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Addison's disease is a rare condition, little known to the general public, that receives only occasional media attention. In this media section, we provide resources, explain how we assist media enquiries where we can, and list the ADSHG's past press releases.

22 articles in this category

  1. Concordia, the supplier of hydrocortisone sodium phosphate, has confirmed that it has stopped manufacture until Q3 2018 due to difficulties in sourcing the active ingredient for its liquid injectable hydrocortisone. 

    • 9,765 views
  2. Our new website has been launched - check out www.addisonsdisease.org.uk

    • 341 views
  3. Over recent weeks, people have become increasingly alarmed about media stories of Brexit-related shortages of medicines. We’ve been working closely behind-the-scenes with the Department of Health, key pharmaceutical suppliers and the NHS Specialist Pharmacy Services team to represent members’ views.

    • 1,624 views
  4. As 2018 quickly rolls into the New Year, our double Christmas & new Year edition of our newsletter is available to download in the Members' Area here.

     

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    • 424 views
  5. We're delighted to be participating in the Great Scottish 10k run in Glasgow on Sunday 29th September 2019. Places are available now for runners in support of ADSHG.

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    • 377 views
  6. Join Invicta for their first concert of Music for Advent and Christmas. The concert is in support of the Addison's Disease Self-Help Group and will feature traditional Christmas carols alongside some stunning choral works for the Advent season.

    • 719 views
  7. The ADSHG is holding a Special General Meeting (SGM) on Sunday 18th November, covering our move to Charitable Incorporated Organisation (CIO) status and to vote in a new constitution. It will be followed by a Q&A session by Professor Eystein Husebye, head of the Department of Endocrinology at the University of Bergen. Tickets are available in the online Shop.

    • 1,391 views
  8. The Scottish Medicines Consortium has approved Alkindi (hydrocortisone granules in capsule form) for restricted use in NHS Scotland. Following a submission by ADSHG, the SMC said "We would like to thank you for the time and effort taken to produce your submission. Capturing the views and experiences of patients and carers is an important part of the SMC process and plays a key role in helping our Committee reach its decisions."

    • 566 views
  9. The group's highly regarded publications for people with Addison's are undergoing a redesign over the coming months, improving their visual design and also accessibility for people with visual impairments. 

    • 1,801 views
  10. The autumn edition of the ADSHG newsletter is now available in the Publication centre and  members can download it here...

    • 3,309 views
  11. We've manage to secure three places in the Dublin Marathon on Sunday 27th October 2019. 

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    • 255 views
  12. Addison's in the workplace

     

    When: Monday 29 May, 19:00 - 20:00 BST
    Where: hosted by @AddisonsUK, using hashtag #AddisonsQA

     

    The next Addison's tweet chat will take place on the 100th anniversary of John F Kennedy's birthday, 29 May.

     

    The theme for this event will be Addison's in the workplace.

    • 2,786 views
  13. The ADSHG is holding a Twitter conversation to mark Rare Diseases Day 2017. The theme for our event will be "Working towards good doctor-patient relationships".

     

    When:Tuesday February 28th 7 - 8pm
    Twitter hashtag: #AddisonsQA
    Twitter host: @AddisonsUK

    • 1,649 views
  14. This section provides electronic links to the websites of other organisations in the UK and around the world that provide support and information to people with Addison's and adrenal insufficiency. As many people with Addison's also live with other autoimmune conditions too, we have included some links to relevant patient groups for these conditions.

     

    • 9,717 views
  15. The Society for Endocrinology invited the Addison's Disease Self-Help Group to their annual meeting Glasgow on 19th-21st November 2018 to help raise awareness of adrenal insufficiency amongst clinicians.

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    • 523 views
  16. Last December, we conducted our largest membership survey, ever. Over 600 members shared their thoughts on how we are doing - and where we can improve. Our trustees have already been making good use of the results. Earlier this month, we held our first Trustee Planning Day to think about our objectives for 2019/2020 and kick off some initial projects.

    The results of the survey are online (take a look here and here). We’ll be publishing a summary in a forthcoming newsletter. We welcome your thoughts, too - drop us a line at ideas@addisons.org.uk.

    • 1,976 views
  17. Many members are experiencing sign-in/session sign-out and forgot password issue and we apologise for this.   We are working to resolve the issue with our service partners (web hosting company and software supplier).  This article features some suggests which have helped a number of members to treat the symptoms and avoid the issues.

    • 526 views
  18. The Trustees of Addison’s Disease Self-Help Group (ADSHG) are delighted to announce the appointment of the charity’s new Chief Executive, Neil McClements, following a rigorous, open recruitment process. 

    • 482 views
  19. We’re proud to have been selected as a charity partner of the London Landmarks Half Marathon on Sunday 24th March 2019. We have 8 places available for people willing to run and fundraise for Addison’s Disease Self-Help Group. Do you fancy taking part? Know a friend, family member or neighbour who’s quick on their feet? Well, this could be right up their street!

    • 552 views
  20. At the Special General Meeting of the Addison’s Disease Self-Help Group (ADSHG) held on Sunday 18th November 2018, the resolution set before the meeting to convert to Charitable Incorporated Organisation (CIO) status was carried.

    • 388 views
  21. As previously indicated to members online and in the newsletter, the Special General Meeting of the Addison’s Disease Self-Help Group (ADSHG) will be held on Sunday 18 November 2018 at 6pm at the Premier Inn, George Square, Glasgow.

    • 937 views
  22. Last week, volunteers from Addison's Disease Self-Help Group headed to Birmingham, to the British Society for Paediatric Endocrinology & Diabetes (BSPED) annual conference.  Our aim in attended was to raise awareness of Addison's Disease amongst the medical fraternity and to participate in related symposium discussions. 

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    • 375 views
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The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

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