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Welcome to the Addison's media centre


ADSHG

  • Addison's disease is a rare condition, little known to the general public, that receives only occasional media attention. In this media section, we provide resources, explain how we assist media enquiries where we can, and list the ADSHG's past press releases.

The Addison's Disease Self-Help Group is a small charity. It is run by elected trustees and volunteers without an office or a paid staff. Therefore, the Group is unable to provide an immediate response to media enquiries. Please allow up to 72 hours for a response to any enquiry. Please note that we are unable to offer a phone line for media enquiries, which must be directed via the contact us form.

 

The ADSHG does not maintain a shortlist of members with adrenal failure who would be willing to feature as case studies in magazine profile stories. If you wish to interview any of our members for a media story about living with Addison's, please allow at least 14 days for us to identify suitable candidates. The ADSHG only assists accredited staff journalists and does not usually provide assistance to freelance journalists. All interviews will be taped and witnessed by the ADSHG's media coordinator. The interviewee must be given a copy of the article/recording before it is submitted for publication, with the opportunity to make corrections or clarifications.

 

If you would like comment on a story from an endocrinologist or other medical professional specialised in treating hormone-related conditions, please approach the Society for Endocrinology in the first instance. Their press office deals with all endocrine conditions, including Addison's and the adrenal glands.

 

The Society for Endocrinology has collaborated with the Addison's Disease Self-Help Group on topical media issues, on several past occasions. This includes:


The ADSHG has devoted most of its media energies to specialist medical publications and social media, reaching the medical community.



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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

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