Jump to content

Addison's Disease Self-Help Group uses cookies. Read the Privacy Policy for more info. To remove this message, please click the button to the right:    I accept the use of cookies
  •  

- - - - -

Promoting patient safety and medical awareness


The ADSHG has made a number of submissions towards Department of Health consultation exercises on patient safety, access to medications and and good clinical care. The charity has also made a submission to the Scottish Medicines Consortium on access to new therapies. Here, we present the main submissions that the charity has made since its 2004 charitable accreditation.

Health select committee, inquiry into priorities for health and social care in the negotiations on the UK’s withdrawal from the European Union, 2016

 

Scottish Medicines Consortium, consultation on new glucocorticoid branded therapy, 2016

 

Never Events patient safety consultation, 2014

 

Gilmore review of prescription charges, 2009

 

Darzi review of health services configuration, 2008

 

Members can also view reports about these policy submissions in past issues of our newsletter [login required].

Patient safety failures can be fatal

 

 

This video [05:00 min], produced by the Royal Bournemouth and Christchurch Hospitals NHS Trust, describes one tragic case where omission of steroids resulted in the death of a vulnerable young man who was steroid-dependent with complex comborbidities.

 

The ADSHG wishes to thank the family of Robin Brett and Dr Tristan Richardson for permission to publish this video.

 

Adam Cash's story
Ambulance Today has published a 6 page feature about the death of this 21 year old, who died just over a year after his Addison's diagnosis. Misunderstandings on the part of ambulance staff about the risks to his steroid-dependence from a vomiting illness were a significant contributing factor to his arguably preventable death from a norovirus infection.
This poignant feature explores the various factors contributing to his death, which included misjudgements on the part of the 999 call handler and the first response crew, his family's lack of familiarity with his condition and how to respond to the risks of vomiting, as well as Adam's heightened vulnerability to circulatory complications from the norovirus infection, due to an undetected cardiac irregularity. The lessons from this tragedy are discussed in the Editor's Comment on p3, while the feature article, An Inspirational Young Man, begins on p11.




0 Comments

Contacts

 

Addison's Disease Self-Help Group

PO Box 1083

GUILDFORD

GU1 9HX

United Kingdom