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Found 34 results

  1. Version 1.0.0

    231 downloads

    Addison's Disease Self-Help Group Newsletter 134, December 2018 Our latest members' newsletter is available for download. It's 24 pages packed with news, views and advice from the Addison's community - to the Addison's community. Page 2 : Introduction to the Social Media Team A note from the Editor Page 3 : Hello, my name is... Chris Pointon explains how his wife's experiences of palliative care drove this initiative Page 4 : Introduction to the new CEO Message from the Chair, Andrew Glass MBE Page 5 : Report from the Guest Speaker at the AGM, June 2018 Professor Rob Murray's talk about EU AIR (EU Adrenal Insufficiency Register) Newsletter front covers Page 6 : View from our treasurer An update on our conversion to CIO (Charitable Incorporated Organisation) Page 7 : Fundraising update - supprt from Google, Iomart and SM&B Meet the trustees Congratulations to Prof Wiebke Arlt Page 8 : Emergency injection training Julie's ambulance awareness update Royal Free patient group Page 9 : Minutes of SGM, November 2018 Page 10 : Addison's Ireland update Press releases Page 11 : Volunteers wanted Medical research grants Page 12 : Ask the experts Page 13 : Pump problems Page 14 : Stories from the Addison's community Page 15 : Great Scottish Swim Adrenaline junkie? Pages 16 & 17 & 18: Donations & fundraising Pages 19 & 20 : Event calendar Page 21 : 2019 subscriptions Pages 22 & 23 : Spotlight on social media Page 24 : Back cover Christmas card 2019 competition Contents and contact details

    Free

  2. Version

    385 downloads

    Addison's Disease Self-Help Group newsletter, issue 133, September 2018 Welcome to the autumn 2018 edition of the ADSHG newsletter, with a refreshed, modern design. This new-look edition gives details of the forthcoming Special General Meeting and medical seminar, with messages from our Founder, the new Chair and the Treasurer. This issue also includes information on the prices of generic medicines and updates from ADSHG medical grant recipients. Additionally, Jane Hodgkins offers members helpful advice on how to reduce psychological stress and we report on ambulance awareness, fundraising events and social meetings. Please note on page 6 of the online newsletter, we have included a clarification note from the Editor that is not available in the print copy: This article was contributed by Phillip Yeoh, who is one of our Trustees. The article should not be taken as medical advice, nor should it be taken as an endorsement by ADSHG for The London Clinic above other medical options open to readers. This issue of the newsletter also contains the 2018 Christmas catalogue order form insert (included as an extra download file here), highlighting items and special offers available to purchase from our online Shop. Page 2: Special General Meeting and medical seminar Editor's letter Page 3: Letter from our Founder Deana's last column as President Page 4: Message from the Chair ADSHG transformation programme Page 5: View from our Treasurer Introduction to the editorial design team Pages 6-7: An endocrine nurse specialist’s experience Starting a continuous hydrocortisone infusion pump service in my clinic Patients’ experience with the hydrocortisone pump Page 8: Meet the Trustees - Andrew Glass Volunteering time to help the ADSHG Generic research - give blood Page 9: Ambulance awareness Copycat ambo services - state of flux on ambulance scene Participation in the ULTRADIAN study Page 10: Report on the third joint meeting of Addison’s Disease European Patients’ Organisations Call for volunteer speakers Renew your Medic Exempt card Page 11: Coping with psychological stress Jane Hodgkin provides advice on how to reduce psychological stress Pages 12-13: ADSHG grant recipient reports Three Award recipients provide an update on their areas of research Pages 14-16: My perspective - stories from the Addison’s community Check that prescription! Run, Jennifer. Run! A medical emergency and my hospital stay An apple a day... Page 17: IT@ADSHG Engagement of IT partner to facilitate core IT support Christmas 2018 special offers from the online Shop Pages 18-19: Fundraising stories Cuppa and cake at Caernarfon Sam's Fundraiser Day Featherstone Kickboxing Club Pages 20-21: Ask the expert - The prices of generic medicines Hydrocortisone prices at last coming down, but we need more help from you Pages 22-23: Socials@Addisons Event calendar Social meetings and reports Volunteers needed for endocrine conferences 2018 Page 24: The back page Subscription rates 2019 Reminders ADSHG Trustees, officers and volunteers

    Free

  3. Version

    556 downloads

    The ADSHG 'When an employee has Addison's' leaflet was written to help those newly diagnosed – or changing jobs – to explain their condition to an employer. This leaflet was developed jointly by: Ian Carswell, Sue Chambers, Sue Downey, Alyson Elliott, Siobhan Haskey, Nigel Ingham, Siobhan Tolland and Katherine White. Our thanks to Professors John Wass, Simon Pearce, Wiebke Arlt and Dr Trevor Howlett of the Addison’s Clinical Advisory Panel for their guidance and input. The leaflet covers the following information: 1. How Addison’s may affect people at work 2. Ongoing symptoms 3. Adrenal crisis 4. Time off work 5. Addison’s and disability law 6. Possible adjustments 6. Supporting an employee with Addison’s The leaflet is © ADSHG September 2015. Copyright permission will not be unreasonably withheld and 'personal use' can be assumed to cover copies related to the personal employment circumstances of an individual.

    Free

  4. Version

    666 downloads

    Addison's Disease Self-Help Group newsletter, issue 132, June 2018 Welcome to the summer 2018 edition of the ADSHG newsletter. This issue has a special travel and holidays feature with lots of helpful tips and reminders for making the most of your holidays, including guidance about the EHIC. Friends and ADSHG members pay tribute to former trustee Sue Chambers, who sadly ended her struggle with leukemia at Easter. Following the introduction of the GDPR in May, learn how we are protecting your data and how you can check and update your accounts details online. Additionally, we report on Addison's Ireland, fundraising events, social meetings and ambulance awareness. Page 1: High days & holidays New British 10mg hydrocortisone supplier Run for Addison's in the Great South Run 2018 Page 2: From the President AGM and medical lecture Page 3: Recent news A tribute to Sue Chambers Page 4: Brexit briefing Enjoy the EHIC while it lasts EMA reassigns all UK contracts Pages 5-7: Travel and holidays Tips & reminders for making the most of the holidays Lanzarote swings and roundabouts An unexpected sting in Corfu Seeing the world with Addison’s Pages 8-9: Ambulance awareness Speaking from the heart - a talk with Liverpool student paramedics Bristol student paramedic conference Julie’s ambulance awareness update Page 10: Ireland update Working with the Addison's Ireland clinical panel Help wanted at the autumn meeting Still time to add your voice Pages 11-13: Around the group About the money Complete your ADSHG member survey Lumpy Lane - a recipe from Sue Chambers Wibbly wobbly webby - protecting your data & privacy under GDPR How to check your ADSHG account details online Pages 13-14: Fundraising roundup Garstang Gallop Fundraising Fridays on social media Rare Diseases Day in-store fundraiser Twin bake sale Phoenix dinner dance Pages 14-15: Social corner A piece of cake - thoughts on getting involved with social meetings Social news and reports Social and medical meetings 2018 Page 16: The back page Reminders 2018 subscription rates Help needed for Endocrine conferences 2018 ADSHG trustees and officers

    Free

  5. Version 1.0.0

    631 downloads

    Addison's Disease Self-Help Group newsletter, issue 131, March 2018 Welcome to the spring 2018 edition of the ADSHG newsletter. This issue contains exciting drug news on a new hydrocortisone formulation for children and a comprehensive Brexit update. Whether you are looking to get fit or already participating in a sport, Dr Rob Andrews offers lots of instructive advice about staying on top of an exercise programme with Addison's, while Jane Hodgkin reveals how words and phrases we use influence our moods and outlook. Recent medical research news, an ambulance update, fundraising stories, a website browsing guide and news on upcoming meetings complete this informative spring edition. Page 1: Spring is in the air Complete the ADSHG member survey! Great South Run 2018 Page 2: From the President About the money Interested in becoming a trustee? Page 3: Recent drug news Diurnal’s Alkindi gets the go-ahead Emergency supply from community pharmacies Page 4: Brexit briefing Prepare for the worst: hope for the best Page 5: Adrenal medicines Adrenal medicines in the UK and Ireland European Medicines Agency prepares to leave Page 6: Recent medical research Infectious causes of Addison’s Swedish patients with Autoimmune Addison’s are not overweight Page 7: Life skills Words for feeling better or worse Register with your ambulance trust Page 8: Ambulance update Turbulence on the ambulance scene A Christmas shopping surprise Page 9-11: Exercise and Addison's Bangkok Bulletin of teeth brushing and 750km Rare Diseases Day Tweet chat Powered by Krispy Kremes Staying on top of an exercise programme with Addison’s Page 12: Around the group Wibbly wobbly webby Page 12-13: Fundraising A guide for new hosts holding an Addison’s social meeting Fundraising stories Tuna bake recipe Page 14-15: Social update Meeting reports School charity events 2018 social and medical meetings Page 16: The back page Reminders 2018 subscription rates Endocrine conferences 2018

    Free

  6. Version 1.0.0

    612 downloads

    Addison's Disease Self Help Group newsletter, issue 130, December 2017 Welcome to the winter 2017 edition of the ADSHG newsletter. This issue is bursting at the seams with news - essential drug updates, work on ambulance awareness and conference reports from members, as well as members' personal stories, fundraising updates and meeting dates. We wish all our members a very Happy Christmas and a healthy New Year! Page 1: Happy New Year 2018, everyone! 2018 subscription rise Online adrenal questionnaire now live Page 2: From the President About the money Page 3-4: Recent news New ambulance guidelines on adrenal crisis Julie's ambo update: moving the goalposts? Page 5-6: Drug news New shortage of liquid injectable hydrocortisone Chronocort update: cortisol replacement Page 7-9: Awareness update Exeter workshop on hormone dynamics CMA decision on unfair drug pricing ADSHG at the medical conferences ADSHG nursing prize awarded to ADSHG trustee! Page 10: Around the group ADSHG submission to Health Committee on Brexit - medicines Wibbly wobbly webby Page 10-12: Personal stories Living with a cortisol alert dog 66 years with Addison's Romance is not just for the young Page 13: Fundraising update Cookery book launch Runners' personal bests! Page 14-15: Social update Gill's goodbye column Meeting reports 2018 social and medical meetings 2018 fundraising events Page 16: The back page Reminders Conference dates 2018 subscription rates ADSHG trustees and officers

    Free

  7. Version

    625 downloads

    Addison’s Disease Self Help Group newsletter, issue 129, September 2017 Welcome to the autumn 2017 edition of the ADSHG newsletter. This issue announces the arrival of the Addison’s cookery book, a enticing collection of healthy recipes compiled by Sue Chambers, with the story of how it came together. Our central feature reflects on June’s successful and enjoyable annual general meeting and medical lecture. Additionally, we report on the latest drug news, ambulance awareness and the ADSHG medical research grant, as well as the launch of the upgraded website. This issue of the newsletter also contains the 2017 Christmas catalogue order form insert (included as an extra download file here), highlighting items – including those all-important stocking fillers – available to purchase from our online shop. Page 1: Hot news from the kitchen Christmas catalogue 2017 Don’t forget your flu vaccine Page 2: From the President About the money Page 3: Sue’s cookbook Page 4: Brexit update Customs uncertainty: possible drug supply disruptions Page 5-6: ADSHG and UK news Repeat prescription length and reserve supply Winter flu vaccine reminder Medical research grant report: uncovering biomarkers for steroid-dependent patients Fludrocortisone price hike causes hardship for dog owners Natural killer cells and Addison’s Page 7: Around the group Talking to Sheffield medical students Injectable hydrocortisone in Ireland Price watch Pages 8-10: AGM report Personal impressions from a volunteer Finance report Social media report Minutes of the 2017 AGM Page 11: Ambulance awareness Ambo update: get yourself registered! East of England ambulance to the rescue Spotlight on Living Well Page 12: Personal experience Molly’s mind - blogging my way through life Page 13: Fundraising update Donations report Page 14-15: Social update Gill’s social corner 2017/8 social and medical meetings Page 16: The back page Reminders Conference dates 2018 subscription rates ADSHG trustees and officers

    Free

  8. Version

    607 downloads

    Addison's Disease Self Help Group newsletter, issue 128, June 2017 Welcome to the summer 2017 edition of the ADSHG newsletter. This issue reports promising developments towards the new Zeneo autoinject device. We have more positive news on A&E awareness in Ireland and a report from Dr Anna Mitchell on her ongoing genetic analyses. In addition, we focus on the website updates to Living well and the launch of our injection videos on YouTube. In this issue Page 1: Planning your summer get-away? AGM and medical lecture tickets Page 2: From the President About the money Page 3–4: Recent drug news Latest news on the Zeneo needle-free auto-injection device Infacort update Brexit and the dispute over the European Medicines Agency relocation Page 5–6: ADSHG news Addison’s Ireland progresses A&E awareness Society for Endocrinology conference Grant for uncovering more about the genetic susceptibility of autoimmune Addison’s Updated surgical guidelines Page 7: Ambulance scene Have you seen the ambulance Forum makeover? North West ambulance to the rescue Registering with your local ambulance trust Page 8: Website news Spotlight on updates to Living well, Ambulance and A&E forums and YouTube injection video launch Page 9–10 Help with applying to university and support available through the Disability Living Allowance Page 11–12: Personal stories Ibiza eye-opener Injection video saves the day in Zurich Food poisoning risk from broken salad leaves Page 13: Fundraising update Pub quiz night Donations report Page 14–15: Social update Gill’s social corner 2017 social and medical meeting Page 16: The back page Reminders 2017 subscriptions ADSHG trustees and officers

    Free

  9. Version

    614 downloads

    Addison's Disease Self Help Group newsletter, issue 127, March 2017 Welcome to the March 2017 edition of the ADSHG newsletter. This issue has exciting news about drug developments on the horizon for this year as well as discussing the potential impacts of Brexit on patients. Additionally, we look at our Group's ongoing efforts to build positive diaglogue with medics in the UK and Ireland and focus on our new website updates. In this issue: Page 1: Get running AGM medical lectures and tickets Page 2: From the President About the money Pages 3-4: Recent drug news New needle-free injection device in the pipeline Infacort update Brexit and European Medicines Agency Future access to orphan drugs Pages 5-6: Ambulance scene Ambulance regulator invites our input Nursing and medical staff shortages set to increase What's new on the ambulance scene? Pages 6-7: Recent news New website tasting menu and new Living Well dishes to try British Society for Paediatric Endocrinology annual conference Pages 8-10: Features Coping with ... your GP practice Famous lives: Saint Elizabeth of the Trinity Pages 11-12: Personal stories Office first aid: ADSHG videos to the resuce Bootneck recovery Windermere cold plunge Page 13: Fundraising update Pages 14-15: Social update Gill's social corner 2017 social and medical meetings Page 16: The back page Reminders 2017 subscriptions

    Free

  10. Version

    600 downloads

    Addison's Disease Self Help Group newsletter, issue 125, September 2016 Welcome to the September 2016 edition of the ADSHG newsletter. After what has been an eventful few months for the country, this issue is packed full with news from our members and supporters on initiatives to support better care for people with Addison’s. This issue of the newsletter also contained a Christmas shop order form insert, highlighting items available to purchase from our online shop. In this issue: Page 1: Our community of supporters With this issue Chinese emergency treatment translations Page 2: From the President About the money Page 3: Recent drug news Campaign to add steroids for Addison's to Critical Medicines List ADSHG submission to the Scottish Medicines Consortium on Plenadren Page 4: UK news Brexit - what are the implications? Page 5: Life skills Coping with ... telling family and friends Prevention is better than cure - get a flu vaccination this winter ADSHG Twitter Chat raises awareness Register your Addison's with your local ambulance trust Page 6: Research news Uncovering the purpose of the CYP21A1P pseudogene Pages 7-9: ADSHG AGM and annual report A social and informative day out Treasurer's report Publications and media team report Page 10: Personal stories Kate Granger - #hellomynameis Page 11: Personal experience On the move with Addison's Pages 12-13: Fundraising update Pages 14-15: Social corner Gill's social corner 2016 social and medical meetings Page 16: The back page Reminders 2016 subscription rate

    Free

  11. Version

    2,233 downloads

    Addison's disease is a rare condition and ambulance crews, such as emergency care assistants & paramedics, may only ever see a few patients with the condition. This briefing pack details the nature of adrenal emergencies and the ambulance crew's role in handling them. The ambulance briefing pack covers the following information Ambulance crew's role in pre‐hospital care Timelines for adrenal crisis Patient profiles Trigger factors for adrenal crisis Location for adrenal crisis onset & patient preparedness Causation “Hard case” scenario “Simple case” scenario Patient feedback Resources The publication is © ADSHG May 2016. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG

    Free

  12. Version

    704 downloads

    Addison's Disease Self Help Group newsletter, issue 124, June 2016 Welcome to the June 2016 edition of the ADSHG newsletter. This issue is packed full of news about some surprising recent drug developments, some positive ambulance news, the forthcoming relaunch of our main website, recent marathon triumphs of our fundraising runners, and some riveting personal travel stories. In this issue: Page 1: Making the most of the summer holidays New in the ADSHG shop In this issue Page 2: From the President About the money Emergency injection videos Page 3: Medications update Lactose-free hydrocortisone Fludrocortisone out of the fridge! New round hydrocortisone New pack design, same product 2.5mg hydrocortisone pellets: not so strong Pages 4-5: The new look ADSHG website arrives Page 6: Ambulance news Calling 999: hints and tips Page 7: Conference news ADSHG at medical conferences Pages 8-9: Travel with Addison's Holiday season You can never be too sure Rare Disease Day: raising awareness of Addison's Pages 10-12: Personal experience A sky-high crisis The doctor's view... Fulfilling a dream: running the London marathon Pages 12-13: Fundraising Pages 14-15: Social corner Gill's social corner 2016 social and medical meetings Page 16: The back page Reminders 2016 subscription rate

    Free

  13. Version

    805 downloads

    Addison's Disease Self Help Group newsletter, issue 123, March 2016 Welcome to the spring 2016 issue of the ADSHG newsletter. This issue is packed with riveting personal stories, all with a happy ending. In this issue: Page 1: Springing into spring Video launch Marathon mission Page 2: From the President About the money Meet the new clinical panel Pages 3–4: Recent drug news Fludrocortisone scare Hydrocortisone concerns Hydrocortisone 2.5mg pellets: are they an alternative? Pages 4–5: Ambulance news Ambulance protocols: Irish success story East of England ambulance protocols Pages 6–9: Personal experience ADSHG videos help prepare for emergency injection Our first emergency injection experience Diagnosis slow: sodium low The doctor's viewpoint Pages 9–10: Around the group Hydrocortisone and levothyroxine: double trouble or harmonious duet? Pages 10–13: Fitness focus Land's End to John O'Groats: the long way back to the top Capital Marathon Challenge Running to success Pages 13–14: Fundraising Pages 14–15: Social corner Gill's social corner 2016 social and medical meetings Page 16: Back page Reminders 2016 subscription rate

    Free

  14. Version

    480 downloads

    Addison's Disease Self Help Group Newsletter, issue 122, December 2015 ​Welcome to the winter 2015 issue of the ADSHG newsletter. This issue celebrates the achievements of our members and their families in 2015, during which they have climbed mountains, swum the ocean and run races on our behalf. In this issue: Page 1: A box of celebrations at Christmas ADSHG schools leaflet now online Direct Debit: with this issue Page 2: From the President About the money Pages 3-5: Mont Blanc special Climbing Mont Blanc - with Addison's and Bessie Bear High altitude climbing with Addison's - the practicalities Pages 6-7: Conference report ADSHG at the Edinburgh Endocrine Conference 2015 Feedback from volunteers on our stand ADSHG posters Pages 8-9: Around the group Edinburgh seminar: observations from the floor Register with your ambulance trust Remember your flu vaccine Send a card this Christmas Wibbly, Wobbly, Webby Pulses study update Pages 10-12: Personal experience Bangkok life: nothing like an early start European odyssey Have a very restful Christmas Donations report Pages 12-15: Social corner Margaret's social corner Addison's Ireland meeting: Limerick Hospital meeting a huge success Social and medical meetings Page 16: Back page Reminders 2016 subscription rates This issue of the newsletter also contained a special fundraising insert highlighting our members' and supporters' fundraising achievements throughout 2015.

    Free

  15. Version

    612 downloads

    ADSHG medical and seminars – presented by leading medics in the field of adrenal insufficiency This document contains all the slide presentation summaries from the ADSHG seminars and lectures from 2004 to 2010. The individual presentation downloads from each year are also available separately in the publications centre along with the the two most recent medical lectures which are not included in the compendium. ADSHG medical lecture 2011 ADSHG medical lecture 2012

    Free

  16. Version

    4,860 downloads

    The ADSHG booklet 'When a student has Addison's: a guide for schools and parents' was written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment. This leaflet was developed jointly by ADSHG members Sue Chambers, Debbie Heaton and Katherine White. The ADSHG also wishes to thank Juliet Edwards, Jennifer Billingham, Sue Elford and Lindsey Farrow for reviewing the content. The booklet covers the following information: 1. What is Addison's 2. Day to day symptoms 3. Managing medication and fluids 4. Medical jewellery and other documentation 5. The Individual Healthcare Plan 6. Absences and support for education missed 7. Outside the classroom: school trips and sports 8. Exam arrangements 9. Transition to another school 10. Responding to sickness, injury and emergencies 11. Legislative guidance and further information 12. Suggested Individual Healthcare Plan template 13. Other essential contacts Our thanks to Professors John Wass, Simon Pearce, Wiebke Arlt, Dr Trevor Howlett and consultant endocrine nurse Phillip Yeoh of the Addison’s Clinical Advisory Panel for their guidance and input. This booklet is © ADSHG December 2015. It may be copied for educational or personal use or by medical practitioners for the education of their patients. Otherwise, it should not be reproduced without written permission from the ADSHG. Print copies are available in the online Shop on this link.

    Free

  17. Version

    215 downloads

    How to organise an ADSHG social meeting in your area

    Free

  18. Version

    1,449 downloads

    This education booklet, 'What is Addison’s?' was written with school projects in mind and provides some basic information on the condition. The booklet gives a little history of Addison’s, from its discovery by Dr Thomas Addison in 1855, through the scientific and medical advances that occurred in the twentieth century, concluding with an overview of what life is like today for people with Addison’s. It includes a section of definitions explaining some of the medical terms used in endocrinology. This booklet is probably most useful for senior high school biology and social history topics, but may also be relevant for junior science projects. The booklet can be downloaded in colour or black and white versions - just click the download button. To photocopy this booklet, set your printer to 'Fit to printable area' and to 'Black and White' print. It will then print to a photocopiable standard on a full A4 page. A companion product 'What is Addison's?' A3 educational poster is also available. The booklet is © ADSHG September 2015. This booklet may be copied for educational purposes, that is for teachers to use with their students and for medical practitioners to use with their patients, or for personal use. Otherwise, it should not be reproduced without written permission from the ADSHG.

    Free

  19. Version

    763 downloads

    This A3 colour poster is a companion product to the education booklet, 'What is Addison’s?', which was written with school projects in mind and provides some basic information on the condition. The education booklet gives a little history of Addison’s, from its discovery by Dr Thomas Addison in 1855, through the scientific and medical advances that occurred in the twentieth century, concluding with an overview of what life is like today for people with Addison’s. The education booklet that accompanies this poster is also available to download. This poster is © ADSHG September 2015. This poster may be copied for educational purposes, that is for teachers to use with their students and for medical practitioners to use with their patients, or for personal use. Otherwise, it should not be reproduced without written permission from the ADSHG.

    Free

  20. Version

    800 downloads

    This leaflet, 'Caring for the patient with Addison's patient: information for GPs in Ireland', has been developed for the ADSHG by the Addison's Ireland Clinical Advisory Panel (AICAP), led by Professor Christopher Thompson. It outlines the role of the GP in managing Addison’s disease at each stage in the patient life cycle from diagnosis to old age, taking into account the health system in Republic of Ireland. The leaflet covers the following information: 1. Diagnosis 2. Medication management 3. Patient education for emergency prevention 4. Emergency treatment 5. Monitoring for 'Addison's Plus' 6. Care in special circumstances The Addison’s Ireland Clinical Advisory Panel (AICAP) is a group of endocrinologists with an interest in adrenal medicine. It advises the Addison’s Ireland group on medical matters. This leaflet has been authored by: Professor Christopher Thompson, Beaumont Hospital, Dublin; Dr Mark Sherlock AMNCH, Tallaght; Professor Domhnall O’Halloran Cork University Hospital. This leaflet is based on the original Information for GPs leaflet authored by the UK Addison’s Clinical Advisory Panel. It has been adapted for Addison’s Ireland by AICAP. The leaflet is © ADSHG March 2015. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  21. Version

    2,365 downloads

    Solu-Cortef© emergency injection: illustrated instructions The ADSHG emergency injection instructions are supplied as part of the emergency injection kits and refill packs in our online shop. The leaflet is © ADSHG March 2013. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  22. Version

    1,816 downloads

    Hydrocortisone emergency injection: illustrated instructions This leaflet details how to give an emergency injection of hydrocortisone sodium phosphate (liquid hydrocortisone). The ADSHG emergency injection instructions are supplied as part of the emergency injection kits and refill packs in our shop. The leaflet is ©ADSHG March 2015. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  23. Version

    1,257 downloads

    Solu-Cortef© the Act-o-Vial© emergency injection: illustrated instructions. The Act-o-Vial is not available in the UK as the product distributed in Europe contains a banned additive, benzyl alcohol. However, it is now the standard form of injectable hydrocortisone sodium succinate distributed by Pfizer, the licence holder, in North America, Austalasia and mainland Europe. The product distributed in North America does not contain benzyl alcohol and some private clinics are importing this formulation to the UK. We publish these photo instructions on our website, for the benefit of our overseas members or anyone who has obtained a private prescription for an Act-o-Vial within the UK. Please note that the ADSHG does not issue paper copies of the Act-o-Vial instructions with the injection kits on sale in the ADSHG web Shop. The leaflet is ©ADSHG November 2015. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

    Free

  24. Version

    51 downloads

    Addison's Disease Self Help group newsletter, issue 118, December 2014 Welcome to the winter 2014 newsletter. There is good news and bad news in this issue. The bad news is about the shortage of injectable liquid hydrocortisone – Efcortesol – as you can read on page 3. The rest of the newsletter is more positive, beginning with a diary exclusive from Nathan Gafuik, the 29-year old with Addison’s who led the Canadian gymnastics team at the Glasgow Commonwealth Games this summer. Page 1: Front page ...and a healthy new year Subscription rises 2015 Page 2: From the President About the money Page 3: Recent drug news Efcortesol shortage Pages 4-5: Personal experience Glasgow Commonwealth Games: Nathan Gafuik diary exclusive Pages 6-9: 2014 AGM Chair's welcome Observations from the floor Treasurer's report Facebook report Member's feedback Pages 10-11: Around the group NHS hospital safety consultation Volunteers needed: endocrine conferences 2015 Nursing awareness: your help needed CAH is Us hosts London seminar Page 12: More drug news Prednisolone pricing controversy continues Pages 13-15: Social reports Jan's social corner 2015 social meetings Page 16: Back page Reminders Subscription rates

    Free

  25. Version

    52 downloads

    Addison's Disease Self Help Group newsletter, issue 117, September 2014 Welcome to the autumn 2015 newsletter. The AGM and medical lecture on 1 November will be our ADSHG “party” to celebrate 30 successful years as a support group for people with Addison’s and their families. This November also marks the 10th anniversary of our accreditation, as a charity formally registered with the Charity Commission. We will be celebrating that important milestone, too. There will be cake and balloons to go with the sandwich lunch at 1pm, which will be followed at 2pm by the 12th annual general meeting and 13th medical lecture of the ADSHG. Page 1: Front page Come to the party on 1 November With this issue Tell your friends: Great South Run 2014 Page 2: From the President About the money Pages 3-4: Recent drug news Spotlight on Diurnal Prednisolone pricing controversy Page 5: Medical news Making hospital visits safer Page 6: Life skills Coping with fear of hospitals Page 7: Personal experience Bad bugs strike again Pages 8-9: Around the group Red flags for the ambo What's new with flu Care.data concerns: update Nursing awareness: Staffordshire replies Pages 10-11: Meeting reports EU nurses conference: Wroclaw Spain: a dream come true Page 12: Personal experience Google gives the diagnosis Pages 12-13: Fundraising reports Ian's £undraising bit Pages 13-15: Social reports Jan's social corner 2014 social meetings Page 16: Back page Subscriptions Reminders

    Free

About us

The Addison’s Disease Self-Help Group is the support group for people with Addison’s disease or adrenal insufficiency and their families in the UK and Ireland.The group was formed in 1984 and is a UK registered charity no. 1106791.

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