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ADSHG Newsletter 133 – September 2018

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About this Publication

Addison's Disease Self-Help Group newsletter, issue 133, September 2018

Welcome to the autumn 2018 edition of the ADSHG newsletter, with a refreshed, modern design. This new-look edition gives details of the forthcoming Special General Meeting and medical seminar, with messages from our Founder, the new Chair and the Treasurer. This issue also includes information on the prices of generic medicines and updates from ADSHG medical grant recipients. Additionally, Jane Hodgkins offers members helpful advice on how to reduce psychological stress and we report on ambulance awareness, fundraising events and social meetings.


Please note on page 6 of the online newsletter, we have included a clarification note from the Editor that is not available in the print copy: This article was contributed by Phillip Yeoh, who is one of our Trustees. The article should not be taken as medical advice, nor should it be taken as an endorsement by ADSHG for The London Clinic above other medical options open to readers.


This issue of the newsletter also contains the 2018 Christmas catalogue order form insert (included as an extra download file here), highlighting items and special offers available to purchase from our online Shop.


Page 2: Special General Meeting and medical seminar
Editor's letter


Page 3: Letter from our Founder
Deana's last column as President


Page 4: Message from the Chair
ADSHG transformation programme


Page 5: View from our Treasurer
Introduction to the editorial design team


Pages 6-7: An endocrine nurse specialist’s experience
Starting a continuous hydrocortisone infusion pump service in my clinic

Patients’ experience with the hydrocortisone pump


Page 8: Meet the Trustees - Andrew Glass
Volunteering time to help the ADSHG
Generic research - give blood


Page 9: Ambulance awareness
Copycat ambo services - state of flux on ambulance scene
Participation in the ULTRADIAN study


Page 10: Report on the third joint meeting of Addison’s Disease European Patients’ Organisations
Call for volunteer speakers
Renew your Medic Exempt card


Page 11: Coping with psychological stress
Jane Hodgkin provides advice on how to reduce psychological stress


Pages 12-13: ADSHG grant recipient reports
Three Award recipients provide an update on their areas of research


Pages 14-16: My perspective - stories from the Addison’s community
Check that prescription!
Run, Jennifer. Run!
A medical emergency and my hospital stay
An apple a day...


Page 17: IT@ADSHG
Engagement of IT partner to facilitate core IT support
Christmas 2018 special offers from the online Shop


Pages 18-19: Fundraising stories
Cuppa and cake at Caernarfon
Sam's Fundraiser Day
Featherstone Kickboxing Club


Pages 20-21: Ask the expert - The prices of generic medicines
Hydrocortisone prices at last coming down, but we need more help from you


Pages 22-23: Socials@Addisons
Event calendar
Social meetings and reports 
Volunteers needed for endocrine conferences 2018


Page 24: The back page
Subscription rates 2019
ADSHG Trustees, officers and volunteers

About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

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