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Useful links to other organisations


This section provides electronic links to the websites of other organisations in the UK and around the world that provide support and information to people with Addison's and adrenal insufficiency. As many people with Addison's also live with other autoimmune conditions too, we have included some links to relevant patient groups for these conditions.

UK groups for associated autoimmune conditions and other causes of steroid-dependence

 

Achalasia Research UK

Alopecia UK

ALD Life (Adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN))

AMEND - Association for Multiple Endocrine Neoplasia Disorders)

Asthma UK

British Sjogren's Syndrome Association

British Thyroid Foundation

Coeliac UK

Crohn's and Colitis UK

Diabetes UK

Hypopara UK (Parathyroid)

Living with CAH (Congenital adrenal hyperplasia)

National Rheumatoid Arthritis Society

Pernicious Anaemia Society

The Pituitary Foundation

The Vitiligo Society

 

National and international umbrella support groups

 

United Kingdom
ADSHG is a member of the following umbrella/sector charities

National Council of Voluntary Organisations (NCVO)

National Voices (UK)

Rare Diseases UK

 

Overseas
Belgium

Rare Disorders Belgium (RDB)

 

Croatia

Croatian Human Resources (HSRB)

 

Ireland

Genetic and Rare Disorders Organisation Ireland (GORDI)

 

India

Organisation for Rare Diseases India (ORDI)

 

United States of America

US National Organisation for Rare Diseases (NORD)

US National Institute of Diabetes, Digestive and Kidney diseases patient information leaflet

 

Affiliations

 

The Society for Endocrinology supports a number of endocrine-related charities, many of which are listed above. The ADSHG is grateful for the coordination and assistance it provides.

 

Overseas Addison's support groups

 

Many of the national support groups websites listed below are in languages other than English. Online translators can offer you a rough and ready English language version of these screen-based texts. The most readily available is Google Translate; there are plenty of others.

 

Australia

Australian Addison's Disease Association

 

Canada

Canadian Addison Society

 

Czech Republic

Czech Addison's group (Addisonova Choruba)

 

Denmark

Danish Addison's Association

Danish Pituitary Network (Hypofyse Netvaerket)

 

Finland

APECED & Addison's Society (APECED.org)

 

France

Adrenal Association (Association Surrenales)

 

Germany

German Network for Pituitary & Addison's Disease (Glandula)

 

Ireland

Addison's Ireland

 

Italy

Italian Addison's Patients Association

 

Netherlands

Dutch Adrenal & Cushings Patient Society (NVACP)

Dutch Pituitary Foundation (Hypofyse Stichtung)

 

New Zealand

New Zealand Addison's Network

 

Norway

Norwegian Addison's Society

 

South Africa

South African Addison’s Group Support (SAAGS)

 

Spain

Spanish Addison's Group (Adisen)

 

Sweden

Swedish Addison Association

Swedish Pituitary Society (Society Hypophysis)

 

Turkey

Turkish Addison’s Association

 

United States of America

US National Adrenal Diseases Foundation (NADF)

 








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Contacts

 

Addison's Disease Self-Help Group

PO Box 1083

GUILDFORD

GU1 9HX

United Kingdom