 2007 newsletter. This issue is packed with news about medication management that we hope you find both interesting and relevant.
Page 1: Front page
Keep on top of your tablets
GP leaflet
Page 2: From the President
Members' fundraising
Members' news
Hydrocortisone product trials
Page 3: Recent news
Repeat prescriptions: letter to the British Medical Journal
Langbaurgh PCT: Good prescribing practice
Page 4: Executive at work
AGM minutes and Chair's remarks
Pages 5-8: Medical feature
Trends in the management of Addison's disease: medical lecture
Extra material: Colour lecture presentation slide set extra (PDF in member-only area)
Page 9: Personal experience
The emergency translation works
A cutting experience
Page 10: Around the group
Profile: Guildford speakers
Potato rosti
The crossword
Rural ramblings
Page 11: Notices
Social meetings update
Page 12: Back page
Reminders
5 downloads
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ADSHG Newsletter 088 - June 2007
By ADSHG
Addison's Disease Self Help Group newsletter, issue 88, June 2007
Welcome to the summer 2007 edition of the ADSHG newsletter. We have prepared this issue in anticipation of another long, hot summer such as we experienced in 2006.
Page 1: Front page
Have a good holiday - whatever the weather
PC gremlins
Portuguese translation of emergency card
Page 2: From the President
Members' fundraising
Members' news
A sky high reward
Page 3: Recent news
One-dose hydrocortisone
Euradrenal research project proposed
Research volunteers wanted, Cambridge
Page 4: Executive at work
Repeat prescriptions
ADSHG represented @ Birmingham
A day at the seaside
Pages 5-6: Medical feature
Preventing and treating adrenal emergencies
Page 7: Personal experience
IM injection: is there a better way?
Heat exhaustion
Page 8: The doctor's view
Managing hot weather
Page 9: Personal experience
Hot weather tips
Rural ramblings
Page 10: Around the group
Spicy kedgeree
The crossword
Page 11: Notices
Social meetings update
Page 12: Back page
Reminders
8 downloads
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ADSHG Newsletter 087 - March 2007
By ADSHG
Addison's Disease Self Help Group newsletter, issue 87, March 2007
Welcome to the spring 2007 edition of the ADSHG newsletter. Spring is the time when the trustees are looking forward – both to the start of summertime and to the events of the year ahead – and back at our activities over the previous 12 months. This issue contains a four page supplement with the group’s Annual Report to the Charity Commission, outlining our activities in 2006. We hope you agree that we had some pleasing achievements in 2006, notably in raising medical awareness of our needs.
Page 1: Front page
Greater medical interest in Addison's disease
Standing orders
Annual report
Page 2: From the President
Members’ fundraising
Members’ news
Profile: Professor John Monson
Page 3: Recent news
One-dose hydrocortisone
Hydrocortisone supply problems
Genetic origins of Addison’s: update
Pages 4-5: Medical feature
Professor John Wass’ address to the 2006 endocrinology summer school
Page 6: Executive at work
Insurance and placebo trials
Emergency survey update
2007 AGM agenda and notice of meeting
Pages 7-10: 2006 Annual Report
A four page supplement
Pages 11-13: Personal experience
Return to work: occupational health and disability discrimination
Page 14: Around the group
Healthy banana cake
The crossword
E-forum update
Page 15: Notices
2007 AGM and medical lecture
2007 subscription rates
Genetic research: how to give blood
Autumn medical seminar
Page 16: Back page
Reminders
5 downloads
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ADSHG Newsletter 086 - December 2006
By ADSHG
Addison's Disease Self Help Group newsletter, issue 86, December 2006
Welcome to the December newsletter. Like us, you probably can't believe how quickly the year has gone. Nearly Christmas already! The last three months have been a busy time for the trustees and group volunteers. Deana Kenward and Alan Lack have been industrious in printing, packaging and posting all the Christmas card orders. Deana has been incredibly efficient, sometimes getting orders out within 48 hours of receiving them via the website.
Page 1: Front page
Wishing you the happiest of Christmases
2007 membership options
Page 2: From the President
Members' fundraising
Members' news
Page 3: Recent news
Birmingham medical seminar
Website online registration and membership renewal
ADSHG e-Forum
Page 4: Executive at work
Day curves - are they worth it?
ADSHG at medical conferences
Pages 5-8: Medical lecture
The ABCs of Addison's
Page 9: Personal experience
A cycling tour de force
Bad drug experience
Extreme sports
Page 10: Around the group
Deana's apple pie
Crossword
Page 11: Notices
Subscriptions
Give blood: medical research
Page 12: Back page
Reminders
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ADSHG Newsletter 085 - September 2006
By ADSHG
Addison's Disease Self Help Group newsletter, issue 85, September 2006
Welcome to the autumn newsletter for the ADSHG. We hope you all enjoyed a relaxing summer holiday. Some of our members are great travellers, as you will see from the travel insurance tips on page 10 of this issue. You were no doubt aware of the heightened security and more stringent bag searches at UK airports this summer. It is still important to carry your medication and injection kit with you on the plane rather than check them as hold baggage (as specified in the Managing Addison’s leaflet you received with your June newsletter).
Page 1: Front page
Travelling safely with your essential steroid medication
Emergency mini-survey
Christmas order form
Page 2: From the President
Members' fundraising
Members' news
Page 3: Recent news
ADSHG at UK medical conferences
Manchester medical seminar
Genetic research: how to give blood
Page 4: Executive at work
AGM minutes
Chair's remarks
Pages 5-8: Medical lecture
Sex and Addison's: how adrenal insufficiency affects men and women differently
Page 9: Personal experience
Our youngest member
Our oldest member
Page 10: Around the group
Travel insurance tips
Aunty Teresa's soda bread
Recent medical research
Page 11: Notices
Meetings update
Emergency card extra copies
Page 12: Back page
Reminders
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