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Research and information

The ADSHG helps support and provide impetus to research into Addison's. We can provide assistance with recruiting, limited medical grant funding and in-kind assistance for medical research.

10 articles in this category

  1. The ADSHG is able to make small grant funding to a limited number of researchers each year, for projects that will advance good clinical practice in the diagnosis and management of Addison's disease.

  2. The ADSHG offers an annual prize at the Society for Endocrinology BES conference, for a nurse-led research project that advances steroid awareness and patient safety.

  3. The ADSHG assists leading UK endocrine units to recruit participants for medical research projects from among the ADSHG’s membership, following application and approval by the trustees and Addison's Clinical Advisory Panel (ACAP).

  4. The ADSHG receives regular approaches from researchers who are seeking our assistance with recruiting participants for their scientific projects. These approaches range from requests to publicise online questionnaires, through assistance in sourcing participants for qualitative interviews or focus groups, to requests to assist with long-term clinical trials.

  5. From 1997 onwards, the ADSHG has conducted a number of surveys to understand the views and experiences of our members in relation to their diagnosis, treatment and day-to-day management of Addison's.

  6. In August this year, Exeter University hosted a workshop on hormone dynamics in pituitary and adrenal systems. The December 2017 newsletter featured a report from one of our members who was invited to attend.

  7. Dr Anna Mitchell from Newcastle University was awarded a second medical research grant of £5,000 by the ADSHG in 2016, to progress further aspects of the genetic research for which she had been awarded a grant in 2015. Here, she explains the purpose of her research.

  8. Dr Earn Gan of Newcastle University was awarded a medical research grant of £5,000 by the ADSHG in 2016 towards her research project to uncover the corticosteroid-responsive biomarkers for steroid-dependent patients. Here she explains about her research.

  9. Here, Dr Ian Ross from Capetown University explains the research project he is undertaking to explore possible infectious causes of Addison's including HIV and tuberculosis, by screening patients with advanced AIDS for Addison's. Dr Ross was awarded a medical research grant of £5,000 towards this research from ADSHG's Outreach fund in 2017.

  10. In 2015, the ADSHG's medical research grant was awarded to Dr Anna Mitchell, Academic Clinical Lecturer at the Institute of Genetic Medicine, Newcastle University. Below, she explains the study she carried out with this award. Preliminary findings from Dr Mitchell's associated stream of genetic research were presented at ENDO 2016, the annual conference of the US Endocrine Society which can be read in the abstract here.


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The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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