Addison's Disease Day 2024

Join us on Wednesday 29 May for Addison's Disease Day 2024!

Save the date in your diary - more details coming soon on the exciting ways you can join us in raising awareness whilst celebrating our incredible community.

We can't make #AddisonsDiseaseDay a success without you. Every share, every challenge started, every penny donated helps. Together we will help improve the lives of those with Addison's disease and adrenal insufficiency.

#AddisonsDiseaseDay – share & educate

If you have plans for 29 May or would like to feature Addison's Disease Day in your publication, podcast or blog - get in touch and we can support your feature.

Contact Us

Could you host an Addison's Afternoon Tea?

Celebrate our 40th Anniversary by hosting an 'Addison’s Afternoon Tea' this May. Your event will be an opportunity to bring people together whilst raising vital awareness in the lead up to Addison’s Disease Day on 29 May.

Learn more about Addison's Afternoon Tea

Make a stand! Addison's awareness in your hospital

Every year we encourage you to set up awareness stands in hospitals or medical practices, to educate others on this rare condition and the needs of a steroid-dependent person.

Download our leaflet to learn more and how we can support you, whether you're an Endocrine Nurse wanting to set up a stand, or a patient wanting to ask your hospital to get involved. For inspiration, read Endocrine Clinical Nurse Specialist Joanne Brown's blog and hear her top tips for creating your own awareness stand!

Make our voice stronger - join our charity

Become a member so you're the first to hear more about our Addison's Disease Day plans! As a member you’ll also receive expert information, the latest news alongside experiences shared by others living with Addison’s and adrenal insufficiency in our magazine and private online forum.

We're here to help you live better with Addison’s day in, day out and your support through membership directly helps us achieve this.

Become a member

Fundraise or start a challenge of your own?

Your donations help raise much needed awareness of this rare condition. Just £5 could help teach someone about symptoms and potentially save their life. So how can you help? If you'd like to take on a fundraising challenge for Addison's Disease Day, ahead of the day please get in touch so we have time to send you our charity pack, charity top and support you in your fundraiser.

Fundraising Ideas

Why 29th May? 29th May would have been John F Kennedy’s birthday. The US President managed his Addison's disease and other autoimmune conditions in secret, read more on our blog. As arguably the most well-known public figure with Addison's, John F Kennedy’s birthday is a fitting date for us to raise awareness and celebrate the achievements of people with Addison's and adrenal insufficiency.

Stay tuned for updates on our plans for Addison's Disease Day 2024!

Thank you for your support. For press and media enquiries, please visit our Media Centre for more resources.

Latest

40th Anniversary Addison's Roadshow

Please join our Addison's Roadshow to celebrate 40 years of the ADSHG! Anyone affected by Addison's disease or adrenal insufficiency, and those that support them, can come along.
Ingrid's Story: Exercising with Addison's

Meet Ingrid who has recently taken up a new hobby, going to the gym. Here Ingrid hopes to inspire others to get exercising this New Year while also reminding us of the importance of managing your Addison’s too.
Shona’s Addison's Afternoon Tea Fundraiser

I'm raising money for the Addison's Disease Self-Help Group so that they can continue to support people with Addison's and adrenal insufficiency. Addison’s is a rare endocrine condition where the adrenal glands do not produce enough steroid hormones and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.
Behind the Research: Implementation of perioperative guidelines & steroid emergency card

Congratulations Louise Breen on receiving the Annette Louise Seal Memorial Award! Louise shares more about her work as an Advanced Endocrine Nurse Practitioner & first Chair Elect of the Society for Endocrinology Nurse Committee

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
Adrenal Crisis - Emergency Help

Adrenal crisis is a time-critical, life-threatening emergency and must be treated immediately. Read the guidance on treating a steroid-dependent patient in adrenal crisis.
What is Addison's Disease?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.
Novel Coronavirus (COVID-19) - 02/10/2023

Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Addison's & Adrenal Insufficiency: Advice for Dentists

The ADSHG guidelines offer illustrative guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

Research Grants

Our charity is at the forefront of medical research into Addison's Disease. Help us fund medical researchers working in this important field of endocrine research. Read more