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Research and information

The ADSHG helps support and provide impetus to research into Addison's. We can provide assistance with recruiting, limited medical grant funding and in-kind assistance for medical research.

14 articles in this category

  1. As reported in the September 2018 newsletter, Julie tells how she volunteered to participate in the ULTRADIAN study at Bristol and invites members to do the same.

    • 247 views
  2. The ADSHG Alfred Potter Memorial Medical Research Award is an annual award to support medical research projects that will advance good clinical practice in the management of Addison’s disease. In the first of our reports from ADSHG grant recipients featured in the September 2018 newsletter, Dr Earn Gan provides an update on her work.

    • 212 views
  3. The annual ADSHG Alfred Potter Memorial Medical Research Award supports medical research projects that will advance good clinical practice in the management of Addison’s disease. In the second of our reports from ADSHG grant recipients featured in the September 2018 newsletter, Lisa Shepherd explains the purpose of her research study.

    • 114 views
  4. The third of our reports from ADSHG grant recipients, featured in the September 2018 newsletter, outlines the aim of the study being undertaken by Dr Robert Murray and Dr Khyatisha Seejore. The ADSHG Alfred Potter Memorial Medical Research Award is made annually to support medical research projects into the management of Addison’s disease. 

    • 210 views
  5. The ADSHG is able to make small grant funding to a limited number of researchers each year, for projects that will advance good clinical practice in the diagnosis and management of Addison's disease.

    • 1,793 views
  6. The ADSHG offers an annual prize at the Society for Endocrinology BES conference, for a nurse-led research project that advances steroid awareness and patient safety.

    • 1,753 views
  7. The ADSHG assists leading UK endocrine units to recruit participants for medical research projects from among the ADSHG’s membership, following application and approval by the trustees and Addison's Clinical Advisory Panel (ACAP).

    • 1,700 views
  8. The ADSHG receives regular approaches from researchers who are seeking our assistance with recruiting participants for their scientific projects. These approaches range from requests to publicise online questionnaires, through assistance in sourcing participants for qualitative interviews or focus groups, to requests to assist with long-term clinical trials.

    • 1,333 views
  9. From 1997 onwards, the ADSHG has conducted a number of surveys to understand the views and experiences of our members in relation to their diagnosis, treatment and day-to-day management of Addison's.

    • 2,011 views
  10. In August this year, Exeter University hosted a workshop on hormone dynamics in pituitary and adrenal systems. The December 2017 newsletter featured a report from one of our members who was invited to attend.

    • 442 views
  11. Dr Anna Mitchell from Newcastle University was awarded a second medical research grant of £5,000 by the ADSHG in 2016, to progress further aspects of the genetic research for which she had been awarded a grant in 2015. Here, she explains the purpose of her research.

    • 1,877 views
  12. Dr Earn Gan of Newcastle University was awarded a medical research grant of £5,000 by the ADSHG in 2016 towards her research project to uncover the corticosteroid-responsive biomarkers for steroid-dependent patients. Here she explains about her research.

    • 1,033 views
  13. Here, Dr Ian Ross from Capetown University explains the research project he is undertaking to explore possible infectious causes of Addison's including HIV and tuberculosis, by screening patients with advanced AIDS for Addison's. Dr Ross was awarded a medical research grant of £5,000 towards this research from ADSHG's Outreach fund in 2017.

    • 412 views
  14. In 2015, the ADSHG's medical research grant was awarded to Dr Anna Mitchell, Academic Clinical Lecturer at the Institute of Genetic Medicine, Newcastle University. Below, she explains the study she carried out with this award. Preliminary findings from Dr Mitchell's associated stream of genetic research were presented at ENDO 2016, the annual conference of the US Endocrine Society which can be read in the abstract here.

    • 321 views

About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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