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Found 6 results

  1. Version

    2,232 downloads

    Addison's disease is a rare condition and ambulance crews, such as emergency care assistants & paramedics, may only ever see a few patients with the condition. This briefing pack details the nature of adrenal emergencies and the ambulance crew's role in handling them. The ambulance briefing pack covers the following information Ambulance crew's role in pre‐hospital care Timelines for adrenal crisis Patient profiles Trigger factors for adrenal crisis Location for adrenal crisis onset & patient preparedness Causation “Hard case” scenario “Simple case” scenario Patient feedback Resources The publication is © ADSHG May 2016. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG

    Free

  2. Version

    4,859 downloads

    The ADSHG booklet 'When a student has Addison's: a guide for schools and parents' was written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment. This leaflet was developed jointly by ADSHG members Sue Chambers, Debbie Heaton and Katherine White. The ADSHG also wishes to thank Juliet Edwards, Jennifer Billingham, Sue Elford and Lindsey Farrow for reviewing the content. The booklet covers the following information: 1. What is Addison's 2. Day to day symptoms 3. Managing medication and fluids 4. Medical jewellery and other documentation 5. The Individual Healthcare Plan 6. Absences and support for education missed 7. Outside the classroom: school trips and sports 8. Exam arrangements 9. Transition to another school 10. Responding to sickness, injury and emergencies 11. Legislative guidance and further information 12. Suggested Individual Healthcare Plan template 13. Other essential contacts Our thanks to Professors John Wass, Simon Pearce, Wiebke Arlt, Dr Trevor Howlett and consultant endocrine nurse Phillip Yeoh of the Addison’s Clinical Advisory Panel for their guidance and input. This booklet is © ADSHG December 2015. It may be copied for educational or personal use or by medical practitioners for the education of their patients. Otherwise, it should not be reproduced without written permission from the ADSHG. Print copies are available in the online Shop on this link.

    Free

  3. Version

    800 downloads

    This leaflet, 'Caring for the patient with Addison's patient: information for GPs in Ireland', has been developed for the ADSHG by the Addison's Ireland Clinical Advisory Panel (AICAP), led by Professor Christopher Thompson. It outlines the role of the GP in managing Addison’s disease at each stage in the patient life cycle from diagnosis to old age, taking into account the health system in Republic of Ireland. The leaflet covers the following information: 1. Diagnosis 2. Medication management 3. Patient education for emergency prevention 4. Emergency treatment 5. Monitoring for 'Addison's Plus' 6. Care in special circumstances The Addison’s Ireland Clinical Advisory Panel (AICAP) is a group of endocrinologists with an interest in adrenal medicine. It advises the Addison’s Ireland group on medical matters. This leaflet has been authored by: Professor Christopher Thompson, Beaumont Hospital, Dublin; Dr Mark Sherlock AMNCH, Tallaght; Professor Domhnall O’Halloran Cork University Hospital. This leaflet is based on the original Information for GPs leaflet authored by the UK Addison’s Clinical Advisory Panel. It has been adapted for Addison’s Ireland by AICAP. The leaflet is © ADSHG March 2015. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  4. Version

    10,821 downloads

    This leaflet, 'Diagnosing Addison's: a guide for GPs', has been developed for the ADSHG by our Clinical Advisory Panel (ACAP), led by Professor John Wass. It outlines the role of the GP in the early detection of Addison's. This leaflet covers the following information: 1. Symptoms and clinical signs 2. GP role in urgent admissions 3. GP role in patient screening 4. Primary care investigations 5. Referral to a secondary specialist 6. The differential diagnosis 7. Associated endocrine conditions 8. Potential pitfalls 9. Worst outcomes if missed 10. Epidemiology 11. Key questions for the GP 12. GP follow-up The Addison’s Clinical Advisory Panel (ACAP) is a group of endocrinologists with an interest in adrenal medicine. It advises the ADSHG on medical matters. This leaflet was authored by: Prof John Wass Churchill Hospital, Oxford; Dr Trevor Howlett Leicester Royal Infirmary; Prof Wiebke Arlt University Hospital, Birmingham; Prof Simon Pearce Royal Victoria Infirmary, Newcastle; Prof John Monson St Bartholomew’s Hospital, London. The leaflet is © ADSHG March 2013. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  5. Version

    7,358 downloads

    This leaflet, 'Caring for the patient with Addison's: information for GPs', has been developed for the ADSHG by our Clinical Advisory Panel (ACAP), led by Professor John Wass. It outlines the role of the GP in managing Addison’s disease at each stage in the UK patient life cycle from diagnosis to old age. The leaflet covers the following information: 1. Diagnosis 2. Medication management 3. Patient education for emergency prevention 4. Emergency treatment 5. Monitoring for 'Addison's Plus' 6. Care in special circumstances The Addison’s Clinical Advisory Panel (ACAP) is a group of endocrinologists with an interest in adrenal medicine. It advises the ADSHG on medical matters. This leaflet was authored by: Prof John Wass Churchill Hospital, Oxford; Dr Trevor Howlett Leicester Royal Infirmary; Prof Wiebke Arlt University Hospital, Birmingham; Prof Simon Pearce Royal Victoria Infirmary, Newcastle; Prof John Monson St Bartholomew’s Hospital, London. The Addison's Clinical Advisory Panel has also authored: Diagnosing Addison's: a guide for GPs The leaflet is © ADSHG May 2015. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  6. Version

    12,763 downloads

    This ADSHG leaflet, Managing Addison's disease, has been developed for the ADSHG by our Clinical Advisory Panel. It provides a summary of the key points everyone with Addison's needs to know to manage their health. It is designed primarily to assist those who have been recently diagnosed and is ideal for hospitals and endocrinology units to give to their patients with Addison's. The leaflet covers the following information: What is Addison's disease? How is Addison's disease diagnosed? How is Addison's disease treated? What do I need to know about managing my medication? Are there any special precautions I will need to take? What could go wrong if I don't take enough medication? What kind of medical support and monitoring will I need? What kind of quality of life can I expect? Can I have children? What about sport and exercise? Are there any long-term side effects from my medication? Why is it called Addison's disease? The Addison’s Clinical Advisory Panel (ACAP) is a group of endocrinologists with an interest in adrenal medicine. It advises the ADSHG on medical matters. This leaflet has been authored by: Prof John Wass Churchill Hospital, Oxford, Dr Trevor Howlett Leicester Royal Infirmary, Prof Wiebke Arlt University Hospital, Birmingham Prof Simon Pearce Royal Victoria Infirmary, Newcastle Prof John Monson St Bartholomew’s Hospital, London. The leaflet is © ADSHG May 2014. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

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The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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