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  • When a student has Addison's: a guide for schools and parents By ADSHG

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    The ADSHG booklet 'When a student has Addison's: a guide for schools and parents' was written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment.   This leaflet was developed jointly by ADSHG members Sue Chambers, Debbie Heaton and Katherine White. The ADSHG also wishes to thank Juliet Edwards, Jennifer Billingham, Sue Elford and Lindsey Farrow for reviewing the content.   The booklet covers the following information:   1. What is Addison's 2. Day to day symptoms 3. Managing medication and fluids 4. Medical jewellery and other documentation 5. The Individual Healthcare Plan 6. Absences and support for education missed 7. Outside the classroom: school trips and sports 8. Exam arrangements 9. Transition to another school 10. Responding to sickness, injury and emergencies 11. Legislative guidance and further information 12. Suggested Individual Healthcare Plan template 13. Other essential contacts   Our thanks to Professors John Wass, Simon Pearce, Wiebke Arlt, Dr Trevor Howlett and consultant endocrine nurse Phillip Yeoh of the Addison’s Clinical Advisory Panel for their guidance and input.   This leaflet is © ADSHG December 2015. It may be copied for educational or personal use or by medical practitioners for the education of their patients. Otherwise, it should not be reproduced without written permission from the ADSHG.
  • ADSHG Newsletter 131 – March 2018 By ADSHG

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    Addison's Disease Self-Help Group newsletter, issue 131, March 2018
    Welcome to the spring 2018 edition of the ADSHG newsletter. This issue contains exciting drug news on a new hydrocortisone formulation for children and a comprehensive Brexit update. Whether you are looking to get fit or already participating in a sport, Dr Rob Andrews offers lots of instructive advice about staying on top of an exercise programme with Addison's, while Jane Hodgkin reveals how words and phrases we use influence our moods and outlook. Recent medical research news, an ambulance update, fundraising stories, a website browsing guide and news on upcoming meetings complete this informative spring edition.   Page 1: Spring is in the air
    Complete the ADSHG member survey!
    Great South Run 2018   Page 2: From the President
    About the money
    Interested in becoming a trustee?   Page 3: Recent drug news
    Diurnal’s Alkindi gets the go-ahead
    Emergency supply from community pharmacies   Page 4: Brexit briefing
    Prepare for the worst: hope for the best   Page 5: Adrenal medicines 
    Adrenal medicines in the UK and Ireland
    European Medicines Agency prepares to leave   Page 6: Recent medical research
    Infectious causes of Addison’s
    Swedish patients with Autoimmune Addison’s are not overweight   Page 7: Life skills
    Words for feeling better or worse
    Register with your ambulance trust   Page 8: Ambulance update
    Turbulence on the ambulance scene
    A Christmas shopping surprise   Page 9-11: Exercise and Addison's
    Bangkok Bulletin of teeth brushing and 750km
    Rare Diseases Day Tweet chat
    Powered by Krispy Kremes
    Staying on top of an exercise programme with Addison’s   Page 12: Around the group
    Wibbly wobbly webby   Page 12-13: Fundraising
    A guide for new hosts holding an Addison’s social meeting
    Fundraising stories
    Tuna bake recipe   Page 14-15: Social update
    Meeting reports
    School charity events
    2018 social and medical meetings   Page 16: The back page
    2018 subscription rates
    Endocrine conferences 2018
  • ADSHG medical history form By ADSHG

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    The new medical summary form is an easy way to record the medications you are currently taking as an aide-mémoire and as a guide for medical professionals, when my medical records are unavailable and your medications need to be known.   The leaflet is © ADSHG March 2017. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG
  • ADSHG surgical guidelines By ACAP

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    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed for the ADSHG by our Clinical Advisory Panel.   They explain what level of extra medication and monitoring you will need in the event of most types of surgery or dental work. If you are having elective surgery in hospital, for example a hip operation, it would be sensible to give your surgeon and anaesthetist a copy of the guidelines well in advance of your surgery date. It is also advisable to take the guidelines with you when you go in to hospital and discuss them with your nursing staff, so that they are aware of the post-operative care you need.   These guidelines:   a. List the ten main types of surgical procedure, each requiring a different level of steroid cover   b. Specify the glucocorticoid medication and post-operative treatment requirements for each type of procedure in an easy-to-read table   c. Bring together the most up-to-date endocrine knowledge on cortisol replacement in the steroid-dependent patient   d. Reflect a prudent level of steroid cover that can safely be administered by non-endocrinologists.   These guidelines apply to all individuals who are steroid-dependent, so they are relevant to people with hypopituitarism as well as Addison's.   The leaflet is © ADSHG May 2017. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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