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Featured Publications

  • When a student has Addison's: a guide for schools and parents By ADSHG

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    The ADSHG booklet 'When a student has Addison's: a guide for schools and parents' was written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment.   This leaflet was developed jointly by ADSHG members Sue Chambers, Debbie Heaton and Katherine White. The ADSHG also wishes to thank Juliet Edwards, Jennifer Billingham, Sue Elford and Lindsey Farrow for reviewing the content.   The booklet covers the following information:   1. What is Addison's 2. Day to day symptoms 3. Managing medication and fluids 4. Medical jewellery and other documentation 5. The Individual Healthcare Plan 6. Absences and support for education missed 7. Outside the classroom: school trips and sports 8. Exam arrangements 9. Transition to another school 10. Responding to sickness, injury and emergencies 11. Legislative guidance and further information 12. Suggested Individual Healthcare Plan template 13. Other essential contacts   Our thanks to Professors John Wass, Simon Pearce, Wiebke Arlt, Dr Trevor Howlett and consultant endocrine nurse Phillip Yeoh of the Addison’s Clinical Advisory Panel for their guidance and input.   This leaflet is © ADSHG December 2015. It may be copied for educational or personal use or by medical practitioners for the education of their patients. Otherwise, it should not be reproduced without written permission from the ADSHG.
  • ADSHG surgical guidelines By ACAP

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    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed for the ADSHG by our Clinical Advisory Panel.   They explain what level of extra medication and monitoring you will need in the event of most types of surgery or dental work. If you are having elective surgery in hospital, for example a hip operation, it would be sensible to give your surgeon and anaesthetist a copy of the guidelines well in advance of your surgery date. It is also advisable to take the guidelines with you when you go in to hospital and discuss them with your nursing staff, so that they are aware of the post-operative care you need.   These guidelines:   a. List the ten main types of surgical procedure, each requiring a different level of steroid cover   b. Specify the glucocorticoid medication and post-operative treatment requirements for each type of procedure in an easy-to-read table   c. Bring together the most up-to-date endocrine knowledge on cortisol replacement in the steroid-dependent patient   d. Reflect a prudent level of steroid cover that can safely be administered by non-endocrinologists.   These guidelines apply to all individuals who are steroid-dependent, so they are relevant to people with hypopituitarism as well as Addison's.   The leaflet is © ADSHG May 2017. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.
  • ADSHG Newsletter 129 - September 2017 By ADSHG

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    Addison’s Disease Self Help Group newsletter, issue 129, September 2017   Welcome to the autumn 2017 edition of the ADSHG newsletter. This issue announces the arrival of the Addison’s cookery book, a enticing collection of healthy recipes compiled by Sue Chambers, with the story of how it came together. Our central feature reflects on June’s successful and enjoyable annual general meeting and medical lecture. Additionally, we report on the latest drug news, ambulance awareness and the ADSHG medical research grant, as well as the launch of the upgraded website.   This issue of the newsletter also contains the 2017 Christmas catalogue order form insert (included as an extra download file here), highlighting items – including those all-important stocking fillers – available to purchase from our online shop.
    Page 1: Hot news from the kitchen
    Christmas catalogue 2017
    Don’t forget your flu vaccine   Page 2: From the President
    About the money
     
    Page 3: Sue’s cookbook   Page 4: Brexit update
    Customs uncertainty: possible drug supply disruptions   Page 5-6: ADSHG and UK news
    Repeat prescription length and reserve supply
    Winter flu vaccine reminder
    Medical research grant report: uncovering biomarkers for steroid-dependent patients
    Fludrocortisone price hike causes hardship for dog owners
    Natural killer cells and Addison’s   Page 7: Around the group
    Talking to Sheffield medical students
    Injectable hydrocortisone in Ireland
    Price watch   Pages 8-10: AGM report
    Personal impressions from a volunteer
    Finance report
    Social media report
    Minutes of the 2017 AGM    Page 11: Ambulance awareness
    Ambo update: get yourself registered!
    East of England ambulance to the rescue
    Spotlight on Living Well   Page 12: Personal experience
    Molly’s mind -  blogging my way through life   Page 13: Fundraising update
    Donations report   Page 14-15: Social update
    Gill’s social corner
    2017/8 social and medical meetings   Page 16: The back page
    Reminders
    Conference dates
    2018 subscription rates
    ADSHG trustees and officers  
  • ADSHG medical history form By ADSHG

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    This medical summary form is an easy way to record the medications you are currently taking as an aide-mémoire and as a guide for medical professionals, when my medical records are unavailable and your medications need to be known.   The leaflet is © ADSHG March 2017. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG

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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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