Our new website is now live : www.addisonsdisease.org.uk - please update your bookmarks!

Jump to content
Sign in to follow this  

Families get-together


  • The ADSHG hosts an annual get-together for the families with steroid-dependent children, as part of the organisation's annual general meeting and medical lecture event in London. First held in 2013, this informal get-together is an opportunity to meet others and share experiences.

The annual families get-together usually takes place in June each year and you need to be a member of the ADSHG to attend. To learn more about this year's event, please visit the members' meeting calendar or check the ADSHG newsletter notices.


In 2016, for the first time, this event was supported by a specialist adolescent services endocrine nurse. If you are interested to find out more about the ADSHG's support to families, please contact our families coordinator, Debbie Heaton.


Because Addison's and related forms of steroid-dependence are exceptionally rare in children, our family members are too scattered for the charity to arrange additional regional or local meetings specifically for families. Instead, we have a dedicated topic area within the members' forum for young people and their families.


We have also produced a booklet called 'When a student has Addison's: a guide for schools and parents', written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment. You can download a copy for free from our publications centre.

  Report Article
Sign in to follow this  

About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

Get in touch

    Our Online Volunteers

  • pippa sharman
    pippa sharman
  • vsadler
  • annelben
  • frances1
  • suep1954

A dedicated team of volunteers contribute to and support the website, forum, shop, publications centre, video hub plus social media engagement on behalf of the charity.


Important Information

By using this website you are consenting to the use of cookies. Details about their use and how you can adjust your cookie settings are described in our cookie statement.