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ADSHG surveys


  • From 1997 onwards, the ADSHG has conducted a number of surveys to understand the views and experiences of our members in relation to their diagnosis, treatment and day-to-day management of Addison's.

In 2003, this led an international Addison's survey project, covering members of the Addison's support groups in the UK, Canada, Australia and New Zealand. In 2006, the ADSHG conducted a further mini-survey of its UK members' emergency experiences. In 2013, it led a UK-wide survey project covering members of the four national support groups for people with steroid-dependent conditions: the ADSHG, Pituitary Foundation, Living with CAH and AMEND.


Below, we present summaries of these various research findings. These findings were all presented at the annual Society for Endocrinology conferences to doctors, nurses and scientists working on hormone-related conditions.


The ADSHG's member surveys are funded out of general, community donations to the charity, as part of our ongoing support to members. If you wish to make a contribution towards the work of the ADSHG, you can do so here:

The ADSHG's member survey analysis has also been discussed in the following academic articles:

The 1997 ADSHG member survey report can be viewed in the ADSHG publications centre here.

You can read about similar epidemiological studies from other countries in the open access articles listed below.

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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

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