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About the ADSHG

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The Addison’s Disease Self-Help Group (ADSHG) is the support group in the UK and Ireland for people with Addison’s disease or adrenal insufficiency and their families. First started in 1984, the Group is now a registered charity (no.1106791) governed by a body of elected trustees, which works to support its members with adrenal failure and to promote better medical understanding of this rare condition.

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  1. The ADSHG is a charity (no.1106791) that is supported by individual donations, legacies, membership subscriptions, corporate grants and from our online shop. The ADSHG is very grateful to the families and organisations who have supported our work through memorial donations, fundraising, grants and sponsorship.



  3. The day-to-day running of the ADSHG is performed by the an enthusiastic and dedicated group of volunteers and a few contract staff who support the aims of the organisation and work with us to meet our goals.

  4. The ADSHG is a charity run by a team of enthusiastic volunteers who would love to hear from you, however it may take a day or two for us to get back to you. We are unable to provide medical advice for individuals and you should seek this from your medical team.

  5. Addison's Ireland is the Irish branch of the Addison’s Disease Self-Help Group (ADSHG) with approximately 104 members from around the country both north and south. It organises regular meetings in Dublin and around the country and works to raise awareness of Addison's in Ireland.

  6. The ADSHG works hard in it's mission to raise community awareness of Addison's disease via the charity website, the charity's Facebook page and Twitter. Supporting people with this rare condition is the prime objective of the charity so it makes all medical literature free to everyone on the website and provides local meetings and an online forum for members.

  7. As a member, you receive a range of benefits including direct support from fellow members via the online forum and through local meetings as well as the quarterly ADSHG newsletter, A number of these including the ADSHG newsletters, online forum, Living well website articles and ADSHG NewsAlert emails are directly accessed from the website here.

  8. As a registered medic, you receive free access to a range of member benefits which include the quarterly ADSHG newsletter, Living well website articles and ADSHG MedicNews update emails which can be directly accessed from the website [registered medic only].

  9. A comprehensive range of Addison’s awareness merchandise, emergency information and injection kits are available to purchase from the ADSHG online shop. Orders are processed Monday - Thursday during office hours; enquiries to shop@addisons.org.uk sent on Fridays or weekends will receive a reply the following week.

  10. Our online forum is a vibrant community of ADSHG members offering mutual support and help. It is a key membership benefit of the ADSHG, providing subscribing members with the opportunity to share experiences, ask questions, make new friends and discuss the practicalities of living with Addison's.

  11. The ADSHG is a registered charity (no. 1106791) and produces annual reports and accounts to comply with our Charity Commission registration. You can find details of our most recent reports below.

  12. Renewing your subscription online is easy and is described below. If you receive a postal newsletter and have not done so already, we encourage you to switch to direct debit payment, which is considerably cheaper for you and makes administration both easier and cheaper for the group.

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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

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    Our Online Volunteers

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    pippa sharman
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  • frances1
  • suep1954

A dedicated team of volunteers contribute to and support the website, forum, shop, publications centre, video hub plus social media engagement on behalf of the charity.


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