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Addison's Disease Self Help Group

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Welcome to the website of Addison's Disease Self Help Group (ADSHG). The ADSHG is the UK support group for men, women and children diagnosed with Addison's Disease (or adrenal insufficiency).

addisons.org.uk Tuesday, 20. July 2010 16:18:10

 LATEST TOPICS

Dangerous delays at A & E

Within a few weeks of each other, two of our members experienced dangerous delays at Accident & Emergency, because nursing staff failed to recognise the life-threatening implications of adrenal crisis. Here Liz and Katherine describe their experiences at local hospitals in Wales and East of England.

Our athletes – our heroes

Three members of the ADSHG – all with Addison’s – took part in marathons in April 2010.  Peter Raynard completed the Brighton marathon on 18 April, while Greg Davis and Debra Chase completed the London marathon on 25 April.  Here, they tell their stories.

 

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ADSHG June 2010 Newsletter

The ADSHG June 2010 newsletter has been sent out to all postal members and is available on-line in the member-only website area for all postal and e-members.

Diagnosing Addison's: a guide for GPs

This leaflet, Diagnosing Addison's, has been developed for the ADSHG by our Clinical Advisory Panel, led by Professor John Wass. It outlines the role of the GP in the early detection of Addison's.

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Comms

UK interventions to control medicines wastage: a critical review

The ADSHG, with the support of its clinical advisory panel, has been attempting to raise medical awareness of the risks to patient safety from short-term repeats for several years. Now, we have also published an article showing that short-term repeats are not cost effective for patients on stable, long-term therapies such as steroid replacement treatment.

About the Addison’s Clinical Advisory Panel

The Addison’s Clinical Advisory Panel is an informal group of endocrinologists with an interest in adrenal medicine. They advise the ADSHG on its clinical guidelines, write medical commentaries and review our publications for us. They are led by Professor John Wass of the Churchill Hospital, Oxford.

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 Topics

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Site Info

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PUBLICATIONS

Addison's Owner's manual

Emergency letters

Surgical Guidelines

Managing Addison's disease

Caring for the Addison's patient

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 ADDISON'S INFORMATION  
  What is Addison's disease?
  Spotting the signs and diagnosis
  Addison's disease Owner's Manual
  Real life emergency experiences
  Personal experiences & life stories
  Recent medical research
  Links to medical information sites

  What to do in an emergency

 COMMUNICATION
  About the ADSHG and how to join
  Make a payment or donation
  How to join the e-group forum
  Forthcoming meetings and reports
  Publications and news releases
  Media and Commentary
  Worldwide links Addison's groups
  Contact us: feedback on this site

 LIVING WELL FORUM

Visit the Addison's Living Well e-Forum

Our member-only forum enables us to share information and obtain answers to questions relating to Addison’s disease.

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To join the ADSHG & forum click here...

© Copyright 2006-2009 Addison's Disease Self Help Group (ADSHG), registered charity no: 1106791 - All rights reserved.
Editorial Team: Deana Kenward, Katherine White - Technical Design: Nick Willson
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Disclaimer: The material on this web site has the intention of offering information as unbiased "information only" and is not intended to be complete. The authors of this web site do not practice medicine; they are members of a support group. The intention is only to give information to patients and others about these disorders and the support that is available. We urge you to contact your doctor(s) before making any changes to your treatment!