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Promoting good medical practice

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The ADSHG has made a number of submissions towards Department of Health consultation exercises on patient safety, access to medications and and good clinical care. Here, we present the main submissions that the charity has made since its 2004 charitable accreditation.

11 articles in this category

  1. Featuring in the June 2018 newsletter, Ken recounts his positive experience when speaking to student paramedics in Liverpool to help raise medical awareness of Addison's among ambulance staff.

    • 99 views
  2. The June 2018 newsletter reports on how a group of ADSHG volunteers attended the South West Ambulance Service Trust Conference in Bristol in order to help raise medical awareness of Addison's. Here, two of those volunteers talk about the experience.

    • 96 views
  3. The ADSHG has made a number of submissions towards Department of Health consultation exercises on patient safety, access to medications and and good clinical care. The charity has also made a submission to the Scottish Medicines Consortium on access to new therapies. Here, we present the main submissions that the charity has made since its 2004 charitable accreditation.

    • 2,772 views
  4. Northumbria University details the impressive steps they have taken to ensure that their students know how to treat steroid dependent patients, both day-to-day and during adrenal crisis. Here, Senior Lecturer Siân O’Dea from Northumbria University details the rationale behind their curriculum and how they teach student nurses to care for steroid dependent patients.

    • 660 views
  5. The endocrine department at Newcastle has pioneered a project to improve patient safety at the hospital, by implementing a system of pop-up alerts on the electronic records of all steroid-dependent patients. Endocrine registrar Anna Mitchell describes how it was done.

    • 132 views
  6. New clinical guidelines for pre-hospital emergency care were published in September 2017 by the national ambulance regulator, the Joint Royal Colleges Ambulance Liaison Committee (JRCALC).

    • 1,542 views
  7. Misunderstandings about the risks to someone who is steroid-dependent can occur at many points within the care pathway – from the ambulance service personnel through to medical clinicians – and can easily become fatal. Important lessons can be learnt from these tragic cases.

    • 814 views
  8. Specialist GP and paramedical journals occasionally publish articles about managing Addison's and other forms of steroid-dependence. Similarly, some of the articles published in the specialist endocrine journals have relevance for the wider medical fraternity, who share responsibility for management of the steroid-dependent patient. Here, we list some of the most recent and topical articles that have been brought to our attention.

    • 4,124 views
  9. The ADSHG has responded to a number of topical issues reported in the British Medical Journal (BMJ), The Lancet, and other medical publications over the years, regarding issues relating to patient care for those with adrenal insufficiency including access to medication, good clinical care and the trust-based nature of the doctor-patient relationship.

    • 4,254 views
  10. The Addison's Disease Self-Help Group supports the Kate Granger Hello, my name is campaign to promote good doctor-patient relationships and hopes to encourage medical professionals everywhere to adopt its approach. Here, an ADSHG member – who knew Kate Granger as a personal friend – explains how it came about.

    • 2,205 views
  11. In the March 2014 newsletter, one of our members, Siobhan, describes how her employers held a first-aid training session, where participating first aiders learnt how to administer an intra-muscular injection.

    • 96 views
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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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