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Found 10 results

  1. This video, produced by the Royal Bournemouth and Christchurch Hospitals NHS Trust, describes one tragic case where omission of steroids resulted in the death of a vulnerable young man who was steroid-dependent with complex comborbidities. The ADSHG wishes to thank the family of Robin Brett and Dr Tristan Richardson for permission to publish this video. Further information regarding awareness and policy submissions can be found within the Promoting patient safety and medical awareness section of the website.
  2. Version

    2,233 downloads

    Addison's disease is a rare condition and ambulance crews, such as emergency care assistants & paramedics, may only ever see a few patients with the condition. This briefing pack details the nature of adrenal emergencies and the ambulance crew's role in handling them. The ambulance briefing pack covers the following information Ambulance crew's role in pre‐hospital care Timelines for adrenal crisis Patient profiles Trigger factors for adrenal crisis Location for adrenal crisis onset & patient preparedness Causation “Hard case” scenario “Simple case” scenario Patient feedback Resources The publication is © ADSHG May 2016. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG

    Free

  3. Version

    800 downloads

    This leaflet, 'Caring for the patient with Addison's patient: information for GPs in Ireland', has been developed for the ADSHG by the Addison's Ireland Clinical Advisory Panel (AICAP), led by Professor Christopher Thompson. It outlines the role of the GP in managing Addison’s disease at each stage in the patient life cycle from diagnosis to old age, taking into account the health system in Republic of Ireland. The leaflet covers the following information: 1. Diagnosis 2. Medication management 3. Patient education for emergency prevention 4. Emergency treatment 5. Monitoring for 'Addison's Plus' 6. Care in special circumstances The Addison’s Ireland Clinical Advisory Panel (AICAP) is a group of endocrinologists with an interest in adrenal medicine. It advises the Addison’s Ireland group on medical matters. This leaflet has been authored by: Professor Christopher Thompson, Beaumont Hospital, Dublin; Dr Mark Sherlock AMNCH, Tallaght; Professor Domhnall O’Halloran Cork University Hospital. This leaflet is based on the original Information for GPs leaflet authored by the UK Addison’s Clinical Advisory Panel. It has been adapted for Addison’s Ireland by AICAP. The leaflet is © ADSHG March 2015. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  4. Version

    1,046 downloads

    The ADSHG drugs chart steroid alert stickers are intended for people with Addison's to take with them for day case and inpatient surgical procedures to alert nursing and medical staff to their steroid-dependence and their time-critical need for steroid medication when unwell. One hospital sticker. Pre-printed copies of the drugs chart steroid alert stickers are also available for purchase from our shop ADSHG drugs chart steroid alert stickers (item 303).

    Free

  5. Version

    3,156 downloads

    'Nursing the Addison's patient: notes for nurses' was written with hospital ward nursing staff in mind, for those times when anyone with Addison's becomes an inpatient. This might be for elective surgery or during the recovery from an adrenal crisis. This leaflet has been authored by the Addison's Clinical Advisory Panel, with assistance from specialist endocrine nurse Nikki Kieffer. The ADSHG's enquiries during 2012 suggest that over half of the UK’s nursing colleges do not yet cover steroid-dependence in their undergraduate curriculum. This means that many ward nurses will have no understanding of the importance of steroid medication or how quickly anyone with Addison's could experience the damaging effects of steroid deprivation, especially during the recovery from surgery or a crisis. The leaflet is © ADSHG March 2013. It may be copied for personal use or by medical practitioners for the education of their colleagues. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  6. Version

    10,286 downloads

    The ADSHG adrenal crisis guidelines give emergency medical treatment guidance for ambulance or hospital staff in the event of a person with Addison's experiencing an adrenal crisis. These guidelines should be signed by your GP or specialist, to verify your condition. In addition to the adrenal crisis guidelines, you can also purchase the same emergency instructions in a handy credit card sized concertina wallet card from our shop ADSHG emergency wallet card (item 301) Foreign language crisis guidelines For those who live outside the UK or are travelling abroad, the ADSHG adrenal crisis guidelines have been translated into a number of different language versions by native-speaking clinicians. We would like to thank all those involved in the translations for their assistance. Click the following links for the related download page: Cantonese (Hong Kong Chinese) language crisis guidelines French language crisis guidelines German language crisis guidelines Greek language crisis guidelines Italian language crisis guidelines Mandarin (Putonghua) language crisis guidelines Portuguese language crisis guidelines Russian language crisis guidelines Spanish language crisis guidelines Thai language crisis guidelines The leaflet is © ADSHG December 2015. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  7. Version

    13,386 downloads

    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed for the ADSHG by our Clinical Advisory Panel. They explain what level of extra medication and monitoring you will need in the event of most types of surgery or dental work. If you are having elective surgery in hospital, for example a hip operation, it would be sensible to give your surgeon and anaesthetist a copy of the guidelines well in advance of your surgery date. It is also advisable to take the guidelines with you when you go in to hospital and discuss them with your nursing staff, so that they are aware of the post-operative care you need. These guidelines: a. List the ten main types of surgical procedure, each requiring a different level of steroid cover b. Specify the glucocorticoid medication and post-operative treatment requirements for each type of procedure in an easy-to-read table c. Bring together the most up-to-date endocrine knowledge on cortisol replacement in the steroid-dependent patient d. Reflect a prudent level of steroid cover that can safely be administered by non-endocrinologists. These guidelines apply to all individuals who are steroid-dependent, so they are relevant to people with hypopituitarism as well as Addison's. The leaflet is © ADSHG May 2017. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  8. Version

    10,821 downloads

    This leaflet, 'Diagnosing Addison's: a guide for GPs', has been developed for the ADSHG by our Clinical Advisory Panel (ACAP), led by Professor John Wass. It outlines the role of the GP in the early detection of Addison's. This leaflet covers the following information: 1. Symptoms and clinical signs 2. GP role in urgent admissions 3. GP role in patient screening 4. Primary care investigations 5. Referral to a secondary specialist 6. The differential diagnosis 7. Associated endocrine conditions 8. Potential pitfalls 9. Worst outcomes if missed 10. Epidemiology 11. Key questions for the GP 12. GP follow-up The Addison’s Clinical Advisory Panel (ACAP) is a group of endocrinologists with an interest in adrenal medicine. It advises the ADSHG on medical matters. This leaflet was authored by: Prof John Wass Churchill Hospital, Oxford; Dr Trevor Howlett Leicester Royal Infirmary; Prof Wiebke Arlt University Hospital, Birmingham; Prof Simon Pearce Royal Victoria Infirmary, Newcastle; Prof John Monson St Bartholomew’s Hospital, London. The leaflet is © ADSHG March 2013. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  9. Version

    7,358 downloads

    This leaflet, 'Caring for the patient with Addison's: information for GPs', has been developed for the ADSHG by our Clinical Advisory Panel (ACAP), led by Professor John Wass. It outlines the role of the GP in managing Addison’s disease at each stage in the UK patient life cycle from diagnosis to old age. The leaflet covers the following information: 1. Diagnosis 2. Medication management 3. Patient education for emergency prevention 4. Emergency treatment 5. Monitoring for 'Addison's Plus' 6. Care in special circumstances The Addison’s Clinical Advisory Panel (ACAP) is a group of endocrinologists with an interest in adrenal medicine. It advises the ADSHG on medical matters. This leaflet was authored by: Prof John Wass Churchill Hospital, Oxford; Dr Trevor Howlett Leicester Royal Infirmary; Prof Wiebke Arlt University Hospital, Birmingham; Prof Simon Pearce Royal Victoria Infirmary, Newcastle; Prof John Monson St Bartholomew’s Hospital, London. The Addison's Clinical Advisory Panel has also authored: Diagnosing Addison's: a guide for GPs The leaflet is © ADSHG May 2015. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  10. Version

    12,763 downloads

    This ADSHG leaflet, Managing Addison's disease, has been developed for the ADSHG by our Clinical Advisory Panel. It provides a summary of the key points everyone with Addison's needs to know to manage their health. It is designed primarily to assist those who have been recently diagnosed and is ideal for hospitals and endocrinology units to give to their patients with Addison's. The leaflet covers the following information: What is Addison's disease? How is Addison's disease diagnosed? How is Addison's disease treated? What do I need to know about managing my medication? Are there any special precautions I will need to take? What could go wrong if I don't take enough medication? What kind of medical support and monitoring will I need? What kind of quality of life can I expect? Can I have children? What about sport and exercise? Are there any long-term side effects from my medication? Why is it called Addison's disease? The Addison’s Clinical Advisory Panel (ACAP) is a group of endocrinologists with an interest in adrenal medicine. It advises the ADSHG on medical matters. This leaflet has been authored by: Prof John Wass Churchill Hospital, Oxford, Dr Trevor Howlett Leicester Royal Infirmary, Prof Wiebke Arlt University Hospital, Birmingham Prof Simon Pearce Royal Victoria Infirmary, Newcastle Prof John Monson St Bartholomew’s Hospital, London. The leaflet is © ADSHG May 2014. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

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The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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