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  • ADSHG surgical guidelines By ACAP

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    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed for the ADSHG by our Clinical Advisory Panel.   They explain what level of extra medication and monitoring you will need in the event of most types of surgery or dental work. If you are having elective surgery in hospital, for example a hip operation, it would be sensible to give your surgeon and anaesthetist a copy of the guidelines well in advance of your surgery date. It is also advisable to take the guidelines with you when you go in to hospital and discuss them with your nursing staff, so that they are aware of the post-operative care you need.   These guidelines:   a. List the ten main types of surgical procedure, each requiring a different level of steroid cover   b. Specify the glucocorticoid medication and post-operative treatment requirements for each type of procedure in an easy-to-read table   c. Bring together the most up-to-date endocrine knowledge on cortisol replacement in the steroid-dependent patient   d. Reflect a prudent level of steroid cover that can safely be administered by non-endocrinologists.   These guidelines apply to all individuals who are steroid-dependent, so they are relevant to people with hypopituitarism as well as Addison's.   The leaflet is © ADSHG May 2017. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.
  • When a student has Addison's: a guide for schools and parents By ADSHG

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    The ADSHG booklet 'When a student has Addison's: a guide for schools and parents' was written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment.   This leaflet was developed jointly by ADSHG members Sue Chambers, Debbie Heaton and Katherine White. The ADSHG also wishes to thank Juliet Edwards, Jennifer Billingham, Sue Elford and Lindsey Farrow for reviewing the content.   The booklet covers the following information:   1. What is Addison's 2. Day to day symptoms 3. Managing medication and fluids 4. Medical jewellery and other documentation 5. The Individual Healthcare Plan 6. Absences and support for education missed 7. Outside the classroom: school trips and sports 8. Exam arrangements 9. Transition to another school 10. Responding to sickness, injury and emergencies 11. Legislative guidance and further information 12. Suggested Individual Healthcare Plan template 13. Other essential contacts   Our thanks to Professors John Wass, Simon Pearce, Wiebke Arlt, Dr Trevor Howlett and consultant endocrine nurse Phillip Yeoh of the Addison’s Clinical Advisory Panel for their guidance and input.   This leaflet is © ADSHG December 2015. It may be copied for educational or personal use or by medical practitioners for the education of their patients. Otherwise, it should not be reproduced without written permission from the ADSHG.
  • ADSHG medical history form By ADSHG

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    The new medical summary form is an easy way to record the medications you are currently taking as an aide-mémoire and as a guide for medical professionals, when my medical records are unavailable and your medications need to be known.   The leaflet is © ADSHG March 2017. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG
  • ADSHG Newsletter 130 - December 2017 By ADSHG

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    Addison's Disease Self Help Group newsletter, issue 130, December 2017   Welcome to the winter 2017 edition of the ADSHG newsletter. This issue is bursting at the seams with news - essential drug updates, work on ambulance awareness and conference reports from members, as well as members' personal stories, fundraising updates and meeting dates.    We wish all our members a very Happy Christmas and a healthy New Year!   Page 1: Happy New Year 2018, everyone!
    2018 subscription rise
    Online adrenal questionnaire now live   Page 2: From the President
    About the money   Page 3-4: Recent news
    New ambulance guidelines on adrenal crisis
    Julie's ambo update: moving the goalposts?   Page 5-6: Drug news
    New shortage of liquid injectable hydrocortisone
    Chronocort update: cortisol replacement   Page 7-9: Awareness update
    Exeter workshop on hormone dynamics
    CMA decision on unfair drug pricing
    ADSHG at the medical conferences
    ADSHG nursing prize awarded to ADSHG trustee!   Page 10: Around the group
    ADSHG submission to Health Committee on Brexit - medicines
    Wibbly wobbly webby   Page 10-12: Personal stories
    Living with a cortisol alert dog
    66 years with Addison's
    Romance is not just for the young   Page 13: Fundraising update
    Cookery book launch
    Runners' personal bests!   Page 14-15: Social update 
    Gill's goodbye column
    Meeting reports
    2018 social and medical meetings
    2018 fundraising events   Page 16: The back page
    Conference dates
    2018 subscription rates
    ADSHG trustees and officers

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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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