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Special General Meeting and Q&A on Addison’s – Sunday 18th November 2018


  • The ADSHG is holding a Special General Meeting (SGM) on Sunday 18th November, covering our move to Charitable Incorporated Organisation (CIO) status and to vote in a new constitution. It will be followed by a Q&A session by Professor Eystein Husebye, head of the Department of Endocrinology at the University of Bergen. Tickets are available in the online Shop.

Notice of Special General Meeting

The notice of meeting can be found in the separate Notice of Special General Meeting article on the website.


Why are we having an SGM?

The primary purpose of the SGM is to allow our members to vote on moving ADSHG to Charitable Incorporated Organisation (CIO) status and to vote in a new constitution.


Why do we want to move to CIO status?

As our charity grows and seeks to provide support to more and more people in the Addison’s community, we have determined that ADSHG and therefore our members will benefit from us moving to CIO status. This means that we continue to be registered with the Charity Commission. We will continue to have a registered charity  number, allowing us to fundraise and providing the public with confidence that the charity is appropriately regulated.


Why a new constitution?

The constitution is effectively the ‘rule book’ of our charity and ensures ADSHG is run properly for the benefit of the members. Our current one is nearly ten years old and is no longer in line with Charities Commission best practice, hence we need to update it.


Where and when?

The SGM will begin at 6pm on Sunday 18th November 2018 at the Premier Inn, George Square, Glasgow. Details are in the members’ calendar and seat reservations are available through the ADSHG online Shop here...


Online vote

If you would like to vote on the new constitution and our CIO status, but can’t attend in person in Glasgow, a link will be sent out in an alert. In the meantime, you can see the new proposed new ADSHG constitution here...


What is the medical seminar about?

Following the SGM, Professor Eystein Husebye from Bergen, Norway, will provide a presentation on recent information of interest to the Addison’s community after which he will take questions. Eystein Husebye is Professor and Head of the Dept. of Endocrinology at the University of Bergen and Haukeland University Hospital, in Norway. He did a PhD and specialized training in internal medicine and endocrinology at Uppsala University Hospital in Sweden. Professor Husebye was the lead coordinator for the EU-funded EURADRENAL consortium bringing together endocrinologists across 12 European centres from 2008-2012 to perform clinically relevant research in Addison’s disease. He is the president of the Norwegian Endocrine Society and has published more than 150 papers, mainly about Addison’s disease. Professor Husebye is providing a keynote address to the British Endocrine Society conference the following day.

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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

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