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Latest Articles


Pinned  Joining the ADSHG & member benefits

09 Jun 2016 01:24 PM | ADSHG in About the ADSHG

Membership of the ADSHG is open to anyone with Addison's or other forms of adrenal insufficiency that result in steroid dependence. Family members, friends or anyone with an interest adrenal medicine are also welcome. You can join as an e-member receiving your material electronically through the website or as a postal member. Most of our members have primary adrenal insufficiency (Addison's) but people whose steroid-dependence is from causes are welcome to join the group, to share support around managing their dependency on this life-saving medication.



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Pinned  How to give an emergency injection

14 Jan 2016 09:15 PM | ADSHG in Emergencies & hospitalisation

This section describes how to give an emergency injection of injectable hydrocortisone for adrenal crisis prevention. The explanations use videos and illustrated guides to describe how to prepare and administer the injections and are relevant for work colleagues, family and friends as well as self-injection.



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Pinned  ADSHG MedicNews update emails

21 Oct 2016 07:45 PM | ADSHG in Healthcare professionals

New for medical professionals

 

The ADSHG is unique in bringing together patients with Addison’s disease and leading medical specialists who have a specific interest in adrenal medicine. Registering to receive ADSHG MedicNews update emails will help keep you as a medic abreast of the very latest information and medical guidance relating to the condition.



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Pinned  Support our 2017 fundraisers

05 Apr 2016 05:40 PM | ADSHG in Ways to give

Many people raise funds for the group through participating in sponsored events; please help us by sponsoring someone undertaking such an event in 2017. Some of our fundraisers are group members with Addison's; others are friends and family.

 

The ADSHG also purchases a limited number of charity places in two running events a year. You can find details of place availability in 2017 in this article.



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Pinned  About travel & holidays

06 Apr 2017 01:41 PM | ADSHG in Travel & holidays

Managing you adrenal insufficiency while you are away from home can be challenging. In the travel & holidays section, our members share their experiences of managing Addison's in different countries and climates and their top tips for how to make sure your trip runs smoothly. Read more here...



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Publications for people with Addison's

04 Jan 2016 09:24 PM | ADSHG in Publications & communications

The Addison’s Disease Self-Help Group, with the support and guidance of its Clinical Advisory Panel, publishes free education materials for people with Addison's regarding the treatment and management of their condition.



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Regional medical seminars

17 Jun 2016 08:39 AM | ADSHG in Lectures & social meetings

The ADSHG holds a regional medical seminar each year in a different part of the UK. Led by a local endocrinologist with an interest in adrenal medicine, it is structured as an informal question and answer session, followed by afternoon tea and the opportunity for injection practice. All ADSHG members are welcomed to attend.



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About the online forum

15 Jul 2016 04:09 PM | ADSHG in About the ADSHG

Our online forum is a vibrant community of ADSHG members offering mutual support and help. It is a key membership benefit of the ADSHG, providing subscribing members with the opportunity to share experiences, ask questions, make new friends and discuss the practicalities of living with Addison's.



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About Addison's Ireland

10 Jun 2016 08:25 AM | ADSHG in About the ADSHG

Addison's Ireland is the Irish branch of the Addison’s Disease Self-Help Group (ADSHG) with approximately 104 members from around the country both north and south. It organises regular meetings in Dublin and around the country and works to raise awareness of Addison's in Ireland.



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How to contact us

13 Jun 2016 08:26 AM | ADSHG in About the ADSHG

The ADSHG is a charity run by a team of enthusiastic volunteers who would love to hear from you, however it may take a day or two for us to get back to you. We are unable to provide medical advice for individuals and you should seek this from your medical team.



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ADSHG endocrine nurse prize: Annette Louise Sea...

19 May 2017 10:20 AM | ADSHG in Research and information

The ADSHG offers an annual prize at the Society for Endocrinology BES conference, for a nurse-led research project that advances steroid awareness and patient safety.



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Publications for healthcare professionals

05 Jan 2016 03:59 AM | ADSHG in Publications & communications

Clinical guidance publications have been developed by the ADSHG Clinical Advisory Panel to inform and advise your healthcare professions. These publications are available as free downloads and you should ensure your healthcare professionals are provided with these important publications.



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Newsletters (members only)

05 Jan 2016 03:41 AM | webmaster in Publications & communications

ADSHG Newsletter 128 - June 2017 is now online!

 

The ADSHG newsletter is issued to members four times a year in March, June, September and December. It's a key membership benefit of the ADSHG and a great way to get the latest updates on Addison's research, treatment and daily management, with additional news from the group and stories from our members.



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Ambulance registration (red-flagging)

01 Jun 2017 10:41 PM | ADSHG in Emergencies & hospitalisation

Learning to live with Addison’s includes making sure you’re ready for all eventualities! For this reason, it’s important to be registered (red flagged) with your local ambulance service in case you need to go to hospital and receive emergency treatment on the way.



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Contacts

 

Addison's Disease Self-Help Group

PO Box 1083

GUILDFORD

GU1 9HX

United Kingdom