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ADSHG Newsletter 134 - December 2018 1.0.0

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About this Publication

Addison's Disease Self-Help Group Newsletter 134, December 2018

 

Our latest members' newsletter is available for download. It's 24 pages packed with news, views and advice from the Addison's community - to the Addison's community.

 

Page 2 : Introduction to the Social Media Team

A note from the Editor

 

Page 3 : Hello, my name is...

Chris Pointon explains how his wife's experiences of palliative care drove this initiative

 

Page 4 : Introduction to the new CEO

Message from the Chair, Andrew Glass MBE

 

Page 5 : Report from the Guest Speaker at the AGM, June 2018

Professor Rob Murray's talk about EU AIR (EU Adrenal Insufficiency Register)

Newsletter front covers

 

Page 6 : View from our treasurer

An update on our conversion to CIO (Charitable Incorporated Organisation)

 

Page 7 : Fundraising update - supprt from Google, Iomart and SM&B

Meet the trustees

Congratulations to Prof Wiebke Arlt

 

Page 8 : Emergency injection training

Julie's ambulance awareness update

Royal Free patient group

 

Page 9 : Minutes of SGM, November 2018

 

Page 10 : Addison's Ireland update

Press releases

 

Page 11 : Volunteers wanted

Medical research grants

 

Page 12 : Ask the experts

 

Page 13 : Pump problems

 

Page 14 : Stories from the Addison's community

 

Page 15 : Great Scottish Swim

Adrenaline junkie?

 

Pages 16 & 17 & 18: Donations & fundraising

 

Pages 19 & 20 : Event calendar

 

Page 21 : 2019 subscriptions

 

Pages 22 & 23 : Spotlight on social media

 

Page 24 : Back cover

Christmas card 2019 competition

Contents and contact details

 




About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1179825.

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A dedicated team of volunteers contribute to and support the website, forum, shop, publications centre, video hub plus social media engagement on behalf of the charity.

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