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Newsletters (members only)

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Member-only newsletters published quarterly with features and articles about living with Addison's and group news.

60 files

  1. Free

    ADSHG Newsletter 111 - March 2013

    Addison's Disease Self Help Group, issue 111, March 2013
     
    Welcome to the spring 2013 newsletter. Our members’ Middle East travel and trekking experiences feature large in this issue. Jo Grey writes about her rugged adventure in the Sahara, when she braved 40º heat, sandstorms, flies and the dreaded ‘Sahara tummy’, to trek 120km across the desert last October. Not for the faint-hearted, you can read the nitty-gritty of her epic stroll on pages 10 - 12. Andrew found himself making less progress on the journey home, when his flight to Kuwait became fog-bound and was stranded at the world’s largest airport – Dammam in Saudi Arabia – as he describes on pages 12 – 13.
     
    Page 1: Front page
    The journey home
    Notes for nurses: hospital advice
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent news
    Addison's life stories published
     
    Pages 4-5: Recent drug news
    Hydrocortisone price stays high
    Efcortesol availability
    Pharmacy labels
     
    Page 6: ADSHG at work
    Nursing awareness letters
    Ian's £undraising bit
     
    Pages 7-9: Medical lecture
    ADSHG medical lecture 2012
     
    Pages 10-13: Personal experience
    Maniacs in the Sahara
    Kuwait calling: sleepless in Dammam
     
    Pages 14-15: Social reports
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    18 downloads

    Updated

  2. Free

    ADSHG Newsletter 110 - December 2012

    Addison's Disease Self Help Group newsletter, issue 110, December 2012
     
    Welcome to the winter issue of the Addison’s newsletter. 2012 was a busy, active year for the group, with plenty happening that we can look back on with satisfaction. On page 2 our President, Deana Kenward, describes her memorable day at Windsor Castle in November, when she was awarded an MBE for her 28 years of dedicated service to the ADSHG. As you will see in the photos, Deana (who ordinarily never smiles for the camera), couldn’t stop smiling all day. Well done, Deana, and richly deserved!
     
    Extra download file included: BMJ - How to avoid precipitating an acute adrenal crisis
     
    Page 1: Front page
    We wish you a merry Christmas
    Addison crisis: the latest advice
     
    Page 2: From the President
    MBE award: my big day out
     
    Pages 3-5: Recent drug news
    Rescue of Addison’s disease study
    Modified release Plenadren: the latest
     
    Pages 5-6: ADSHG at work
    ADSHG at endocrine conferences
    Nursing awareness letters
     
    Pages 7-10: 2011 annual report
    2011 report and accounts
     
    Pages 10-16: Personal experience
    Diamonds are forever: 60 years with Addison’s
    Not such a merry Christmas
    The doctor’s view
    Travelling light
     
    Page 17: Fundraising report
    Ian’s fundraising update
     
    Pages 18-19: Social reports
    Jan's social corner
    Regional meetings
     
    Page 20: Back page
    Reminders
    Subscriptions

    43 downloads

    Updated

  3. Free

    ADSHG Newsletter 109 - September 2012

    Addison's Disease Self Help Group, issue 109, September 2012
     
    Welcome to the autumn 2012 newsletter. This issue features an inspiring interview with the Canadian Olympic gymnast Nathan Gafuik, who represented Canada in the recent London Olympic Games. Now aged 27, Nathan was diagnosed with Addison’s some 12 years ago, aged 15. During the Olympic Games, he met our journalist member Jane, to talk to her about how he manages the combined challenges of his Addison’s and high level gymnastic competitions. You can read about Nathan’s remarkable courage and self-discipline on page 3.

    Page 1: Front page
    Our Addison's heroes
    With this issue: Christmas order form
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Personal experience
    Olympic gymnast with Addison's
     
    Pages 5-6: Recent news
    What's new with flu?
    Nursing awareness raising
    Members' perspective
     
    Pages 7-8: AGM reports
    Remarks from the Chair
    Treasurer's report
    President's address
     
    Pages 9-10: Personal experience
    Kuwait calling: from New York
    The nurse's view
     
    Page 11: Recent drug news
    Fludrocortisone storage instructions
     
    Page 12: Home and away
    Travelling light
     
    Page 13: Fundraising update
    Ian's fundraising bit
     
    Pages 14-15: Social reports
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    27 downloads

    Updated

  4. Free

    ADSHG Newsletter 108 - June 2012

    Addison's Disease Self Help Group newsletter, issue 108, June 2012
     
    Welcome to the summer 2012 newsletter.This issue features articles from two doctors, on some important aspects of our medication management. Dr Kristian Lovas of Bergen Medical School Norway, explains the implications of his research team’s recent fi ndings about how grapefruit juice and liquorice alter the influence of our hydrocortisone tablets on page 3. Then on page 11, Dr Rob Andrews of Bristol Medical School responds to the dilemmas posed by Andrew in Kuwait calling, where he describes the combined challenges of extreme heat and stress.
     

    Page 1: Front page
    Good stress, bad stress
    With this issue
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent drug and research news
    What is it about grapefruit juice and liquorice?
    Once a day Plenadren: the latest news
    Letter writing for nursing awarenss
     
    Pages 5-9: Medical meetings
    British Endocrine Societies conference report
     
    Pages 10-12: Personal experience
    Kuwait calling: heat+stress+
    Travelling light
    Nearly new baby
     
    Page 13: Fundraising update
    Ian's fundraising bit
     
    Pages 14-15: Social reports
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    41 downloads

    Updated

  5. Free

    ADSHG Newsletter 107 - March 2012

    Addison's Disease Self Help Group newsletter, issue 107, March 2012
     
    Welcome to the spring 2012 newsletter. We hope that some of you have made new year resolutions to improve your fitness and take up running. This is because the ADSHG has purchased 5 charity places in the 2012 Great South Run, taking place in Portsmouth on 28 October. As Ian explains on page 13, this is a flat 10 mile course that should suit the determined novice. If you are willing to do some fundraising on our behalf – and show the world what people with Addison’s can achieve – we would love to hear from you. On page 12, Professor Simon Pearce tells us how he achieved a similar goal in 2011, when he completed the Great North Run for the first time.
     

    Page 1: Front page
    Get your running shoes out
    Keeping your membership up to date
     
    Page 2: From the President
    Membership donations
     
    Pages 3-4: Recent drug news
    Once-a-day Plenadren: latest news
     
    Page 5: Recent news
    Research news
    About the money
    Letter writing for nurses
     
    Pages 6-8: Medical lecture
    Adrenal crisis and Addison's
     
    Page 9: Ambulance alerts
    Phil's bit
    A shot in the night
    Members' feedback
     
    Page 10: Medical update
    Nursing awareness
    Medical awareness: pharmacy labels
     
    Pages 11-12: Personal experience
    Travelling light
    My big run
     
    Page 13: Fundraising report
    Ian's fundraising bit
     
    Pages 14-15: Social reports
    Jan's social corner
    Regional meetings
     
    Page 16: Back page
    Reminders
    Subscriptions

    20 downloads

    Updated

  6. Free

    ADSHG Newsletter 106 - December 2011

    Addison's Disease Self Help Group newsletter, issue 106, December 2011
     
    Welcome to the winter 2011 newsletter. Recent drug developments make our top stories once again, with announcements that the UK manufacturer of cortisone acetate has pulled out, while the new modified release hydrocortisone product, Plenadren, has gained marketing approval from the European Marketing Authority. On page 3, our medical advisers offer suggestions on what to do if you have been affected by the sudden loss of cortisone acetate.
     

    Page 1: Front page
    ...and a healthy new year
    MP's enquiry into drug shortages
     
    Page 2: From the President
    Donations
     
    Pages 3-5: Recent drug news
    Cortisone acetate withdrawn from UK
    Plenadren gets EMA marketing approval
    Irish drug news
     
    Page 5: Recent news
    Welcome to our new Treasurer
     
    Pages 6-8: Annual report
    Trustees report to Charity Commission
    Financial review
     
    Page 9: Fundraising update
    Thank yous
     
    Pages 10-11: Around the group
    Newcastle seminar
    Ambulance alert
     
    Pages 11-14: Personal experience
    Thigh high club
    My special day
    Time for tea with nurses
    A heart beat from Paris
    Kuwait calling
    Travelling light
     
    Pages 15-17: Around the group
    Have yourself a merry little Christmas
    The web report
    Fundraising update
    Alfred Potter Memorial Research Award
     
    Pages 18-19: Social update
    Jan's social corner
    Regional meetings
     
    Page 20: Back page
    Reminders
    Subscriptions

    19 downloads

    Updated

  7. Free

    ADSHG Newsletter 105 - September 2011

    Addison's Disease Self Help Group newsletter, issue 105, September 2011
     
    Welcome to the autumn 2011 newsletter. Drug news features prominently in this issue. On pages 3 – 4, Jane investigates the views of a number of leading European adrenal specialists on Plenadren, the new modified-release hydrocortisone tablet. We hope you will agree, their responses make fascinating reading.
     
    Page 1: Front page
    Keep on running
    With this issue...
     
    Page 2: From the President
    Members' donations
     
    Pages 3-6: Recent drug news
    Modified release hydrocortisone: a mixed response from experts
    Irish medication news
     
    Page 6: Recent news
    New information from Society for Endocrinology
    GP online investigates prescriptions lengths
     
    Pages 7-9: AGM
    Chair's remarks
    Finance report
    Web report
     
    Page 10: Personal experience
    A marathon triumph in Edinburgh
    Skiing in Norway
     
    Pages 11-14: Around the group
    Ambulance alerts
    Eyesight problems?
    Travelling light
    Jan's social corner
    The web report
    Ian's fundraising update
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    17 downloads

    Updated

  8. Free

    ADSHG Newsletter 104 - June 2011

    Addison's Disease Self Help Group newsletter, issue 104, June 2011
     
    Welcome to the summer 2011 newsletter, which is packed full of news. The new dual release hydrocortisone being developed by DuoCort is now becoming available in the UK - at a price - as Jane Hodgkin explains on page 3. Medication costs and access to our essential steroid medication also feature on page 4, where we reprint the ADSHG’s recent letter to the British Medical Journal about prescription costs. The ADSHG’s activities in medical awareness-raising are reported on pages 5 and 6, where Alison Mainwaring describes how she represented us at a nursing forum and we report on the annual British Endocrine Societies’ conference in Birmingham.
     

    Page 1: Front page
    Being prepared
    Medical recognition of our website
    With this issue
     
    Page 2: From the President
    New bones for old
     
    Pages 3-4: Recent drug news
    Dual release hydrocortisone available in UK
    28 day prescribing in the news
    The pot of gold at the end of the rainbow?
     
    Pages 5-7: Medical update
    Royal College of Nursing invites our input
    British Endocrine Societies conference
    Addison's highlighted at European endocrine conference
     
    Page 8: Around the group
    Immunodeficiency study at Oxford
    Genetic research: give blood
    Pregnancy study
     
    Pages 9-12: Personal experiences
    This student life
    Blues and twos from the dentist
    Ambulance alerts
    Travelling light
     
    Pages 13-14: Group news
    Jan's social corner
    Ian's fundraising bit
    Members' donations
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    46 downloads

    Updated

  9. Free

    ADSHG Newsletter 103 - March 2011

    Addison's Disease Self Help Group newsletter, issue 103, March 2011
     
    Welcome to the spring 2011 newsletter. Those among you whose New Year resolution was to improve your fitness or join a gym may take inspiration from James Claxton and Richard Keyzor’s experiences, reported on pages 4 and 5. Richard was never runner before he decided to take on a year-long quest of competitive sporting events, to raise funds for his son Oli’s cystic fibrosis charity. You can read about his triumphs and his setbacks in One Year, One Aim. James confesses that he was under-prepared for the gruelling cycling course he set out on in October – one hundred miles a day for ten days – which took him from Land’s End to John O’Groats. Outstandingly, he made it, although one of his companions did not.
     
    Page 1: Front page
    Never give up
    What is Addison's
    GP awareness
     
    Page 2: From the President
    Members' donations
     
    Page 3: Recent drug news
    Hydrocortisone prices stay high
    Addison's Ireland
     
    Pages 4-5: Personal experience
    One year, one aim
    100 miles a day
     
    Pages 6-8: Medical news
    European Addison's conference
    Pregnancy survey
     
    Page 9: Personal experience
    Travelling light
     
    Pages 10-12: Real life emergencies
    A dangerous delay at the hospital
    Ambulance alerts
     
    Pages 13-14: Personal experience
    Body ready for the scrapheap, brain ready for Mastermind
     
    Page 14: Around the group
    Les says: fundraising update
    Alfred Potter Memorial Research Award
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    15 downloads

    Updated

  10. Free

    ADSHG Newsletter 102 - December 2010

    Addison's Disease Self Help Group newsletter, issue 102, December 2010
     
    Welcome to the winter 2010 newsletter. We have some encouraging news in this issue, as medical professional colleges and ambulance trusts show their recognition of our emergency treatment needs and identify various ways in which they can support us. As we report, below, we are re-issuing our laminated emergency card with ‘badging’ from the Colleges of Emergency Medicine and Paramedics. Then, on page 6 you can read about the Welsh Ambulance approach to adrenal crisis and the steps they are taking to ensure all their crews are acquainted with our rare condition.
     
    Page 1: Front page
    And a healthy new year
    New red card
    GP care leaflet
     
    Page 2: From the President
    Members' donations
     
    Pages 3-4: Recent drug news
    New DuoCort drug moves closer to production
    Adixon - a success story
    Repeat prescriptions
    UK hydrocortisone price stays high
     
    Pages 5-6: Medical news
    Impact at the endocrine conferences
    Responding to adrenal crisis: Welsh ambulance perspective
     
    Pages 7-12: Personal experience
    Delayed treatment at A&E
    Phil's bit: ambulance alert
    A Christmas story: my journey into Addison's
    Thigh high club: a Moroccan study
    Travelling light
     
    Pages 13-14: Group news
    Jan's social corner
    Les says: fundraising update
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    25 downloads

    Updated

  11. Free

    ADSHG Newsletter 101 - September 2010

    Addison's Disease Self Help Group newsletter, issue 101, September 2010
     
    Welcome to the autumn 2010 newsletter. We have some good news to announce, highlighted here on page 1, in the support we are receiving from the College of Emergency Medicine. The college has generously offered to endorse our emergency treatment instructions, by allowing its official logo to be printed on our red emergency card. This badging should help to ensure that our needs are given immediate recognition by Accident & Emergency staff in future.
     
    Page 1: Front page
    Waving the red card
    Endorsement from College of Emergency Medicine
     
    Page 2: From the President
    Members' donations
    Alfred Potter Memorial Research Award
     
    Pages 3-4: Recent drug news
    Hydrocortisone price increase
    Prescription medication: who pays what?
    Alternatives to hydrocortisone?
     
    Page 5: Personal experience
    The Fred Whitton challenge
     
    Pages 6-8: AGM
    Social report
    Minutes
    Chair's remarks
    Treasurer's report
    Webmaster's report
     
    Pages 9-12: Medical lecture
    Should everyone with Addison's be taking DHEA?
     
    Pages 13-14: In memory
    An untimely death
     
    Pages 14-15: Medical news
    Media misrepresentation
    DuoCort update
    Feedback on GP leaflets
     
    Pages 16-17: Personal experience
    Thigh high club: a Cornish experience
    Travelling light
     
    Page 18: Around the group
    Les says: fundraising update
     
    Page 19: Social update
    Regional meetings
     
    Page 20: Back page
    Reminders

    13 downloads

    Updated

  12. Free

    ADSHG Newsletter 100 - June 2010

    Addison's Disease Self Help Group newsletter, issue 100, June 2010
     
    Welcome to the summer 2010 newsletter. This issue is, first and foremost, about celebrating the achievements of our athletes. Three of our members – all with Addison’s – completed marathons in April, and we are so proud of them. You can read their stories on pages 3 – 5. This issue is also about recognising the achievements of the endocrine nurses who work to support people with Addison’s. You can read about the two nurses who won the ADSHG’s research awards at the March endocrine conference on pages 7 - 8.
     
    Page 1: Front page
    Our athletes, our heroes
    Cordon acquired by Auden Mckenzie
     
    Page 2: From the President
    A beautiful wedding
    Members' donations
     
    Pages 3-5: Fundraising update
    Peter's Brighton story
    Debra's London story
    Greg's London story
     
    Pages 6-8: Medical news
    Vitamin D deficiency
    ADSHG nursing award at endocrine conference
    Group education and steroid sick day rules
     
    Pages 8-10: Recent research
    Ongoing symptoms in Addison's
    Bone loss in Addison's
    Responding to adrenal crisis: ambulance perspective
     
    Pages 11-12: Famous lives
    George Summerbee
     
    Page 13: Personal experience
    Travelling light
     
    Page 14: Around the group
    Les says: fundraising update
    Social meeting reports
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    16 downloads

    Updated

  13. Free

    ADSHG Newsletter 099 - March 2010

    Addison's Disease Self Help Group newsletter, issue 99, March 2010
     
    Welcome to the March 2010 newsletter. The UK had an unusually cold, hard winter; when the spring weather fi nally arrives it will be most welcome. So spare a thought for our competitive runners and cyclist, who have had to continue their training regimes right through the sleet, ice and snow. The London marathon is on 25 April and the ADSHG is proud to have two members with Addison’s who will be taking part in it: Debra Chase and Greg Davis. In addition, group member Ian Carswell will be taking on one of the UK’s toughest competitive cycling routes when he takes part in the Fred Whitton Challenge in the Lake District in May. You can find out more on page 14.
     

    Page 1: Front page
    Supporting our athletes
    GP information packs
    Efcortesol shortage
     
    Page 2: From our President
    Members' donations
    Obituary: Alfred Potter
     
    Page 3: Famous lives
    Jane Austen had TB not Addison's
     
    Pages 4-5: Recent news
    What's new with flu?
    ADSHG trustee meeting
    French fludrocortisone
     
    Page 6: Medical meetings
    ADSHG offer nursing awards
     
    Page 7: Recent research
    Recent research on adrenal emergencies
     
    Page 8: Famous lives
    Ella Holleufer Hedtoft
     
    Pages 9-13: Personal experience
    Travelling light
    An unhappy hospital stay
    Machu Picchu
    Up and running
    Exercise and Addison's: the doctor's view
     
    Page 14: Around the group
    Les says: fundraising update
    Social meeting reports
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    25 downloads

    Updated

  14. Free

    ADSHG Newsletter 098 - December 2009

    Addison's Disease Self Help Group newsletter, issue 98, December 2009
     
    Welcome to the December 2009 newsletter, the final newsletter in our 25th anniversary year. To mark the passing of this special year, we are giving everyone a Silver Jubilee gift pack, enclosed with this newsletter. Our 25th anniversary celebrations, held in Guildford on 31 October, feature on pages 9 and 10, with Chris Scott and Daniel Kenward’s recollections of the early days of the group.

    Page 1: Front page
    Happy Christmas everyone
    Silver Jubilee gift pack
     
    Page 2: From the President
    Group news
     
    Pages 3-5: Medical updates
    What's new with flu?
    Modified release hydrocortisone: promising developments
    Nordic conference news
     
    Pages 6-7: Group news
    Sister awarded for saving mother
    'I want to see a consultant'
    Travelling light
     
    Pages 8-9: 25th anniversary meeting
    Speeches from the meeting
     
    Page 10: Medical report
    Oral contraceptive pills: a word of caution
    Renin tests - what do they mean?
     
    Page 11-12: Personal experience
    Helen Reddy: the woman I am now
     
    Page 12: Famous lives
    Eunice Kennedy Shriver
     
    Pages 13-14: Around the group
    Les says: fundraising update
    Social meeting reports
    Members' donations
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    19 downloads

    Updated

  15. Free

    ADSHG Newsletter 097 - September 2009

    Addison's Disease Self Help Group, issue 97, September 2009
     
    Welcome to the autumn 2009 newsletter. It has been a busy summer for the trustees, as you can read in this issue. We have worked with the Society for Endocrinology to help their Clinical Committee prepare the information about H1N1 flu preparedness that is enclosed with this newsletter. We have written to the British Medical Journal about Addison’s awareness and the important role played by GPs in the early diagnosis of our condition. Our letter is reprinted on page 5. And we have been preparing our new range of Addison’s awareness gifts and stationery, along with enhancements to our Just Giving donations and fundraising pages, as you can read on page 8.

    Page 1: Front page
    Working with our medics
    Flu update
    Christmas cards
     
    Page 2: From the President
    Group news update
     
    Page 3-5: Recent news
    Patients taking hydrocortisone need longer prescriptions in light of flu pandemic
    New fludrocortisone - out of the fridge
    'I want to see the consultant'
    Prescription charges
    Addison's in the medical press
     
    Page 6-7: AGM
    Minutes
    Chair's remarks
    Treasurer's report
     
    Page 8: Group news
    Les says: fundraising update
    The shop
    Life in the slow lane
     
    Pages 9-12: Medical lecture
    Replacement therapy in Addison's disease
     
    Pages 13-14: Medical update
    Spotlight on Manchester: NWAS and hospital experience
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    14 downloads

    Updated

  16. Free

    ADSHG Newsletter 096 - June 2009

    Addison's Disease Self Help Group, issue 96, June 2009
     
    Welcome to the summer 2009 newsletter. We make no apologies for the sober tone of this issue, which is all about emergencies. Two of the four horsemen of the apocalypse – pestilence and death – feature on these pages. Pestilence, in the guise of Mexican flu, appears on page 3, where we have some important news about the anticipated flu outbreaks in autumn 2009 and how to make sure we are all as well prepared as possible. Death, very sadly, appears on page 11 where we publish the autopsy report on a lady with a pituitary condition (not an ADSHG member) who died in her sleep, when she could not absorb oral steroids during a gastric infection. If she had been given injected steroids and prompt medical treatment, it is likely that this tragedy could have been prevented.

    Page 1: Front page
    All about emergencies
    With this issue
    Efcortesol shortage
     
    Page 2: From the President
    Members' fundraising
     
    Pages 3-5: Medical news
    A message from John Wass on flu preparedness
    28-day prescribing in the news
    Addison's in the medical press
     
    Page 6: AGM
    Social report
     
    Pages 7-8: ADSHG poster
    All about emergencies
     
    Pages 9-10: Personal experience
    My life turned upside down
     
    Page 11: Recent news
    A preventable tragedy
     
    Pages 12-13: Home and away
    News from Denmark
    Casa Luz calling
    Life in the slow lane
     
    Pages 14-15: Social update
    Social meeting reports
    Regional meetings
     
    Page 16: Back page
    Reminders

    15 downloads

    Updated

  17. Free

    ADSHG Newsletter 095 - March 2009

    Addison's Disease Self Help Group, issue 95, March 2009
     
    The ADSHG turns 25 this year, making this our silver anniversary. On 21 July 1984, Deana Kenward started the group - at her kitchen table - with just a handful of members. She blames writer and actress Katie Boyle, then the agony aunt at the Radio Times, for everything. Deana had written to the Radio Times to ask if they knew of a support group for people with Addison’s. Katie Boyle wrote back to say no, and why didn’t she start one? So she did.
     

    Page 1: Front page
    Happy birthday to us
    Annual report
     
    Page 2: From the President
    Annette Louise Seal Memorial Research Award
    Members' fundraising
     
    Pages 3-5: Medical news
    Pandemic flu planning
    Government's position on 28-day prescribing
    Duo-Cort online survey
     
    Page 5: Group news
    Executive at work
     
    Pages 6-9: Medical lecture
    The causes of Addison's
     
    Pages 10-11: Home and away
    Keeping cool about fludrocortisone
    Genetic research: give blood
    Rescue of Addison's Disease Study
    Life in the slow lane
     
    Page 12: Personal experience
    Namaste: trekking in the Himalayas
     
    Page 13: Famous lives
    JFK
     
    Page 14: Group news
    Medical lecturer profile
    Social reports
     
    Page 15: Social update
    Regional meetings
     
    Page 16: Back page
    Reminders

    23 downloads

    Updated

  18. Free

    ADSHG Newsletter 094 - December 2008

    Addison's Disease Self Help Group newsletter, issue 94, December 2008
     
    When the US sub-prime real estate market collapsed a year ago, no one anticipated that it would unravel to cause a global fi nancial crisis, the near-collapse of the international banking system and a protracted worldwide recession. Despite the economic uncertainty ahead, we hope that everyone can enjoy their Christmas and New Year celebrations.
     

    Page 1: Front page
    Happy Christmas everyone
    2009 subscriptions now due
     
    Page 2: From the President
    Members' fundraising
    28-day prescriptions success story
     
    Pages 3-5: Medical news
    Influenza vaccine
    Generic Efcortesol update
    Modified hydrocortisone release: study update
    ADSHG at Clinical Update
    ADSHG at nurses conference
    Newcastle medical seminar
    Life in the slow lane
     
    Pages 6-8: Media
    Medical misinformation: Women's Own and PCC
    PCC decision
     
    Page 9: Famous lives
    Andrew Dasburg
     
    Pages 10-11: Around the group
    Seeing in the new year
    Regional meetings
     
    Page 12: Back page
    Reminders

    8 downloads

    Updated

  19. Free

    ADSHG Newsletter 093 - September 2008

    Addison's Disease Self Help Group newsletter, issue 93, September 2008
     
    It was the Irish dramatist Brendan Behan who said, there is no such thing as bad publicity except your own obituary. However, that was in a gentler, more deferential era. In this issue, two of our members – Tracy and Jackie – tell us about their experiences with the media and how their diagnosis stories were reported. As you will see on page 3, Tracy was delighted to fi nd her experiences accurately and carefully portrayed, while Jackie was dismayed to fi nd the opposite. On page 4 you can read the guidelines the ADSHG trustees have recently developed for working with the media in future, to try and prevent misreporting of Addison’s disease and the kind of distress Jackie was put through by misrepresentation of her life.
     
    Page 1: Front page
    Giving people with Addison's a voice
    Russian translation now available
    Oval hydrocortisone is back
     
    Page 2: From the President
    Members' fundraising
    Obituary: Alan Lack
     
    Pages 3-4: Media
    Media misinformation: the saga of Women's Own
    Working with the media
     
    Pages 4-5: Recent news
    The puncture sisters
    Meeting reports
     
    Pages 5-6: AGM
    AGM report
    Chair's remarks
    Minutes
     
    Page 7: Medical update
    ADSHG submission to the Darzi report
     
    Page 8: Home and away
    News from down under
    Thigh high club
     
    Page 9: Personal experience
    Remembering Mabel
    On watch with Addison's
     
    Page 10: Around the group
    Name that ailment
    Members' news
     
    Page 11: Social update
    Regional meetings
     
    Page 12: Back page
    Reminders

    4 downloads

    Updated

  20. Free

    ADSHG Newsletter 092 - June 2008

    Addison's Disease Self Help Group newsletter, issue 92, June 2008
     
    Welcome to the June issue. Drug issues are in the news again this summer with both good and bad news. The good news, on page 4, is that there are promising developments with the two new modified release hydrocortisone products now going through clinical trials. The bad news is that hydrocortisone and fludrocortisone supply problems have again hit parts of the UK. Please check the emergency supply procedures on the back page of the newsletter.

    Page 1: Front page
    Good news and bad news
    Florinef and hydrocortisone shortages
     
    Page 2: From the President
    Members' fundraising
     
    Pages 3-4: Recent news
    Repeat prescribing for essential steroid medication
    BES endocrine conference
    Modified release hydrocortisone: good news
     
    Pages 5-8: Medical update
    Adrenal emergency regular event for Addison's patients
    Employment and Addison's
    All about food
    Claire's weight loss story
     
    Page 9: Personal experience
    A guider's tale
    Famous lives: Helen Reddy
     
    Page 10: Around the group
    Diary of a persistent patient
    Crossword
     
    Page 11: Social update
    Regional meetings
     
    Page 12: Back page
    Reminders

    13 downloads

    Updated

  21. Free

    ADSHG Newsletter 091 - March 2008

    Addison's Disease Self Help Group newsletter, issue 91, March 2008
     
    Recent months have been eventful ones for the ADSHG, so that this issue of the newsletter is more topical than usual. We found ourselves in discussions with a major drug company, Bristol-Myers Squibb, about the revised storage instructions for their fl udrocortisone acetate product, Florinef, and the lack of clarity regarding how long the tablets are viable out of the fridge. On page 6, the acting medical director of Bristol-Myers Squibb offers an explanation of the regulatory requirements behind the current situation. On page 7, Kerry Wheeler, the editor of the Australian Addison’s newsletter, describes the Australian experience with the new, white Florinef.
     

    Page 1: Front page
    Drug supply issues: Florinef and hydrocortisone
     
    Page 2: From the President
    Members' fundraising
     
    Pages 3-4: Recent news
    German translation works
    Are you having a problem getting hydrocortisone?
    Corlan shortage
    ADSHG at endocrine conference
     
    Page 4: Media
    Addison's in the news
     
    Pages 5-6: Medical update
    Florinef goes white in the cold
     
    Pages 7-9: Personal experience
    News from down under
    A soldier's tale
    Famous lives: JFK
     
    Page 10: Around the group
    Profile: Professor Simon Pearce
    AGM notice
     
    Page 11: Social update
    Regional meetings
     
    Page 12: Back page
    Reminders

    9 downloads

    Updated

  22. Free

    ADSHG Newsletter 090 - December 2007

    Addison's Disease Self Help Group newsletter, issue 90, December 2007
     
    Welcome to the December 2007 newsletter. Christmas can be a time of high expectations in many households – and possibly some added tensions. So in this issue, our page 5 feature considers the topic of stress: how the body and brain process stress and whether stressful events need extra medication (or not). We also provide some light-hearted tips for how to survive Christmas and, in the page 10 recipe, a deliciously indulgent alternative to the traditional Christmas pudding.
     

    Page 1: Front page
    We wish you a merry Christmas
    The little red card
    Fludrocortisone update
     
    Page 2: From the President
    Members' fundraising
     
    Pages 3-4: Recent news
    Twice-daily fludrocortisone
    Threat to DHEA supplies
    Infusion pump hydrocortisone
    Ambulance update
     
    Pages 5-6: Medical update
    What is stress?
    How to handle stress
     
    Pages 6-9: Personal experience
    Have a very restful little Christmas
    Thigh high club: Christmas Eve at A&E
    A sculptor's tale
    Famous lives: Eugene Shoemaker
    Members' feedback
     
    Page 10: Around the group
    Crossword
    Cake recipe
     
    Page 11: Social update
    Regional meetings
     
    Page 12: Back page
    Reminders

    53 downloads

    Updated

  23. Free

    ADSHG Newsletter 04 web - October 2004

    Addison's Disease Self Help Group web newsletter, issue 4, October 2004
     
    As the group moves towards achieving charitable status, we are also establishing and developing some very positive links with medical practitioners and other members of healthcare services.
     

    Page 1: Front page
    Group update
     
    Page 2: Medical update
    London ambulance conference presentation
     
    Pages 3-5: Personal experience
    Jackie's story
    The doctor's view
     
    Pages 5-8: Medical lecture
    Managing your steroid medication

    13 downloads

    Updated

  24. Free

    ADSHG Newsletter 03 web - April 2004

    Addison's Disease Self Help Group web newsletter, issue 3, April 2004
     
    It is hard to believe that the first webnewsletter was launched a full year ago. Yet much has happened within the group in the last twelve months. We have made significant progress towards achieving charitable status. Many of us have benefited from the “refresher” emergency injection sessions and, as part of our continuing emphasis on emergency management procedures, there is a step-by-step guide to administering an injection of Solu-Cortef, following on from the Efcortesol instructions (web newsletter 2), on pages 4 and 5.
     
    Page 1: Front page
    Group update
     
    Page 2: Group news
    The editorial team
    Website statistics
     
    Pages 3-4: Personal story
    Julie's story
     
    Page 5: Medical lecture
    The patient - consultant relationship
     
    Page 6: Around the group
    Penpal scheme
     
    Page 7: Media update
    Letter to The Guardian
     
    Page 8: Addison's information
    What to do in an emergency
    ADSHG email group

    17 downloads

    Updated

  25. Free

    ADSHG Newsletter 02 web - October 2003

    Addison's Disease Self Help Group web newsletter, issue 2, October 2003
     
    Welcome to the second edition of the ADSHG web newsletter! In response to the continuing high level of interest in the emergency injection procedure, we hope that the step-by-step guide to administering the injection will be a helpful reference to anyone unsure of what to do. Research Nurse Suzanne Curran’s demonstration at the AGM and annual lecture on 10th May was a great success and this kind of supervised session is a real confidence booster, proving that we can all do it if we know how.
     

    Page 1: Front page
    Group news
     
    Pages 2-3: Medical information
    How to give an emergency injection of Efcortesol
     
    Pages 4-7: Personal experience
    Pam's story
    The doctor's view
    The ambulance service view
    Alan's story
     
    Page 8: Media
    Letter to The Lancet

    7 downloads

    Updated

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About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

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