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Families get-together


ADSHG

  • The ADSHG hosts an annual get-together for the families with steroid-dependent children, as part of the organisation's annual general meeting and medical lecture event in London. First held in 2013, this informal get-together is an opportunity to meet others and share experiences.

The annual families get-together usually takes place in June each year and you need to be a member of the ADSHG to attend. To learn more about this year's event, please visit the members' meeting calendar or check the ADSHG newsletter notices.

 

In 2016, for the first time, this event was supported by a specialist adolescent services endocrine nurse. If you are interested to find out more about the ADSHG's support to families, please contact our families coordinator, Debbie Heaton.

 

Because Addison's and related forms of steroid-dependence are exceptionally rare in children, our family members are too scattered for the charity to arrange additional regional or local meetings specifically for families. Instead, we have a dedicated topic area within the members' forum for young people and their families.

 

We have also produced a booklet called 'When a student has Addison's: a guide for schools and parents', written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment. You can download a copy for free from our publications centre.



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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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