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ADSHG Newsletter 134 - December 2018 1.0.0

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About this Publication

Addison's Disease Self-Help Group Newsletter 134, December 2018


Our latest members' newsletter is available for download. It's 24 pages packed with news, views and advice from the Addison's community - to the Addison's community.


Page 2 : Introduction to the Social Media Team

A note from the Editor


Page 3 : Hello, my name is...

Chris Pointon explains how his wife's experiences of palliative care drove this initiative


Page 4 : Introduction to the new CEO

Message from the Chair, Andrew Glass MBE


Page 5 : Report from the Guest Speaker at the AGM, June 2018

Professor Rob Murray's talk about EU AIR (EU Adrenal Insufficiency Register)

Newsletter front covers


Page 6 : View from our treasurer

An update on our conversion to CIO (Charitable Incorporated Organisation)


Page 7 : Fundraising update - supprt from Google, Iomart and SM&B

Meet the trustees

Congratulations to Prof Wiebke Arlt


Page 8 : Emergency injection training

Julie's ambulance awareness update

Royal Free patient group


Page 9 : Minutes of SGM, November 2018


Page 10 : Addison's Ireland update

Press releases


Page 11 : Volunteers wanted

Medical research grants


Page 12 : Ask the experts


Page 13 : Pump problems


Page 14 : Stories from the Addison's community


Page 15 : Great Scottish Swim

Adrenaline junkie?


Pages 16 & 17 & 18: Donations & fundraising


Pages 19 & 20 : Event calendar


Page 21 : 2019 subscriptions


Pages 22 & 23 : Spotlight on social media


Page 24 : Back cover

Christmas card 2019 competition

Contents and contact details


About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

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