Our new website is now live : www.addisonsdisease.org.uk - please update your bookmarks!

Jump to content
  • Most publications are free to download or can be purchased in a pack from the online shop.  You can help support the charity and development of new publications for those with Addison's disease by making a donation now.

Newsletters (members only)

Sign in to follow this  

Member-only newsletters published quarterly with features and articles about living with Addison's and group news.

60 files

  1. Free

    ADSHG Newsletter 01 web - February 2003

    Addison's Disease Self Help Group web newsletter, issue 1, February 2003
     
    Welcome to the first edition of the ADSHG web newsletter. It is intended to complement the bi-monthly newsletter and will be printed twice a year as part of your membership subscription, with the next edition scheduled for October 2003.

    Page 1: Front page
    Group update
     
    Page 2: Group news
    The editorial team
    Website statistics
     
    Pages 3-4: Personal story
    Julie's story
     
    Page 5: Medical lecture
    The patient - consultant relationship
     
    Page 6: Around the group
    Penpal scheme
     
    Page 7: Media update
    Letter to The Guardian
     
    Page 8: Addison's information
    What to do in an emergency
    ADSHG email group

    8 downloads

    Updated

  2. Free

    ADSHG Newsletter 089 - September 2007

    Addison's Disease Self Help Group newsletter, issue 89, September 2007
     
    Welcome to the autumn 2007 newsletter. This issue is packed with news about medication management that we hope you find both interesting and relevant.
     

    Page 1: Front page
    Keep on top of your tablets
    GP leaflet
     
    Page 2: From the President
    Members' fundraising
    Members' news
    Hydrocortisone product trials
     
    Page 3: Recent news
    Repeat prescriptions: letter to the British Medical Journal
    Langbaurgh PCT: Good prescribing practice
     
    Page 4: Executive at work
    AGM minutes and Chair's remarks
     
    Pages 5-8: Medical feature
    Trends in the management of Addison's disease: medical lecture
    Extra material: Colour lecture presentation slide set extra (PDF in member-only area)
     
    Page 9: Personal experience
    The emergency translation works
    A cutting experience
     
    Page 10: Around the group
    Profile: Guildford speakers
    Potato rosti
    The crossword
    Rural ramblings
     
    Page 11: Notices
    Social meetings update
     
    Page 12: Back page
    Reminders

    10 downloads

    Updated

  3. Free

    ADSHG Newsletter 088 - June 2007

    Addison's Disease Self Help Group newsletter, issue 88, June 2007
     
    Welcome to the summer 2007 edition of the ADSHG newsletter. We have prepared this issue in anticipation of another long, hot summer such as we experienced in 2006.
     

    Page 1: Front page
    Have a good holiday - whatever the weather
    PC gremlins
    Portuguese translation of emergency card
     
    Page 2: From the President
    Members' fundraising
    Members' news
    A sky high reward
     
    Page 3: Recent news
    One-dose hydrocortisone
    Euradrenal research project proposed
    Research volunteers wanted, Cambridge
     
    Page 4: Executive at work
    Repeat prescriptions
    ADSHG represented @ Birmingham
    A day at the seaside
     
    Pages 5-6: Medical feature
    Preventing and treating adrenal emergencies
     
    Page 7: Personal experience
    IM injection: is there a better way?
    Heat exhaustion
     
    Page 8: The doctor's view
    Managing hot weather
     

    Page 9: Personal experience
    Hot weather tips
    Rural ramblings
     
    Page 10: Around the group
    Spicy kedgeree
    The crossword
     
    Page 11: Notices
    Social meetings update
     
    Page 12: Back page
    Reminders

    13 downloads

    Updated

  4. Free

    ADSHG Newsletter 087 - March 2007

    Addison's Disease Self Help Group newsletter, issue 87, March 2007
     
    Welcome to the spring 2007 edition of the ADSHG newsletter. Spring is the time when the trustees are looking forward – both to the start of summertime and to the events of the year ahead – and back at our activities over the previous 12 months. This issue contains a four page supplement with the group’s Annual Report to the Charity Commission, outlining our activities in 2006. We hope you agree that we had some pleasing achievements in 2006, notably in raising medical awareness of our needs.
     

    Page 1: Front page
    Greater medical interest in Addison's disease
    Standing orders
    Annual report
     
    Page 2: From the President
    Members’ fundraising
    Members’ news
    Profile: Professor John Monson
     
    Page 3: Recent news
    One-dose hydrocortisone
    Hydrocortisone supply problems
    Genetic origins of Addison’s: update
     
    Pages 4-5: Medical feature
    Professor John Wass’ address to the 2006 endocrinology summer school
     
    Page 6: Executive at work
    Insurance and placebo trials
    Emergency survey update
    2007 AGM agenda and notice of meeting
     
    Pages 7-10: 2006 Annual Report
    A four page supplement
     
    Pages 11-13: Personal experience
    Return to work: occupational health and disability discrimination
     
    Page 14: Around the group
    Healthy banana cake
    The crossword
    E-forum update
     
    Page 15: Notices
    2007 AGM and medical lecture
    2007 subscription rates
    Genetic research: how to give blood
    Autumn medical seminar
     
    Page 16: Back page
    Reminders

    9 downloads

    Updated

  5. Free

    ADSHG Newsletter 086 - December 2006

    Addison's Disease Self Help Group newsletter, issue 86, December 2006
     
    Welcome to the December newsletter. Like us, you probably can't believe how quickly the year has gone. Nearly Christmas already! The last three months have been a busy time for the trustees and group volunteers. Deana Kenward and Alan Lack have been industrious in printing, packaging and posting all the Christmas card orders. Deana has been incredibly efficient, sometimes getting orders out within 48 hours of receiving them via the website.
     

    Page 1: Front page
    Wishing you the happiest of Christmases
    2007 membership options
     
    Page 2: From the President
    Members' fundraising
    Members' news
     
    Page 3: Recent news
    Birmingham medical seminar
    Website online registration and membership renewal
    ADSHG e-Forum
     
    Page 4: Executive at work
    Day curves - are they worth it?
    ADSHG at medical conferences
     
    Pages 5-8: Medical lecture
    The ABCs of Addison's
     
    Page 9: Personal experience
    A cycling tour de force
    Bad drug experience
    Extreme sports
     
    Page 10: Around the group
    Deana's apple pie
    Crossword
     
    Page 11: Notices
    Subscriptions
    Give blood: medical research
     
    Page 12: Back page
    Reminders

    8 downloads

    Updated

  6. Free

    ADSHG Newsletter 085 - September 2006

    Addison's Disease Self Help Group newsletter, issue 85, September 2006
     
    Welcome to the autumn newsletter for the ADSHG. We hope you all enjoyed a relaxing summer holiday. Some of our members are great travellers, as you will see from the travel insurance tips on page 10 of this issue. You were no doubt aware of the heightened security and more stringent bag searches at UK airports this summer. It is still important to carry your medication and injection kit with you on the plane rather than check them as hold baggage (as specified in the Managing Addison’s leaflet you received with your June newsletter).
     

    Page 1: Front page
    Travelling safely with your essential steroid medication
    Emergency mini-survey
    Christmas order form
     
    Page 2: From the President
    Members' fundraising
    Members' news
     
    Page 3: Recent news
    ADSHG at UK medical conferences
    Manchester medical seminar
    Genetic research: how to give blood
     
    Page 4: Executive at work
    AGM minutes
    Chair's remarks
     
    Pages 5-8: Medical lecture
    Sex and Addison's: how adrenal insufficiency affects men and women differently
     
    Page 9: Personal experience
    Our youngest member
    Our oldest member
     
    Page 10: Around the group
    Travel insurance tips
    Aunty Teresa's soda bread
    Recent medical research
     
    Page 11: Notices
    Meetings update
    Emergency card extra copies
     
    Page 12: Back page
    Reminders

    19 downloads

    Updated

  7. Free

    ADSHG Newsletter 084 - June 2006

    Addison's Disease Self Help Group newsletter, issue 84, June 2006
     
    Welcome to the summer newsletter for the ADSHG. Our exciting summer news is the launch of the Addison’s rose, Our Beth, at Chelsea on 22 May. This new rose from Peter Beales Roses is available thanks to a bequest from the Loasby family. Peter Beales Roses are making 10% of all sales proceeds available to the ADSHG in memory of their staff member, Beth Loasby, who had Addison’s and diabetes. We hope the gardeners among you will find a corner somewhere for this lovely rose, which will be available mail order from autumn 2006, as you can read on page 3.
     

    Page 1: Front page
    The Addison's rose: a wonderful gift
    Information leaflet
     
    Page 2: From the President
    Members' fundraising
     
    Page 3: Recent news
    The Addison's rose: our Beth
    The surgical guidelines work
    Genetic research: give blood
     
    Page 4: Executive at work
    ADSHG at Glasgow medical conference
    London medical lecture: the sports report
     
    Pages 5-7: Medical update
    Profile: Dr Simon Pearce
    Will my children inherit my Addison's?
    Everything you wanted to know about Addison's
     
    Pages 8-10: Personal experience
    Running with Addison's
    Ironman competition in Canada
    The doctor's view
     
    Page 10: Around the group
    Meeting reports
    Injection kit cases
     
    Page 11: Notices
    Regional meetings
    Medical seminars
     
    Page 12: Back page
    Reminders

    10 downloads

    Updated

  8. Free

    ADSHG Newsletter 083 - March 2006

    Addison's Disease Self Help Group newsletter, issue 83, March 2006
     
    Welcome to the spring 2006 newsletter for the ADSHG. The year got off to a promising start for everyone with Addison’s, when we heard that our submission to the English ambulance regulatory body had been accepted. You may find it surprising, but at present, ambulance crews in many parts of the country do not carry hydrocortisone and those who do, are not permitted to administer it for the prevention of adrenal crisis. This is a reflection of the rarity of our condition - in the past those drawing up the regulations for ambulance crews and paramedics had overlooked our needs. However, the situation will gradually improve from April 2006 onwards, as you can read on page 4 of this newsletter.
     

    Page 1: Front page
    Promise of better emergency paramedical treatment in future
    ADSHG poster
     
    Page 2: From the President
    Members' fundraising
     
    Pages 3-9: Medical update
    The emergency card works
    Emergency ambulance injections
    Addison's with a bump
    Thigh high club
    Profile: Dr Wiebke Arlt
     
    Pages 10-14: AGM
    AGM agenda
    Annual report 2005
    Accounts 2005
     
    Page 15: Notices
    Regional meetings
    Medical meetings
     
    Page 16: Back page
    Reminders

    11 downloads

    Updated

  9. Free

    ADSHG Newsletter 082 - December 2005

    Addison's Disease Self Help Group newsletter, issue 82, December 2005
     
    Welcome to our final newsletter for 2005. This has been a year of exciting developments for the group, which has seen several important projects come to fruition - most of which have been in the making for more than 12 months.
     

    Page 1: Front page
    Promoting better medical understanding of Addison's
    Surgical guidelines
     
    Page 2: From the President
    Christmas wishes to all
    Members’ fundraising
     
    Page 3: Recent news
    Guilford medical seminar
    US NORD gives recognition
     
    Page 4: About the executive
    Message from a member
    Trustees and their responsibilities
     
    Pages 5-7 Medical feature
    Addenbrookes seminar: Why are Addison’s patients difficult?
     
    Pages 8-9: Personal experience
    Hospital medication errors
    The doctor's view
     
    Page 10: Around the group
    Our Christmas card artists
    Research snippets
     
    Page 11: Notices
    Medical lecture 2006
    Call for trustees
    Regional meetings
    2006 subscription rates
     
    Page 12: Back page
    Reminders

    6 downloads

    Updated

  10. Free

    ADSHG Newsletter 081 - September 2005

    Addison's Disease Self Help Group newsletter, issue 81, September 2005
     
    Welcome to the 81st issue of the ADSHG newsletter. This is the first of our new-look newsletters and combines the regular print newsletter with our webnewsletter. It will be published four times a year, in September, December, March and June.
     

    Page 1: Front page
    Ensure you don't run out of essential steroid medication
    ADSHG emergency card
     
    Page 2: From the President
    Making friends across the ADSHG
    Regional reports
     
    Page 3: Recent news
    Fludrocortisone shortage continues
    Genetic research into the hereditory basis of Addison’s
     
    Page 4: Executive at work
    Our letter to Primary Care Trusts about medication needs
     
    Pages 5-8: Medical feature
    Professor John Wass’s 2005 lecture to the ADSHG
     
    Page 9: Around the group
    How the fludrocortisone shortage has affected us
    Member’s news
     
    Page 10: Personal experience
    What it means to be an ‘Expert Patient’
     
    Page 11: Notices
    Medical seminar and regional meetings for 2005
    Medical lecture 2006
    2006 subscription rates
    BMJ reviews our website
     
    Page 12: Back page
    Reminders

    9 downloads

    Updated

Sign in to follow this  
  • Reading & printing publications

    Our new web publications such as the new Hospital Folder are designed for easy on screen reading, simple home printing and accommodate vision impairment needs.

    ADSHG-home-print_articles.png

    Purchasing publications

    Full colour, commercial print quality

    publications are available to purchase from the online shop within the:

    ADSHG-shop_icon_article.png

About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

Get in touch

    Our Online Volunteers

  • pippa sharman
    pippa sharman
  • vsadler
    vsadler
  • annelben
    annelben
  • frances1
    frances1
  • suep1954
    suep1954

A dedicated team of volunteers contribute to and support the website, forum, shop, publications centre, video hub plus social media engagement on behalf of the charity.

×

Important Information

By using this website you are consenting to the use of cookies. Details about their use and how you can adjust your cookie settings are described in our cookie statement.