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Newsletters (members only)

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Member-only newsletters published quarterly with features and articles about living with Addison's and group news.

54 files

  1. Free

    ADSHG Newsletter 129 - September 2017

    Addison’s Disease Self Help Group newsletter, issue 129, September 2017
     
    Welcome to the autumn 2017 edition of the ADSHG newsletter. This issue announces the arrival of the Addison’s cookery book, a enticing collection of healthy recipes compiled by Sue Chambers, with the story of how it came together. Our central feature reflects on June’s successful and enjoyable annual general meeting and medical lecture. Additionally, we report on the latest drug news, ambulance awareness and the ADSHG medical research grant, as well as the launch of the upgraded website.
     
    This issue of the newsletter also contains the 2017 Christmas catalogue order form insert (included as an extra download file here), highlighting items – including those all-important stocking fillers – available to purchase from our online shop.

    Page 1: Hot news from the kitchen
    Christmas catalogue 2017
    Don’t forget your flu vaccine
     
    Page 2: From the President
    About the money
     
    Page 3: Sue’s cookbook
     
    Page 4: Brexit update
    Customs uncertainty: possible drug supply disruptions
     
    Page 5-6: ADSHG and UK news
    Repeat prescription length and reserve supply
    Winter flu vaccine reminder
    Medical research grant report: uncovering biomarkers for steroid-dependent patients
    Fludrocortisone price hike causes hardship for dog owners
    Natural killer cells and Addison’s
     
    Page 7: Around the group
    Talking to Sheffield medical students
    Injectable hydrocortisone in Ireland
    Price watch
     
    Pages 8-10: AGM report
    Personal impressions from a volunteer
    Finance report
    Social media report
    Minutes of the 2017 AGM 
     
    Page 11: Ambulance awareness
    Ambo update: get yourself registered!
    East of England ambulance to the rescue
    Spotlight on Living Well
     
    Page 12: Personal experience
    Molly’s mind -  blogging my way through life
     
    Page 13: Fundraising update
    Donations report
     
    Page 14-15: Social update
    Gill’s social corner
    2017/8 social and medical meetings
     
    Page 16: The back page
    Reminders
    Conference dates
    2018 subscription rates
    ADSHG trustees and officers
     

    558 downloads

    Updated

  2. Free

    ADSHG Newsletter 128 - June 2017

    Addison's Disease Self Help Group newsletter, issue 128, June 2017
     
    Welcome to the summer 2017 edition of the ADSHG newsletter. This issue reports promising developments towards the new Zeneo autoinject device. We have more positive news on A&E awareness in Ireland and a report from Dr Anna Mitchell on her ongoing genetic analyses. In addition, we focus on the website updates to Living well and the launch of our injection videos on YouTube.
     
    In this issue
     
    Page 1: Planning your summer get-away?
    AGM and medical lecture tickets
     
    Page 2: From the President
    About the money
     
    Page 3–4: Recent drug news
    Latest news on the Zeneo needle-free auto-injection device
    Infacort update
    Brexit and the dispute over the European Medicines Agency relocation
     
    Page 5–6: ADSHG news
    Addison’s Ireland progresses A&E awareness
    Society for Endocrinology conference
    Grant for uncovering more about the genetic susceptibility of autoimmune Addison’s
    Updated surgical guidelines
     
    Page 7: Ambulance scene
    Have you seen the ambulance Forum makeover?
    North West ambulance to the rescue
    Registering with your local ambulance trust
     
    Page 8: Website news
    Spotlight on updates to Living well, Ambulance and A&E forums and YouTube injection video launch
     
    Page 9–10
    Help with applying to university and support available through the Disability Living Allowance
     
    Page 11–12: Personal stories
    Ibiza eye-opener
    Injection video saves the day in Zurich
    Food poisoning risk from broken salad leaves
     
    Page 13: Fundraising update
    Pub quiz night
    Donations report
     
    Page 14–15: Social update
    Gill’s social corner
    2017 social and medical meeting
     
    Page 16: The back page
    Reminders
    2017 subscriptions
    ADSHG trustees and officers

    582 downloads

    Updated

  3. Free

    ADSHG Newsletter 127 - March 2017

    Addison's Disease Self Help Group newsletter, issue 127, March 2017
     
    Welcome to the March 2017 edition of the ADSHG newsletter. This issue has exciting news about drug developments on the horizon for this year as well as discussing the potential impacts of Brexit on patients. Additionally, we look at our Group's ongoing efforts to build positive diaglogue with medics in the UK and Ireland and focus on our new website updates.
     
    In this issue:
     
    Page 1: Get running
    AGM medical lectures and tickets
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent drug news
    New needle-free injection device in the pipeline
    Infacort update
    Brexit and European Medicines Agency
    Future access to orphan drugs
     
    Pages 5-6: Ambulance scene
    Ambulance regulator invites our input
    Nursing and medical staff shortages set to increase
    What's new on the ambulance scene?
     
    Pages 6-7: Recent news
    New website tasting menu and new Living Well dishes to try
    British Society for Paediatric Endocrinology annual conference
     
    Pages 8-10: Features
    Coping with ... your GP practice
    Famous lives: Saint Elizabeth of the Trinity
     
    Pages 11-12: Personal stories
    Office first aid: ADSHG videos to the resuce
    Bootneck recovery
    Windermere cold plunge
     
    Page 13: Fundraising update
     
    Pages 14-15: Social update
    Gill's social corner
    2017 social and medical meetings
     
    Page 16: The back page
    Reminders
    2017 subscriptions

    599 downloads

    Submitted

  4. Free

    ADSHG Newsletter 126 - December 2016

    Addison's Disease Self Help Group newsletter, issue 126, December 2016
     
    Welcome to the December 2016 edition of the ADSHG newsletter. This issue has positive news about drug developments on the horizon for 2017 as well as a report of our attendance at the recent Society for Endocrinology conference. Additionally, we feature several personal stories about the highs and lows of steroid-dependence.
     
    In this issue:
     
    Page 1: Good news for the new year
    It's subscription time
     
    Page 2: From the President
    About the money
     
    Pages 3-5: Recent drug news
    Infacort low dose hydrocortisone gets closer to launch
    Uncertainty over future access to EMA-licensed new drugs
    ADSHG represented at the the Scottish Medicines Consortium hearing on Plenadren
     
    Pages 6-7: UK news
    ADSHG at the endocrine conference
    ADSHG autumn medical seminar: Shoreham-by-Sea
     
    Page 8: ADSHG news
    Welcome to our new ambulance awareness coordinator
    Wibbly, wobbly, webby
     
    Pages 8-11: Personal stories
    Marty Clarke, Gaelic dream team football player
    My lactose-free hydrocortisone journey
    Conquering the London marathon
     
    Pages 12-13: Fundraising update
     
    Pages 14-15: Social corner
    Gill's social corner
    2016/17 social and medical meetings
     
    Page 16: The back page
    Reminders
    2017 subscriptions

    565 downloads

    Updated

  5. Free

    ADSHG Newsletter 125 - September 2016

    Addison's Disease Self Help Group newsletter, issue 125, September 2016
     
    Welcome to the September 2016 edition of the ADSHG newsletter. After what has been an eventful few months for the country, this issue is packed full with news from our members and supporters on initiatives to support better care for people with Addison’s. This issue of the newsletter also contained a Christmas shop order form insert, highlighting items available to purchase from our online shop.
     
    In this issue:
     
    Page 1: Our community of supporters
    With this issue
    Chinese emergency treatment translations
     
    Page 2: From the President
    About the money
     
    Page 3: Recent drug news
    Campaign to add steroids for Addison's to Critical Medicines List
    ADSHG submission to the Scottish Medicines Consortium on Plenadren
     
    Page 4: UK news
    Brexit - what are the implications?
     
    Page 5: Life skills
    Coping with ... telling family and friends
    Prevention is better than cure - get a flu vaccination this winter
    ADSHG Twitter Chat raises awareness
    Register your Addison's with your local ambulance trust
     
    Page 6: Research news
    Uncovering the purpose of the CYP21A1P pseudogene
     
    Pages 7-9: ADSHG AGM and annual report
    A social and informative day out
    Treasurer's report
    Publications and media team report
     
    Page 10: Personal stories
    Kate Granger - #hellomynameis
     
    Page 11: Personal experience
    On the move with Addison's
     
    Pages 12-13: Fundraising update
     
    Pages 14-15: Social corner
    Gill's social corner
    2016 social and medical meetings
     
    Page 16: The back page
    Reminders
    2016 subscription rate

    588 downloads

    Updated

  6. Free

    ADSHG Newsletter 124 - June 2016

    Addison's Disease Self Help Group newsletter, issue 124, June 2016
     
    Welcome to the June 2016 edition of the ADSHG newsletter. This issue is packed full of news about some surprising recent drug developments, some positive ambulance news, the forthcoming relaunch of our main website, recent marathon triumphs of our fundraising runners, and some riveting personal travel stories. In this issue:
     
    Page 1: Making the most of the summer holidays
    New in the ADSHG shop
    In this issue
     
    Page 2: From the President
    About the money
    Emergency injection videos
     
    Page 3: Medications update
    Lactose-free hydrocortisone
    Fludrocortisone out of the fridge!
    New round hydrocortisone
    New pack design, same product
    2.5mg hydrocortisone pellets: not so strong
     
    Pages 4-5: The new look ADSHG website arrives
     
    Page 6: Ambulance news
    Calling 999: hints and tips
     
    Page 7: Conference news
    ADSHG at medical conferences
     
    Pages 8-9: Travel with Addison's
    Holiday season
    You can never be too sure
    Rare Disease Day: raising awareness of Addison's
     
    Pages 10-12: Personal experience
    A sky-high crisis
    The doctor's view...
    Fulfilling a dream: running the London marathon
     
    Pages 12-13: Fundraising
     
    Pages 14-15: Social corner
    Gill's social corner
    2016 social and medical meetings
     
    Page 16: The back page
    Reminders
    2016 subscription rate

    697 downloads

    Updated

  7. Free

    ADSHG Newsletter 123 - March 2016

    Addison's Disease Self Help Group newsletter, issue 123, March 2016
     
    Welcome to the spring 2016 issue of the ADSHG newsletter. This issue is packed with riveting personal stories, all with a happy ending. In this issue:
     
    Page 1: Springing into spring
    Video launch
    Marathon mission
     
    Page 2: From the President
    About the money
    Meet the new clinical panel
     
    Pages 3–4: Recent drug news
    Fludrocortisone scare
    Hydrocortisone concerns
    Hydrocortisone 2.5mg pellets: are they an alternative?
     
    Pages 4–5: Ambulance news
    Ambulance protocols: Irish success story
    East of England ambulance protocols
     
    Pages 6–9: Personal experience
    ADSHG videos help prepare for emergency injection
    Our first emergency injection experience
    Diagnosis slow: sodium low
    The doctor's viewpoint
     
    Pages 9–10: Around the group
    Hydrocortisone and levothyroxine: double trouble or harmonious duet?
     
    Pages 10–13: Fitness focus
    Land's End to John O'Groats: the long way back to the top
    Capital Marathon Challenge
    Running to success
     
    Pages 13–14: Fundraising
     
    Pages 14–15: Social corner
    Gill's social corner
    2016 social and medical meetings
     
    Page 16: Back page
    Reminders
    2016 subscription rate

    796 downloads

    Updated

  8. Free

    ADSHG Newsletter 122 - December 2015

    Addison's Disease Self Help Group Newsletter, issue 122, December 2015
     
    ​Welcome to the winter 2015 issue of the ADSHG newsletter. This issue celebrates the achievements of our members and their families in 2015, during which they have climbed mountains, swum the ocean and run races on our behalf. In this issue:
     
    Page 1: A box of celebrations at Christmas
    ADSHG schools leaflet now online
    Direct Debit: with this issue
     
    Page 2: From the President
    About the money
     
    Pages 3-5: Mont Blanc special
    Climbing Mont Blanc - with Addison's and Bessie Bear
    High altitude climbing with Addison's - the practicalities
     
    Pages 6-7: Conference report
    ADSHG at the Edinburgh Endocrine Conference 2015
    Feedback from volunteers on our stand
    ADSHG posters
     
    Pages 8-9: Around the group
    Edinburgh seminar: observations from the floor
    Register with your ambulance trust
    Remember your flu vaccine
    Send a card this Christmas
    Wibbly, Wobbly, Webby
    Pulses study update
     
    Pages 10-12: Personal experience
    Bangkok life: nothing like an early start
    European odyssey
    Have a very restful Christmas
    Donations report
     
    Pages 12-15: Social corner
    Margaret's social corner
    Addison's Ireland meeting: Limerick
    Hospital meeting a huge success
    Social and medical meetings
     
    Page 16: Back page
    Reminders
    2016 subscription rates
     
    This issue of the newsletter also contained a special fundraising insert highlighting our members' and supporters' fundraising achievements throughout 2015.

    462 downloads

    Updated

  9. Free

    ADSHG fundraising special - December 2015

    This special insert to the ADSHG December 2015 newsletter highlights the wonderful fundraising achievements of our members and supporters throughout the year.
     
    It includes:

    ADSHG at the Great Runs: Great North Run and Great South Run Dragonera open sea swim Tameside's got talent ... in aid of ADSHG Ian's fundraising update

    30 downloads

    Updated

  10. Free

    ADSHG Newsletter 121 - September 2015

    Addison's Disease Self Help Group newsletter, issue 121, September 2015
     
    Welcome to the autumn 2015 newsletter. This issue starts with a controversial topic: on page 3, we respond to recent claims from The Times columnist Tanya Byron about the psychological health of people with Addison’s. Perhaps because she has only a passing familiarity with the effects of high-dose prednisolone, Prof Byron seems unaware of the difference between the side effects from therapeutic steroid doses that may be more than ten times higher than replacement, and the restorative, life-saving benefits of replacement hydrocortisone.
     
    Page 1: Front page
    Because steroids are for life
    Mistaken media views on Addison's
    Efcortesol update
     
    Page 2: From the President
    About the money
     
    Page 3: In the media
    Media comments on adrenal insufficiency and mental health: the ADSHG viewpoint
     
    Pages 4-5: Personal experience
    Nathan Gafuik: Crisis in Moscow
    Happy to inject!
     
    Page 6: Irish news
    Addison's Ireland news
    ADSHG at European Congress of Endocrinology
     
    Pages 7-9: ADSHG Annual Report 2014
    Chair's report to the AGM
    A day in the capital
    Treasurer's report
    Publications & media team report
     
    Pages 10-11: Around the group
    What's new with flu?
    Join our letter writing campaign
    Alfred Potter memorial medical research award
    Update: out-of-date Medic Exempt fines
    Are you red flagged?
    Pharmacy labels
     
    Page 12: Personal experience
    Why feedback to ambulance trusts is important: my experience
    Paramedics: the frontline perspective
     
    Page 13: Fundraising reports
    Ian's £undraising update
     
    Pages 14-15: Social reports
    Jan's social corner
    Wibbly Wobbly Webby
    2015 social & medical meetings
     
    Page 16: Back page
    Reminders
    2015 subscription rates

    76 downloads

    Updated

  11. Free

    ADSHG Newsletter 120 - June 2015

    Addison's Disease Self Help Group newsletter, issue 120, June 2015
     
    Welcome to the summer 2015 newsletter. This issue takes an optimistic punt on the British weather – or our members’ overseas travel plans – and is packed full with hot weather and travel advice. You can find out how expert traveller Nathan Gafuik, the Canadian gymnast with Addison’s, handles long haul flights when he travels to international competitions, on page 5. And you can discover how ADSHG trustee Andrew is adapting to life in colourful, crowded, humid Bangkok. Ex-pat ADSHG member Yvonne explains how she survives in the searing Australian summers.
     
    Page 1: Front page
    Will this be the barbecue summer?
    Direct debit paper mandates
    Thai and Arabic emergency treatment translations
     
    Page 2: From the President
    About the money
     
    Page 3: ADSHG video appeal
    Self-stabbing for beginners: a how-to guide
    Further Efcortesol delay
     
    Pages 4-7: Travel with Addison's
    Handling the heat at home and abroad
    Nathan Gafuik: travelling the world
    Bangkok life
    Ten tip on how to manage your Addison's while on the road in Thailand
    Thailand travel tips: the doctor's view
    Holiday reminders
     
    Pages 8-9: Nursing awareness
    Addison's on the Northumbria curriculum
     
    Pages 10-11: Around the group
    Have you fallen off the list?
    Ambulance registration in the south west
    Genetic research: give blood
    Never Events framework 2015
    The true cost of prescriptions
    Is your Medic Exempt still valid?
     
    Page 12: Personal experience
    Our first emergency injection
     
    Page 13: Fundraising reports
    Ian's £undraising bit
    Wibbly Wobbly Webby
     
    Pages 14-15: Social reports
    Jan's social corner
    2015 social & medical meetings
     
    Page 16: Back page
    Reminders
    2015 subscription rates

    97 downloads

    Updated

  12. Free

    ADSHG Newsletter 119 - March 2015

    Addison's Disease Self Help Group, issue 119, March 2015
     
    Welcome to the spring 2015 newsletter. Lifestyle and exercise are the hot new topics in this issue. Canadian gymnast Nathan Gafuik, who has Addison’s and took part in the recent Glasgow Commonwealth Games, shares his favourite foods with us. So does he ever do McDonald’s? Find out for yourself on page 5.
     
    Page 1: Front page
    New year, new you?
    Subscription rises 2015
    New medical research appeal
     
    Page 2: From the President
    About the money
     
    Page 3: Recent drug news
    Efcortesol shortage: the latest
     
    Page 4: ADSHG membership questionnaire
    Questionnaire results
     
    Pages 5-6: Living well
    Nathan Gafuik: my approach to diet and nutrition
    Exercise, cortisol and me...
     
    Page 7: Clinical trials
    Volunteers wanted for the Pulses study
     
    Pages 8-9: Around the group
    Bad drug interactions
    Join our letter writing campaign
    Is your name still on the list?
    Steroid education evenings in Oxford
     
    Pages 10-11: Personal experience
    Being a parent to a child with Addison's
     
    Page 11-13: ALD and Addison's
     
    Page 13: Fundraising report
    Ian's £undraising update
     
    Pages 14-15: Social report
    Jan's social corner
    2015 social & medical meetings
     
    Page 16: Back page
    Reminders
    2015 subscription rates

    84 downloads

    Updated

  13. Free

    ADSHG Newsletter 118 - December 2014

    Addison's Disease Self Help group newsletter, issue 118, December 2014
     
    Welcome to the winter 2014 newsletter. There is good news and bad news in this issue. The bad news is about the shortage of injectable liquid hydrocortisone – Efcortesol – as you can read on page 3. The rest of the newsletter is more positive, beginning with a diary exclusive from Nathan Gafuik, the 29-year old with Addison’s who led the Canadian gymnastics team at the Glasgow Commonwealth Games this summer.
     
    Page 1: Front page
    ...and a healthy new year
    Subscription rises 2015
     
    Page 2: From the President
    About the money
     
    Page 3: Recent drug news
    Efcortesol shortage
     
    Pages 4-5: Personal experience
    Glasgow Commonwealth Games: Nathan Gafuik diary exclusive
     
    Pages 6-9: 2014 AGM
    Chair's welcome
    Observations from the floor
    Treasurer's report
    Facebook report
    Member's feedback
     
    Pages 10-11: Around the group
    NHS hospital safety consultation
    Volunteers needed: endocrine conferences 2015
    Nursing awareness: your help needed
    CAH is Us hosts London seminar
     
    Page 12: More drug news
    Prednisolone pricing controversy continues
     
    Pages 13-15: Social reports
    Jan's social corner
    2015 social meetings
     
    Page 16: Back page
    Reminders
    Subscription rates

    44 downloads

    Updated

  14. Free

    ADSHG Newsletter 117 - September 2014

    Addison's Disease Self Help Group newsletter, issue 117, September 2014
     
    Welcome to the autumn 2015 newsletter. The AGM and medical lecture on 1 November will be our ADSHG “party” to celebrate 30 successful years as a support group for people with Addison’s and their families. This November also marks the 10th anniversary of our accreditation, as a charity formally registered with the Charity Commission. We will be celebrating that important milestone, too. There will be cake and balloons to go with the sandwich lunch at 1pm, which will be followed at 2pm by the 12th annual general meeting and 13th medical lecture of the ADSHG.
     
    Page 1: Front page
    Come to the party on 1 November
    With this issue
    Tell your friends: Great South Run 2014
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent drug news
    Spotlight on Diurnal
    Prednisolone pricing controversy
     
    Page 5: Medical news
    Making hospital visits safer
     
    Page 6: Life skills
    Coping with fear of hospitals
     
    Page 7: Personal experience
    Bad bugs strike again
     
    Pages 8-9: Around the group
    Red flags for the ambo
    What's new with flu
    Care.data concerns: update
    Nursing awareness: Staffordshire replies
     
    Pages 10-11: Meeting reports
    EU nurses conference: Wroclaw
    Spain: a dream come true
     
    Page 12: Personal experience
    Google gives the diagnosis
     
    Pages 12-13: Fundraising reports
    Ian's £undraising bit
     
    Pages 13-15: Social reports
    Jan's social corner
    2014 social meetings
     
    Page 16: Back page
    Subscriptions
    Reminders

    51 downloads

    Updated

  15. Free

    ADSHG Newsletter 116 - June 2014

    Addison's Disease Self Help Group newsletter, issue 116, June 2014
     
    Welcome to the summer 2014 newsletter. This autumn marks our 30th anniversary, and we will be duly celebrating with cake and balloons at the 1 November AGM and medical lecture. The ADSHG wears its history with pride, and can boast an impressive growth from humble beginnings, as you can read in the President’s column on page 2. We will be toasting Deana, our founder and President
    – and the future success of her little group – on 1 November at the AGM.
     
    Page 1: Front page
    Celebrating the big 3-0
    Help shape the next 30 years: give us your views
     
    Page 2: From the President
    About the money
     
    Page 3: Recent drug news
    New generic 100mg hydrocortisone
    Promising developments with Chronocort
     
    Pages 4-5: Recent news
    Medical jewellery: there is an alternative
     
    Pages 6-7: Around the group
    Nursing awareness: good news from Wales
    Ambulance update
     
    Pages 8-9: Conference news
    Endocrine conference Liverpool 2014
    Steroid education: key to success
     
    Pages 10-12: Personal experience
    Stabbing the President
    Kuwait calling: on the drip
    Letter to my grandson
     
    Page 13: Fundraising news
    Ian's £undraising update
     
    Pages 13-15: Social reports
    Jan's social corner
    2014 social meetings
     
    Page 16: Back page
    Subscriptions
    Reminders

    42 downloads

    Updated

  16. Free

    ADSHG Newsletter 115 - March 2014

    Addison's Disease Self Help Group newsletter, issue 115, March 2014
     
    Welcome to the spring 2014 newsletter. The ADSHG turns 30 in autumn this year, marking the auspicious season when Deana Kenward, our President, began contacting everyone who had responded to her little “ad” in the Radio Times. This autumn it will also be 10 years since the ADSHG’s application was approved by the Charity Commission and we became a registered charity. We have come a long way in those three decades and have a lot to celebrate.
     
    Page 1: Front page
    Happy birthday to us!
    VanishPoint syringe on sale now
     
    Page 2: From the President
    About the money
     
    Pages 3-6: Recent news
    Emergencies r us: more from our 2013 survey
    Stabbing practice at work
     
    Pages 7-8: Life skills
    A perspective on anxiety
     
    Page 9: Medical research
    Pulses - the rhythm of life?
     
    Pages 10-11: Personal experience
    Taking on the world: triathlon training for beginners
    The healthiest sick guy you know
     
    Page 12: Exercise and Addison's
    The doctor's view
     
    Page 13: Fundraising reports
    Ian's £undraising update
     
    Pages 14-15: Social reports
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    56 downloads

    Updated

  17. Free

    ADSHG Newsletter 114 - December 2013

    Addison's Disease Self Help Group newsletter, issue 114, December 2013
     
    Welcome to the winter 2013 newsletter. This issue explores the ways that people with Addison’s around the world have chosen to celebrate life post-diagnosis. Rachel in Eire, Andrew in Spain, an Ian and Sarah in the UK, and Geoff in Australia, describe some of the ways they have marked their diagnosis and recovery, many through sporting or recreational achievements. Jane explains in her page 7 column on coping with stress how she, too, determined to see the positives in her diagnosis and put it to good use in her life.
     
    Page 1: Front page
    Welcome to the winter newsletter
    New year = renew subscription time
    Employers leaflet
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent news
    Ambulance awareness: advances in Ireland
    New medical paper on good clinical practice
     
    Pages 5-6: Medical awareness
    Nursing awareness raising
    Hospital awareness: Arran's first crisis
     
    Page 7: Life skills
    Reducing the stress of a long term condition
     
    Pages 8-10: Personal experience
    The Great Fjord & Shannon swims
    Santiago pilgrim trail
    St Crispin's day nightride in verse
     
    Page 11: Famous lives
    Geoff Starling - from exhilaration to despair and back again
     
    Page 12: Around the group
    Leicester medical seminar
     
    Page 13: Fundraising report
    Ian's £undraising update
     
    Pages 14-15: Social report
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    23 downloads

    Updated

  18. Free

    ADSHG Newsletter 113 - September 2013

    Addison's Disease Self Help Group newsletter, issue 113, September 2013
     
    Welcome to the autumn 2013 newsletter. This issue features some of the early findings from our online emergency questionnaire. As you will see, we are aiming to share the survey findings with health practitioners and policy makers, in a constructive dialogue to help our members manage their steroid-dependence as well as possible.
     
    Page 1: Front page
    Emergencies "r" us
    Christmas order form
    Online emergency survey
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent news
    All about us: emergency survey findings
     
    Pages 5-7: Medical awareness raising
    Running out of steroid medication: the doctor's view
    Ambulance awareness update
    Recent drug news: Chronocort
    Letter writing for nursing awareness
     
    Page 8: Life skills
    Coping with the trauma of crisis
     
    Pages 8-9: Personal experience
    My hospital crisis
    My hospital crisis: the doctor's view
     
    Page 10: Famous lives
    Sabino Arano
     
    Pages 11-12: Personal experience
    My gap year goes astray
     
    Page 13: Fundraising report
    Ian's £undraising report
     
    Pages 14-15: Social report
    Jan's social corner
    Future social meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    49 downloads

    Updated

  19. Free

    ADSHG Newsletter 112 - June 2013

    Addison's Disease Self Help Group newsletter, issue 112, June 2013
     
    The most important message in this issue is here on the front page: we want everyone to participate in our emergency survey! In a new venture for the group, the questionnaire is a web-based format, using software provided by SurveyMonkey. This has the advantages of being much cheaper than a printed questionnaire, and means we get instant updates on the running totals as more people log in to take part.
     
    Page 1: Front page
    Listening to our members: emergency survey
    Online emergency survey
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent news
    About the emergency survey
    Ambulance registration: why it's important
    News from Dublin
    Problems with NHS emergency care: is it a crisis?
    London ambulance invites us in
     
    Pages 5-6: Medical awareness raising
    ADSHG at the Harrogate endocrine conference
    Letter writing for nursing awareness
     
    Pages 7-9: 2013 AGM
    Chair's remarks
    Treasurer's report
    Webmaster's report
    Members' feedback
     
    Page 9: Home and away
    Specialist endocrine care: BMJ publishes our views
     
    Pages 10-12: Personal experience
    Jack's comeback
    Ambulance registration: a good news story
     
    Page 13: Fundraising report
    Ian's £undraising update
    Travelling light
     
    Pages 14-15: Social reports
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    67 downloads

    Updated

  20. Free

    ADSHG Newsletter 111 - March 2013

    Addison's Disease Self Help Group, issue 111, March 2013
     
    Welcome to the spring 2013 newsletter. Our members’ Middle East travel and trekking experiences feature large in this issue. Jo Grey writes about her rugged adventure in the Sahara, when she braved 40º heat, sandstorms, flies and the dreaded ‘Sahara tummy’, to trek 120km across the desert last October. Not for the faint-hearted, you can read the nitty-gritty of her epic stroll on pages 10 - 12. Andrew found himself making less progress on the journey home, when his flight to Kuwait became fog-bound and was stranded at the world’s largest airport – Dammam in Saudi Arabia – as he describes on pages 12 – 13.
     
    Page 1: Front page
    The journey home
    Notes for nurses: hospital advice
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent news
    Addison's life stories published
     
    Pages 4-5: Recent drug news
    Hydrocortisone price stays high
    Efcortesol availability
    Pharmacy labels
     
    Page 6: ADSHG at work
    Nursing awareness letters
    Ian's £undraising bit
     
    Pages 7-9: Medical lecture
    ADSHG medical lecture 2012
     
    Pages 10-13: Personal experience
    Maniacs in the Sahara
    Kuwait calling: sleepless in Dammam
     
    Pages 14-15: Social reports
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    12 downloads

    Updated

  21. Free

    ADSHG Newsletter 110 - December 2012

    Addison's Disease Self Help Group newsletter, issue 110, December 2012
     
    Welcome to the winter issue of the Addison’s newsletter. 2012 was a busy, active year for the group, with plenty happening that we can look back on with satisfaction. On page 2 our President, Deana Kenward, describes her memorable day at Windsor Castle in November, when she was awarded an MBE for her 28 years of dedicated service to the ADSHG. As you will see in the photos, Deana (who ordinarily never smiles for the camera), couldn’t stop smiling all day. Well done, Deana, and richly deserved!
     
    Extra download file included: BMJ - How to avoid precipitating an acute adrenal crisis
     
    Page 1: Front page
    We wish you a merry Christmas
    Addison crisis: the latest advice
     
    Page 2: From the President
    MBE award: my big day out
     
    Pages 3-5: Recent drug news
    Rescue of Addison’s disease study
    Modified release Plenadren: the latest
     
    Pages 5-6: ADSHG at work
    ADSHG at endocrine conferences
    Nursing awareness letters
     
    Pages 7-10: 2011 annual report
    2011 report and accounts
     
    Pages 10-16: Personal experience
    Diamonds are forever: 60 years with Addison’s
    Not such a merry Christmas
    The doctor’s view
    Travelling light
     
    Page 17: Fundraising report
    Ian’s fundraising update
     
    Pages 18-19: Social reports
    Jan's social corner
    Regional meetings
     
    Page 20: Back page
    Reminders
    Subscriptions

    37 downloads

    Updated

  22. Free

    ADSHG Newsletter 109 - September 2012

    Addison's Disease Self Help Group, issue 109, September 2012
     
    Welcome to the autumn 2012 newsletter. This issue features an inspiring interview with the Canadian Olympic gymnast Nathan Gafuik, who represented Canada in the recent London Olympic Games. Now aged 27, Nathan was diagnosed with Addison’s some 12 years ago, aged 15. During the Olympic Games, he met our journalist member Jane, to talk to her about how he manages the combined challenges of his Addison’s and high level gymnastic competitions. You can read about Nathan’s remarkable courage and self-discipline on page 3.

    Page 1: Front page
    Our Addison's heroes
    With this issue: Christmas order form
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Personal experience
    Olympic gymnast with Addison's
     
    Pages 5-6: Recent news
    What's new with flu?
    Nursing awareness raising
    Members' perspective
     
    Pages 7-8: AGM reports
    Remarks from the Chair
    Treasurer's report
    President's address
     
    Pages 9-10: Personal experience
    Kuwait calling: from New York
    The nurse's view
     
    Page 11: Recent drug news
    Fludrocortisone storage instructions
     
    Page 12: Home and away
    Travelling light
     
    Page 13: Fundraising update
    Ian's fundraising bit
     
    Pages 14-15: Social reports
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    22 downloads

    Updated

  23. Free

    ADSHG Newsletter 108 - June 2012

    Addison's Disease Self Help Group newsletter, issue 108, June 2012
     
    Welcome to the summer 2012 newsletter.This issue features articles from two doctors, on some important aspects of our medication management. Dr Kristian Lovas of Bergen Medical School Norway, explains the implications of his research team’s recent fi ndings about how grapefruit juice and liquorice alter the influence of our hydrocortisone tablets on page 3. Then on page 11, Dr Rob Andrews of Bristol Medical School responds to the dilemmas posed by Andrew in Kuwait calling, where he describes the combined challenges of extreme heat and stress.
     

    Page 1: Front page
    Good stress, bad stress
    With this issue
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent drug and research news
    What is it about grapefruit juice and liquorice?
    Once a day Plenadren: the latest news
    Letter writing for nursing awarenss
     
    Pages 5-9: Medical meetings
    British Endocrine Societies conference report
     
    Pages 10-12: Personal experience
    Kuwait calling: heat+stress+
    Travelling light
    Nearly new baby
     
    Page 13: Fundraising update
    Ian's fundraising bit
     
    Pages 14-15: Social reports
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    30 downloads

    Updated

  24. Free

    ADSHG Newsletter 107 - March 2012

    Addison's Disease Self Help Group newsletter, issue 107, March 2012
     
    Welcome to the spring 2012 newsletter. We hope that some of you have made new year resolutions to improve your fitness and take up running. This is because the ADSHG has purchased 5 charity places in the 2012 Great South Run, taking place in Portsmouth on 28 October. As Ian explains on page 13, this is a flat 10 mile course that should suit the determined novice. If you are willing to do some fundraising on our behalf – and show the world what people with Addison’s can achieve – we would love to hear from you. On page 12, Professor Simon Pearce tells us how he achieved a similar goal in 2011, when he completed the Great North Run for the first time.
     

    Page 1: Front page
    Get your running shoes out
    Keeping your membership up to date
     
    Page 2: From the President
    Membership donations
     
    Pages 3-4: Recent drug news
    Once-a-day Plenadren: latest news
     
    Page 5: Recent news
    Research news
    About the money
    Letter writing for nurses
     
    Pages 6-8: Medical lecture
    Adrenal crisis and Addison's
     
    Page 9: Ambulance alerts
    Phil's bit
    A shot in the night
    Members' feedback
     
    Page 10: Medical update
    Nursing awareness
    Medical awareness: pharmacy labels
     
    Pages 11-12: Personal experience
    Travelling light
    My big run
     
    Page 13: Fundraising report
    Ian's fundraising bit
     
    Pages 14-15: Social reports
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    16 downloads

    Updated

  25. Free

    ADSHG Newsletter 106 - December 2011

    Addison's Disease Self Help Group newsletter, issue 106, December 2011
     
    Welcome to the winter 2011 newsletter. Recent drug developments make our top stories once again, with announcements that the UK manufacturer of cortisone acetate has pulled out, while the new modified release hydrocortisone product, Plenadren, has gained marketing approval from the European Marketing Authority. On page 3, our medical advisers offer suggestions on what to do if you have been affected by the sudden loss of cortisone acetate.
     

    Page 1: Front page
    ...and a healthy new year
    MP's enquiry into drug shortages
     
    Page 2: From the President
    Donations
     
    Pages 3-5: Recent drug news
    Cortisone acetate withdrawn from UK
    Plenadren gets EMA marketing approval
    Irish drug news
     
    Page 5: Recent news
    Welcome to our new Treasurer
     
    Pages 6-8: Annual report
    Trustees report to Charity Commission
    Financial review
     
    Page 9: Fundraising update
    Thank yous
     
    Pages 10-11: Around the group
    Newcastle seminar
    Ambulance alert
     
    Pages 11-14: Personal experience
    Thigh high club
    My special day
    Time for tea with nurses
    A heart beat from Paris
    Kuwait calling
    Travelling light
     
    Pages 15-17: Around the group
    Have yourself a merry little Christmas
    The web report
    Fundraising update
    Alfred Potter Memorial Research Award
     
    Pages 18-19: Social update
    Jan's social corner
    Regional meetings
     
    Page 20: Back page
    Reminders
    Subscriptions

    13 downloads

    Updated

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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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