Jump to content

Personal & life stories

A number of people with Addison's have fascinating personal stories and others amazing life stories to share about their life with Addison's. Here we get to read a few of them...

5 articles in this category

  1. Deana Kenward founded the Addison's Disease Self-Help Group in 1984. Through her hard-work and dedication, our charity has gone from strength to strength in the intervening years, increasing the support and information we are able to provide to people with Addison's and their families. Deana is now the President of the ADSHG and is still involved in the day-to-day running of the Group. This is Deana's account of being diagnosed with Addison's disease and subsequently setting-up the ADSHG, as published in a medical book on endocrinology by Professors G Michael Besser and Michael O. Thorner.

  2. In June 2015, Stuart Jones and his friend Richard Topping climbed Mont Blanc, the highest peak in Western Europe, to raise money for the ADSHG and Great Ormond Street Hospital. Stuart has Addison’s himself, so this was an amazing achievement and we are so grateful to them for choosing to support us in this way.

  3. Featuring in the December 2017 newsletter, we hear the inspirational story of Jan and her assistance dog Rhea, trained to recognise low cortisol levels.

  4. The member-only More personal & life stories section features more members recounting their experiences of living with Addison's and how they manage their condition on a day-to-day basis. Read more here...

  5. John joined ADSHG after reading a magazine article by President Deana Kenward around 2003. In the years since then, he and his wife Pam have become active group members, including regularly hosting social meetings at their home. John writes for us here about his experience of living with Addison's for 66 years.


About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

Get in touch

    Our Online Volunteers

  • kgwhite
  • pippa sharman
    pippa sharman
  • vsadler
  • annelben
  • frances1
  • webmaster
  • suep1954
  • a5037847

A dedicated team of volunteers contribute to and support the website, forum, shop, publications centre, video hub plus social media engagement on behalf of the charity.